With the CF Research News, we aim to bridge the gap between people with CF and the researchers investigating CF and how best to treat those with the condition.
We want to provide access to patients, parents, relatives, friends and caregivers of patients with CF to all scientific work mainly published in the Journal of Cystic Fibrosis (JCF).

All PDF files published hereunder are lay version summaries of work published in the JCF.

November 2024

Title: The relation between the physical activity behaviour of youth with Cystic Fibrosis and their parents
Authors
Manon Kinaupenne, Stephanie Van Biervliet, Kim Van Hoorenbeeck, Heidi Schaballie, Kristof Vandekerckhove, Marieke De Craemer, Heleen Demeyer
References
J Cyst Fibros. 2024 Nov 28:S1569-1993(24)01815-0. doi: 10.1016/j.jcf.2024.11.007.
Keywords
Accelerometer, Parental behaviour, Physical activity, Youth
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Scientific Abstract

November 2024

Title: A review of research about Trikafta and mental health: a report from Cystic Fibrosis Foundation’s Prioritizing Research in Mental Health Working Group
Authors
Bathgate CJ, Fedele DA, Tillman EM, He J, Everhart RS, Reznikov LR, Liu FF, Kirby K, Raffensperger K, Traver K, Riekert KA, Powers SW, Georgiopoulos AM
References
J Cyst Fibros. 2024 Nov 26:S1569-1993(24)01814-9. doi: 10.1016/j.jcf.2024.11.006.
Keywords
adverse events, anxiety, CFTR modulators, Cognitive, Mood, Neuropsychological
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Scientific Abstract

November 2024

Title: Coping and Learning to Manage Stress (CALM): A telehealth intervention to help reduce depression and anxiety symptoms in adults with CF
Authors
Christina J Bathgate, Elizabeth D Smith, Nora H Murphy, Alexandra L Quittner, Kristin A Riekert, Jennifer L Goralski, Kristen E Holm
References
J Cyst Fibros. 2024 Nov 24:S1569-1993(24)01810-1. doi: 10.1016/j.jcf.2024.11.002.
Keywords
anxiety, Cognitive behavioral Stress management, Cognitive behavioral therapy, depression, Psychosocial intervention, Skill building
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Scientific Abstract

November 2024

Title: Effect of elexacaftor/tezacaftor/ivacaftor on the use of routine therapies in Danish people with cystic fibrosis
Authors
Hans Kristian Råket, Camilla Bjørn Jensen, Joanna Nan Wang, Tacjana Pressler, Hanne Vebert Olesen, Marianne Skov, Søren Jensen-Fangel, Janne Petersen, Espen Jimenez-Solem; TransformCF study group
References
J Cyst Fibros. 2024 Nov 23:S1569-1993(24)01813-7. doi: 10.1016/j.jcf.2024.11.004.
Keywords
Drug utilization, registry, Treatment Outcome
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Scientific Abstract
Title: People with cystic fibrosis and care teams share how CF care can change to meet patient needs.
Authors
Quynh T Tran, Enid Aliaj, Murrey G Olmsted, Sarah E Hempstead, Paula H Lomas, Rebekah F Brown, Patrick A Flume, A Whitney Brown
References
J Cyst Fibros. 2024 Nov;23(6):1066-1071. doi: 10.1016/j.jcf.2024.09.002. Epub 2024 Sep 25.
Keywords
CF care model, Healthcare delivery, interdisciplinary, Remote monitoring, Specialized care, Telehealth, Telemedicine
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Scientific Abstract

November 2024

Title: Standards for the care of people with cystic fibrosis (CF): A timely and accurate diagnosis
Authors
Carlo Castellani, Nicholas J Simmonds, Jürg Barben, Charlotte Addy, Amanda Bevan, Pierre-Régis Burgel, Pavel Drevinek, Silvia Gartner, Andrea Gramegna, Elise Lammertyn, Eddie Edwina C Landau, Peter G Middleton, Barry J Plant, Alan R Smyth, , Silke van Koningsbruggen-Rietschel, Emmanuelle Girodon, Nataliya Kashirskaya, Anne Munck, Lutz Nährlich, Karen Raraigh, Isabelle Sermet-Gaudelus, Olaf Sommerburg, Kevin W Southern
References
J Cyst Fibros. 2023 Nov;22(6):963-968. doi: 10.1016/j.jcf.2023.09.008. Epub 2023 Sep 27.
Keywords
CFSPID, CFTR, CFTR-related disorder, CRMS/CFSPID, Extended Gene Analysis (EGA), Newborn Bloodspot Screening (NBS)
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Free Access Article

November 2024

Title: A mouse model containing the W1282X mutation can be used to test cystic fibrosis therapies
Authors
J Cyst Fibros. 2024 Nov 11:S1569-1993(24)01797-1. doi: 10.1016/j.jcf.2024.10.008.
References
Margaret Michicich, Zachary Traylor, Caitlan McCoy, Dana M Valerio, Alma Wilson, Molly Schneider, Sakeena Davis, Amanda Barabas, Rachel J Mann, David F LePage, Weihong Jiang, Mitchell L Drumm, Thomas J Kelley, Ronald A Conlon, Craig A Hodges
 
Keywords
Mouse model, Nonsense mutation, Organoids, W1282X
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Scientific Abstract

November 2024

Title: How Does Income Level Affect the Health of People with Cystic Fibrosis?
Authors
Neval Metin Cakar, Seyda Karabulut, Mine Yuksel Kalyoncu, Merve Selcuk Balcı, Ceren Ayça Yıldız, Damla Kocaman, Burcu Uzunoglu, Gamze Tastan, Almala Pınar Ergenekon, Ela Erdem Eralp, Yasemin Gokdemir, Fazilet Karakoc, Bulent Karadag
References
J Cyst Fibros. 2024 Nov 7:S1569-1993(24)01803-4. doi: 10.1016/j.jcf.2024.10.010.
Keywords
Health outcomes, Income level, Social determinant of health, Your current life situation
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Scientific Abstract

November 2024

Title: Aging and CF in the United States
Authors
Joshua S. Ostrenga, Kristina Robinson, A. Whitney Brown, Christopher H. Goss, Elizabeth A. Cromwell
References
J Cyst Fibros. 2024 Nov 4:S1569-1993(24)01802-2. doi: 10.1016/j.jcf.2024.10.009.
Keywords
Aging, registry
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Scientific Abstract