With the CF Research News, we aim to bridge the gap between people with CF and the researchers investigating CF and how best to treat those with the condition.
We want to provide access to patients, parents, relatives, friends and caregivers of patients with CF to all scientific work mainly published in the Journal of Cystic Fibrosis (JCF).

All PDF files published hereunder are lay version summaries of work published in the JCF.

October 2023

Title: Frequency of urinary and anal incontinence in patient suffering from cystic fibrosis and their impact on quality of life
Authors
Katelyne Hubeaux, Laetitia Gueganton, Emmanuel Nowak, Baptiste Arnouat, Chantal Belleguic, Isabelle Danner-Boucher, Julie Mankikian, Annabelle Payet, Thierry Urban, Marion Buyse, Sophie Ramel
References
J Cyst Fibros. 2023 Oct 29:S1569-1993(23)01659-4. doi: 10.1016/j.jcf.2023.10.011.
Keywords
Faecal incontinence, Quality of life, Urinary incontinence
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Scientific Abstract

October 2023

Title: Unlocking the Secrets of Cystic Fibrosis: A Genetic Study of people with CF in Germany
Authors
Simone Ahting, Lutz Nährlich, Inka Held, Constance Henn, Angelika Krill, Kerstin Landwehr, Jochen Meister, Susanne Nährig, Anna Nolde, Katharina Remke, Renate Ruppel,, Annette Sauer-Heilborn, Martin Schebek, Gudrun Schopper, Bernhard Schulte-Hubbert, Carsten Schwarz, Christina Smaczny, Sabine Wege, Julia Hentschel; Registry Working Group of the German CF Registry
References
J Cyst Fibros. 2023 Oct 20:S1569-1993(23)00928-1. doi: 10.1016/j.jcf.2023.10.009.
Keywords
Diagnostics, Genetics, Genotyping, Next-generation-sequencing
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Scientific Abstract

October 2023

Title: Pulmonary exacerbation treatment location
Authors
Laura S. Gold, Ryan N. Hansen, Sonya L. Heltshe, Patrick A. Flume, Christopher H. Goss, Natalie E. West, Don B. Sanders, Larry Kessler
References
J Cyst Fibros. 2023 Oct 5:S1569-1993(23)00926-8. doi: 10.1016/j.jcf.2023.10.004.
Keywords
Home intravenous treatment, Hospitalization, Insurance, Pulmonary exacerbation, Sex
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Scientific Abstract

October 2023

Title: Repeating bacterial cultures in people with cystic fibrosis (CF) hospitalised with chest exacerbations may not be useful
Authors
Wendy Hc Song, Kendrew Sk Wong, David M Goldfarb, Jeffrey N Bone, Jonathan H Rayment
References
J Cyst Fibros. 2023 Oct 12:S1569-1993(23)00930-X. doi: 10.1016/j.jcf.2023.10.007.
Keywords
Bacterial cultures, Pediatric, Pulmonary exacerbation
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Scientific Abstract

October 2023

Title: Testing the Usability, Acceptability, and Appropriateness of a Web-Based Reproductive Decision Support Tool for Cystic Fibrosis
Authors
Traci M Kazmerski, Olivia M Stransky, Catherine E Wright, Maya Albanowski, Joseph M Pilewski, Mehret Birru Talabi, Lisa S Callegari, Judy C Chang, Kaleab Z Abebe, Elizabeth Miller, Ashley Deal, Raelynn O'Leary, Sonya Borrero
References
J Cyst Fibros. 2023 Oct 11:S1569-1993(23)00924-4. doi: 10.1016/j.jcf.2023.10.003.
Keywords
decision support tool, Feasibility, patient-provider communication self-efficacy, reproductive health
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Scientific Abstract

October 2023

Title: Impact of Highly Effective Modulator Therapy on Sinus Disease and Health Status: 2-year Follow-up
Authors
Daniel M Beswick, Aastha Khatiwada, Jessa E Miller, Stephen M Humphries, Alexandra Wilson, Eszter K Vladar, David A Lynch, Jennifer L Taylor-Cousar
References
J Cyst Fibros. 2023 Oct 5:S1569-1993(23)00917-7. doi: 10.1016/j.jcf.2023.09.013.
Keywords
Chronic rhinosinusitis, Computed tomography, Highly effective modulator therapy, Machine learning, Quality of life
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Scientific Abstract

October 2023

Title: Understanding patient views on use of Trikafta after lung transplant
Authors
Dave Young, Lauren E Bartlett, Jennifer Guimbellot, Tijana Milinic, Nora Burdis, Eliana R Gill, Erika D Lease, Christopher H Goss, Siddhartha G Kapnadak, Kathleen J Ramos
References
J Cyst Fibros. 2023 Oct 3:S1569-1993(23)00921-9. doi: 10.1016/j.jcf.2023.09.017.
PDF icon CF Research News Article
Scientific Abstract