With the CF Research News, we aim to bridge the gap between people with CF and the researchers investigating CF and how best to treat those with the condition.
We want to provide access to patients, parents, relatives, friends and caregivers of patients with CF to all scientific work mainly published in the Journal of Cystic Fibrosis (JCF).

All PDF files published hereunder are lay version summaries of work published in the JCF.

December 2024

Title: What do people with CF think about their health since starting ETI?
Authors
Robin S Everhart, Emma McWilliams, Jill Maggs, Gregory S Sawicki, Takeera Sconiers, Kyle Smith, Dana Yablon, Jennifer Butcher, Michelle Prickett, Callie Bacon, Andrea Goodman, Alex H Gifford, Nicole Mayer-Hamblett, David P Nichols, Kristin A Riekert
References
J Cyst Fibros. 2024 Nov 21:S1569-1993(24)01811-3. doi: 10.1016/j.jcf.2024.11.003.
 
Keywords
Health, Modulator therapy, Qualitative
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Scientific Abstract

December 2024

Title: Use of Elexacaftor/Tezacaftor/Ivacaftor in Pregnant Mothers without CF to Treat Meconium Ileus in Fetuses with Cystic Fibrosis
Authors
Angela Metcalf, Stacey L Martiniano, Scott D Sagel, Michael V Zaretsky, Edith T Zemanick, Jordana E Hoppe
References
J Cyst Fibros. 2024 Dec 6:S1569-1993(24)01843-5. doi: 10.1016/j.jcf.2024.11.011.
Keywords
CFTR modulator, Carrier, Elexacaftor/texacaftor/ivacaftor, Fetal, meconium ileus, pregnancy, Prenatal
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Scientific Abstract

December 2024

Title: Elexacaftor/tezacaftor/ivacaftor can be effective for people with cystic fibrosis with the 3849 gene variant
Authors
Moshe Heching, Michal Shteinberg, Inbal Golan-Tripto, Galit Livnat-Levanon, Karin Yaacoby-Bianu, Liora Boehm Cohen, Guy Hazan, Liora Slomianski, Dario Prais, Huda Mussaffi, Joel Weinberg, Mordechai R Kramer
References
J Cyst Fibros. 2024 Dec 5:S1569-1993(24)01845-9. doi: 10.1016/j.jcf.2024.11.010.
Keywords
3849+10kbC->T variant, CFTR modulators, Elexacaftor, Residual function variant
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Scientific Abstract

December 2024

Title: Daily changes in the amount of Pseudomonas in CF sputum
Authors
Lisa A Carmody, Lindsay J Caverly, Linda M Kalikin, Christina S Thornton, Richard H Simon, Donald R VanDevanter, John J LiPuma
References
J Cyst Fibros. 2024 Dec 2:S1569-1993(24)01848-4. doi: 10.1016/j.jcf.2024.11.013.
Keywords
Bacterial density in sputum, Pseudomonas airway infection, Response biomarker
PDF icon CF Research News Article
Scientific Abstract