With the CF Research News, we aim to bridge the gap between people with CF and the researchers investigating CF and how best to treat those with the condition.
We want to provide access to patients, parents, relatives, friends and caregivers of patients with CF to all scientific work mainly published in the Journal of Cystic Fibrosis (JCF).

All PDF files published hereunder are lay version summaries of work published in the JCF.

November 2023

Title: Use of CFTR modulators in patients having undergone liver transplantation
Authors
Diana Coman, Catherine Vincent, Genevieve Huard, Denis Marleau, Annick Lavoie, Julian Hercun
References
J Cyst Fibros. 2023 Nov 23:S1569-1993(23)01675-2. doi: 10.1016/j.jcf.2023.11.004.
Keywords
CFTR modulators, Cystic fibrosis liver disease, Elexacaftor/tezacaftor/ivacaftor, Liver transplant
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Scientific Abstract

November 2023

Title: Changes in cholesterol levels in people with cystic fibrosis after starting highly effective modulators
Authors
Katherine A. Despotes, Agathe S. Ceppe, and Scott H. Donaldson
References
J Cyst Fibros. 2023 Nov;22(6):1024-1026. doi: 10.1016/j.jcf.2023.10.002. Epub 2023 Oct 12
Keywords
CFTR modulators, Cardiovascular disease, Cholesterol
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Scientific Abstract

November 2023

Title: Loss of the Sense of Smell in People with Cystic Fibrosis: Community Perceptions and Impact
Authors
Jessa E Miller, Christine M Liu, Edith T Zemanick, Jason C Woods, Christopher H Goss, Jennifer L Taylor-Cousar, Daniel M Beswick
References
J Cyst Fibros. 2023 Nov 17:S1569-1993(23)01677-6. doi: 10.1016/j.jcf.2023.11.006.
Keywords
Olfaction, Olfactory dysfunction, Quality of life, Smell
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Scientific Abstract

November 2023

Title: Restless Legs Syndrome is a common sleep disorder in people with Cystic Fibrosis
Authors
Sabin R Bista, Tahuanty Pena, Makayla E Schissel, Lynette M Smith, Peter J Murphy, John D Dickinson
References
J Cyst Fibros. 2023 Nov 14:S1569-1993(23)01665-X. doi: 10.1016/j.jcf.2023.10.016.
 
Keywords
Epworth sleepiness scale (ess), Pittsburgh sleep quality index (PSQI), Restless legs syndrome (RLS), CF-related diabetes
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Scientific Abstract

November 2023

Title: A survey to understand if it is harmful for the baby when a male with CF uses CFTR modulators during assisted reproduction for pregnancy with his partner
Authors
Jennifer L Taylor-Cousar, Rachel Janney, Peter G Middleton, Raksha Jain, Julia Nightingale, Natalie E West, Michal Shteinberg, Danielle Velez, Traci M Kazmerski
References
J Cyst Fibros. 2023 Nov 10:S1569-1993(23)01667-3. doi: 10.1016/j.jcf.2023.10.022.
Keywords
Assisted reproduction, CFTR, conception, Modulators
PDF icon JCF-D-23-00353R1_FINAL_Taylor-Cousar_191223.pdf
Scientific Abstract

November 2023

Title: Identifying Infants with Cystic Fibrosis Who Need More Help Growing
Authors
Sarah Gunnell Bellini, Jessica Johnson, Catherine M McDonald, Suzanne Culhane, Yungjing Snell, Dennis Eggett
References
J Cyst Fibros. 2023 Nov 3:S1569-1993(23)01661-2. doi: 10.1016/j.jcf.2023.10.013.
Keywords
Nutrition screening, nutritional status, Pediatric
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Scientific Abstract