ECFS Guidelines

Updated September 2012

Note: When filtering by "Guideline Type" please note that the options prefixed as "EuroCareCF: Workpackage" refer to "EuroCareCF: Consensus guidelines and reports (European Coordination Action for Research in Cystic Fibrosis)".

June 2011

Title: Developing new products in cystic fibrosis: Needs and obstacles for activities of small and middle-sized companies
References
Journal of Cystic Fibrosis Volume 10 (2011) S103-S109
Title: Medical needs of cystic fibrosis patients and policies for fair co-operation between small and middle-sized companies and patient organizations
References
Journal of Cystic Fibrosis Volume 10 (2011) S110-S113
Title: Recommendations for the classification of diseases as CFTR-related disorders
References
Journal of Cystic Fibrosis Volume 10 (2011) S86-S102
Title: Measuring health-related quality of life in clinical trials in cystic fibrosis
References
Journal of Cystic Fibrosis Volume 10 (2011) S82-S85
Title: Chronic Pseudomonas aeruginosa infection definition: EuroCareCF Working Group report
References
Journal of Cystic Fibrosis Volume 10 (2011) S75-S78
Title: Pulmonary exacerbation: Towards a definition for use in clinical trials. Report from the EuroCareCF Working Group on outcome parameters in clinical trials
References
Journal of Cystic Fibrosis Volume 10 (2011) S79-S81
Title: Guideline on the design and conduct of cystic fibrosis clinical trials: The European Cystic Fibrosis Society–Clinical Trials Network (ECFS-CTN)
References
Journal of Cystic Fibrosis Volume 10 (2011) S67-S74
Title: New clinical diagnostic procedures for cystic fibrosis in Europe
References
Journal of Cystic Fibrosis Volume 10 (2011) S53-S66
Title: Guiding principles on how to manage relevant psychological aspects within a CF team: Interdisciplinary approaches
References
Journal of Cystic Fibrosis Volume 10 (2011) S45-S52
Title: End of Life Care for Patients with Cystic Fibrosis
References
Journal of Cystic Fibrosis Volume 10 (2011) S37-S44
Title: Best practice guidance for the diagnosis and management of cystic fibrosis-associated liver disease
References
Journal of Cystic Fibrosis Volume 10 (2011) S29-S36
Title: Guidelines for the diagnosis and management of distal intestinal obstruction syndrome in cystic fibrosis patients
References
Journal of Cystic Fibrosis Volume 10 (2011) S24-S28
Title: European cystic fibrosis bone mineralisation guidelines
References
Journal of Cystic Fibrosis Volume 10 (2011) S16-S23
Title: The implementation of standards of care in Europe: State of the art
References
Journal of Cystic Fibrosis Volume 10 (2011) S7-S15

September 2010

Title: Travelling with cystic fibrosis: Recommendations for patients and care Team members
References
Journal of Cystic Fibrosis Volume 9 (2010) 385-399

May 2009

Title: European best practice guidelines for cystic fibrosis neonatal screening
References
Journal of Cystic Fibrosis Volume 8 (2009) 153-173

January 2008

Title: Guidelines for the management of pregnancy in women with cystic fibrosis
References
Journal of Cystic Fibrosis Volume 7, Supplement 1, Pages S1-S32 (January 2008)