The list of references hereunder gives an overview of relevant publications on mental Health in Cystic Fibrosis.
Open Access articles are marked with [Open Access] . Click on the title to be redirected to the article.
We will regularly add new relevant studies.
Feel free to send us any suggestion you might have to info@ECFSmentalhealth
- Abbott, J., J.S.Elborn, A.M.Georgiopoulos, L. Goldbeck, K.A.Sabadosaf, B.A.Smithg A.L.Quittner Cystic Fibrosis Foundation and European Cystic Fibrosis Society Survey of Cystic Fibrosis mental health care delivery. Journal of Cystic Fibrosis Volume 14, Issue 4, July 2015, Pages 533-539
- Abbott J, Havermans T, Jarvholm S, Landau E, Prins Y, Smrekar U, Staab D, Verity L, Verkleij M on behalf of the ECFS Mental Health Working Group. Mental Health screening in cystic fibrosis centres across Europe. J Cyst Fibros. 2018 Sep 26. pii: S1569-1993(18)30801-4. doi: 10.1016/j.jcf.2018.09.003
- Alistair J.A.Duff Depression in cystic fibrosis; Implications of The International Depression/Anxiety Epidemiological Study (TIDES) in cystic fibrosis Pediatric Respiratory reviews Volume 16, Supplement 1, October 2015, Pages 2-5
- Backström-Eriksson L, Sorjonen K, Bergsten-Brucefors A, Hjelte L, Melin B. Anxiety and depression in adults with cystic fibrosis: a comparison between patients and the general population in Sweden and three other European countries. BMC Pulm Med. 2015 Oct 14;15:121. doi: 10.1186/s12890-015-0117-9. [Open Access]
- Baiardini I, Steinhilber G, DI Marco F, Braido F, Solidoro P. Anxiety and depression in cystic fibrosis. Minerva Med. 2015 Oct;106(5 Suppl 1):1-8. Review. [Open Access]
- Catastini P, Di Marco S, Furriolo M, Genovese C, Grande A, Iacinti E, Iusco DR, Nobili RM, Pescini R, Ragni R, Randazzo R, Risso C, Tabarini P, Braggion C, De Masi S, McGreevy KS.The prevalence of anxiety and depression in Italian patients with cystic fibrosis and their caregivers. Pediatr Pulmonol. 2016 Dec;51(12):1311-1319. doi: 10.1002/ppul.23566.[Open Access]
- Douma M, Maurice-Stam H, Gorter B, Krol Y, Verkleij M, Wiltink L, Scholten L, Grootenhuis MA. Online psychosocial group intervention for parents: Positive effects on anxiety and depression. J Pediatr Psychol. 2021 Feb 19;46(2):123-134. doi: 10.1093/jpepsy/jsaa102
- Duff AJ, Abbott J, Cowperthwaite C, Sumner C, Hurley MA, Quittner A; TIDES-UK Group. Depression and anxiety in adolescents and adults with cystic fibrosis in the UK: a cross-sectional study. J Cyst Fibros. 2014 Dec;13(6):745-53. doi: 10.1016/j.jcf.2014.02.010.[Open Access]
- Fidika A; Marion Herle and Lutz Goldbeck; Symptoms of depression impact the course of lung function in adolescents and adults with cystic fibrosis BMC Pulmonary Medicine201414:205
- Fidika, A; Marion Herle, Christine Lehmann, Christa Weiss, Christine Knaevelsrud, Lutz Goldbeck A web based psychological support program for care givers of children with Cystic Fibrosis a pilot study, Health and Quality of Life Outcomes, 2015, Volume 13, Number 1, Page 1
- Garcia G, Snell C, Sawicki G, Simons LE. Mental Health Screening of Medically-Admitted Patients With Cystic Fibrosis. Psychosomatics. 2017 Aug 30. pii: S0033-3182(17)30188-3. doi: 10.1016/j.psym.2017.08.010 [Open Access]
- Graziano, S., Spanò, B., Majo, F., Righelli, D. Vincenzina, L., Quittner, A., Tabarini, P.
Rates of depression and anxiety in Italian patients with cystic fibrosis and parent caregivers: Implementation of the Mental Health Guidelines Respir Med. 2020 Sep 10;172:106147. doi: 10.1016/j.rmed.2020.106147. Online ahead of print. - S. Graziano, E. Landau, Verkleij M, Anna M. Georgiopoulos, M. Schechter, Janice Abbott, Alexandra L. Quittner, Beth A. Smith (2021). Mental health screening in CF: Thematic analysis of determinants of implementation in Europe and the United States. J Cyst Fibrosis, abstract published on 01 Nov 2021.
- Graziano S, Boldrini F, Righelli D, Milo F, Lucidi V, Quittner A, Tabarini P. Psychological interventions during COVID pandemic: Telehealth for individuals with cystic fibrosis and caregivers.Pediatr Pulmonol. 2021 Jul;56(7):1976-1984. doi: 10.1002/ppul.25413. Epub 2021 Apr 27.PMID: 33905614
- Havermans, T., Houben, J., Vermeulen, F., Boon, M., Proesmans, M., Lorent, N., de Soir, E., Vos, R., Dupont, L.
