Aims and objectives

This website aims to help promote excellence in Mental Health research across the European CF Community.

On this site, you will find:
•    easy access to resources
•    a "toolkit" to facilitate implementation of annual MH screening in many European languages
•    the latest news on the topic
•    opportunities for training (e.g. at ECFS annual conference)


“Special CF Lunchtime Series” 

 

27 April 2022

12:00-13:00 CET
11:00-12:00 UK time

Trauma and Cystic Fibrosis


Target audience: All members of the multi-disciplinary team including doctors, nurses, dietitians, physiotherapists, psychologists, social workers etc. 

PRE-CONFERENCE SHORT Course 

 

07 June 2022 - Rotterdam, the Netherlands

09:00-17:00

Discussing sex and intimacy with patients with CF is not 'opening a box of Pandora', but 're-opening a box of pleasure!'

Target audience: All members of the multi-disciplinary team including doctors, nurses, dietitians, physiotherapists, psychologists, social workers etc. 

Participation requires additional registration and fee. 
Programme


Background

A study in nine countries (the TIDES study) showed that depression and especially anxiety were elevated in patients with CF and in parents of children with CF. Elevations were two to three times those reported in community samples. People with untreated depression, anxiety or both:
•    May be less likely to manage their treatment plans effectively.
•    Tend to have worse lung function.
•    May have a lower body mass index (BMI).
•    Often experience more  hospitalizations.
•    May experience a lower quality of life.

Guidelines

From a survey of 1454 CF health professionals it is known that Mental health care delivery in CF is inadequate and highly variable across care centres and countries. Insufficient resources and a lack of standardisation, training and competency generated barriers to mental health provision. 

The Cystic Fibrosis Foundation, in collaboration with the European Cystic Fibrosis Society, developed guidelines for screening and treating depression and anxiety. These guidelines provide recommendations for prevention, screening, clinical assessment, and psychological and/or pharmacological interventions