ECFS is committed to improving survival and quality of life for people with CF. The “standards of care” committee recently coordinated an update of the standards for the care of people with cystic fibrosis, following previous versions in 2018 and 2005. The current update included four publications providing guidance on:
• Timely and accurate diagnosis
• Establishing and maintaining health
• Recognizing and addressing CF health issues
• Planning for a longer life
The committee has made an index list of the topics covered and 89 consensus statements arising from the four papers.
Delivering high quality care is paramount and we find the inequalities in levels of assistance across regions and countries unacceptable. All CF teams should aim to deliver care according to the present standards even though optimal care may not be an easily achievable target. In some less advantaged countries, a stepwise approach may be the only deliverable approach.
