With the CF Research News, we aim to bridge the gap between people with CF and the researchers investigating CF and how best to treat those with the condition.
We want to provide access to patients, parents, relatives, friends and caregivers of patients with CF to all scientific work mainly published in the Journal of Cystic Fibrosis (JCF).

All PDF files published hereunder are lay version summaries of work published in the JCF.

June 2024

Title: Evaluating Fertility Preservation Telehealth Counseling for Males with Cystic Fibrosis
Authors
Brittany M Woods, Leigh A Bray, Sukhkamal B Campbell, Peng Li, Traci M Kazmerski, Cade Hovater, Leslie N Pitts, Sigrid Ladores
References
J Cyst Fibros. 2024 Jun 27:S1569-1993(24)00780-X. doi: 10.1016/j.jcf.2024.06.011.
Keywords
Fertility preservation, Patient education, Telehealth
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Scientific Abstract
Title: Could glucose tolerance tests used to detect cystic fibrosis related diabetes be performed at home?
Authors
Laure Alexandre-Heymann, Valérie Boudreau, Noémie Bélanger, Agata Mostkowska, Anne Bonhoure, Annick Lavoie, Rémi Rabasa-Lhoret, Adèle Coriati
References
J Cyst Fibros. 2024 Jun 27:S1569-1993(24)00777-X. doi: 10.1016/j.jcf.2024.06.009
Keywords
Cystic fibrosis related diabetes, Oral glucose tolerance test, Quality of life, screening
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Scientific Abstract

June 2024

Title: How Personalized Genetic Testing for Medication Metabolism May Reduce Problems with Medications for People with Cystic Fibrosis
Authors
Anindit Chhibber, Alexandre Hikiji Watanabe, Hollyann Jacobs, Aditi Kharat, Sakil M Syeed, Catherine M Sherwin, Nathorn Chaiyakunapruk, Joseph Biskupiak, Venkata K Yellepeddi, Diana Brixner, David C Young
References
J Cyst Fibros. 2024 Jun 26:S1569-1993(24)00775-6. doi: 10.1016/j.jcf.2024.06.006.
Keywords
Adverse drug reactions, Drug therapy problems, Genomics, Pharmacogenomics, Pharmacotherapy, Precision medicine
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Scientific Abstract

June 2024

Title: Lung function and imaging outcomes in children with cystic fibrosis diagnosed after newborn screening
Authors
Bettina S Frauchiger, Corin Willers, Jasna Cotting, Elisabeth Kieninger, Insa Korten, Carmen Casaulta, Yasmin Salem, Enno Stranzinger, Ben Brabandt, Jakob Usemann, Nicolas Regamey, Alena Kuhn, Sylvain Blanchon, Isabelle Rochat, Grzegorz Bauman, , Dominik Müller-Suter, Alexander Moeller, Philipp Latzin, Kathryn A Ramsey; BILD and SCILD study groups
References
J Cyst Fibros. 2024 Jun 25:S1569-1993(24)00074-2. doi: 10.1016/j.jcf.2024.05.010.
Keywords
Children, Lung clearance index, Magnetic Resonance Imaging, Multiple breath washout
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Scientific Abstract

June 2024

Title: Beyond Insulin: Unraveling the Complex Interplay of Cell Stress and Cell Communication in CFRD
Authors
Bala Umashankar, Lena Eliasson, Chee Y Ooi, Ki Wook Kim, James A M Shaw, Shafagh A Waters
References
J Cyst Fibros. 2024 Jun 18:S1569-1993(24)00082-1. doi: 10.1016/j.jcf.2024.06.004.
Scientific Abstract
Title: Beyond Insulin: Unraveling the Complex Interplay of Cell Stress and Cell Communication in CFRD
Authors
Bala Umashankar, Lena Eliasson, Chee Y Ooi, Ki Wook Kim, James A M Shaw, Shafagh A Waters
References
J Cyst Fibros. 2024 Jun 18:S1569-1993(24)00082-1. doi: 10.1016/j.jcf.2024.06.004.
Keywords
CFRD, ER stress, Exosomes, oxidative stress, miRNA
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Scientific Abstract

June 2024

Title: Presentation of two siblings with CF born to a mother with CF taking Trikafta (Kaftrio) throughout both pregnancies. A baby boy has normal vas deferens after birth.
Authors
Aleksandra Kowalik, Emma Roberts, Anna Hedborg Harris, Marie Sund, Sara Wird, Ola Kvist, Lena Hjelte
References
J Cyst Fibros. 2024 Jun 13:S1569-1993(24)00080-8. doi: 10.1016/j.jcf.2024.06.003.
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Scientific Abstract

June 2024

Title: Development and Initial Use of the Personalized Cystic Fibrosis Medication Questionnaire (PCF-MQ)
Authors
Hanna Phan, Cori L Daines, Ti Woo, Kevin J. Psoter, Andrea Goodman, Emma McWilliams, Carla Frederick, Carlos Milla, Gabriela Oates, Gregory S. Sawicki, Kristin A. Riekert
References
J Cyst Fibros. 2024 Jun 7:S1569-1993(24)00073-0. doi: 10.1016/j.jcf.2024.05.011.
Keywords
Medication education, Medication knowledge, Personalized medicine
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Scientific Abstract