The impact of the COVID-19 pandemic on the emotional well-being and home treatment of Belgian patients with cystic fibrosis, including transplanted patients and paediatric patients. J Cyst Fibros. 2020 Jul 31;S1569-1993(20)30815-8. doi: 10.1016/j.jcf.2020.07.022.. - Havermans T, Willem L. Prevention of anxiety and depression in cystic fibrosis. Curr Opin Pulm Med. 2019 Nov;25(6):654-659.
- Järvholm S, Ericson P, Gilljam M. Patient acceptance and outcome of mental health screening in Swedish adults with cystic fibrosis. Qual Life Res. 2020 Jun;29(6):1579-1585.
- Järvholm S, Ericson P, Gilljam M. Patient acceptance and outcome of mental health screening in Swedish adults with cystic fibrosis. Qual Life Res. 2020 Jun;29(6):1579-1585. doi: 10.1007/s11136-020-02417-5. Epub 2020 Jan 9.PMID: 31919786.
- Knudsen KB, Pressler T, Mortensen LH, Jarden M, Boisen KA, Skov M, Quittner AL, Katzenstein TL Coach to cope: feasibility of a life coaching program for young adults with cystic fibrosis. Patient Prefer Adherence. 2017 Sep 21;11:1613-1623. doi: 10.2147/PPA.S141267. eCollection 2017. [Open Access]
- Knudsen, K.B.; T. Pressler L. H. Mortensen M. Jarden M. Skov A. L. Quittner T. Katzenstein; K. A. Boisen. Associations between adherence, depressive symptoms and health‑related quality of life in young adults with cystic fibrosis SpringerPlus December 2016, 5:1216
- Latchford G, Duff AJ. Screening for depression in a single CF centre. J Cyst Fibros. 2013 Dec;12(6):794-6. doi: 10.1016/j.jcf.2013.04.002
- Landau E, Mussaffi H, Kalamaro V, Quittner A, Taizi T, Kadosh D, Mantin H, Prais D, Blau H, Mei-Zahav M. Efficacy of Problem-Solving Intervention to Improve Adherence in Adolescents and Adults with Cystic Fibrosis. Isr Med Assoc J. 2021 Sep;23(9):584-589. PMID: 34472235.
- Landau E, Verkleij M, Graziano S., Quittner A.L., Georgiopoulos A.M., Smith B.A., Schechter M.S., Abbott J. (2021). WS11.5 Mental health screening as an intervention: how patients and caregivers contribute to improving our processes. J Cyst Fibros. Abstract published on 01 Jan 2021.
- Leupoldt von, A., Brighton, L.J., Peters, J., Volpato, E. Verkleij, M., Hutchinson, A., Heijmans, M., Farver-Vestergaard, I., Langer, D., Spruit, M.A., on behalf of the ERS Scientific Working Group 09.04
Psychologists and behavioural scientists: the next step towards multidisciplinary respiratory care European Respiratory Journal 2020 56: 2001881; DOI: 10.1183/13993003.01881-2020 [Open Access] - Noordhoek, J., Weldam, S., Gulmans, V.A.M., Kuijer, Y.N., Heijerman, H.G.M., van der Ent, C.K.
A Coaching Program for Parents with a Child, Diagnosed with CF after NBS, Feasibility and Possible Effects Psychology and Behavioral Science International Journal. 2020 Sep. 14. doi: 10.19080/PBSIJ.2020.15.555912 [Open Access] - McKinzie CJ, Goralski JL, Noah TL, Retsch-Bogart GZ, Prieur MB.Worsening anxiety and depression after initiation of lumacaftor/ivacaftor combination therapy in adolescent females with cystic fibrosis.J CystFibros2017Jul;16(4):525-527.doi: 10.1016/j.jcf.2017.05.008. Epub 2017 Jun 8.
- Modi AC, Driscoll KA, Montag-Leifling K, Acton JDScreening for symptoms of depression and anxiety in adolescents and young adults with cystic fibrosis. Pediatr Pulmonol. 2011 Feb;46(2):153-9. doi: 10.1002/ppul.21334 [Open Access]
- Quittner AL, Abbott J, Georgiopoulos AM, Goldbeck L, Smith B, Hempstead SE, Marshall B, Sabadosa KA, Elborn S; International Committee on Mental Health; EPOS Trial Study Group. International Committee on Mental Health in Cystic Fibrosis: Cystic Fibrosis Foundation and European Cystic Fibrosis Society consensus statements for screening and treating depression and anxiety. Thorax. 2016 Jan;71(1):26-34. doi: 10.1136/thoraxjnl-2015-207488. [Open Access]
- Quittner AL, Goldbeck L, Abbott J, Duff A, Lambrecht P, Solé A, Tibosch MM, Bergsten Brucefors A, Yüksel H, Catastini P, Blackwell L, Barker D Prevalence of depression and anxiety in patients with cystic fibrosis and parent caregivers: results of The International Depression Epidemiological Study across nine countries. Thorax. 2014 Dec;69(12):1090-7. doi: 10.1136/thoraxjnl-2014-205983
- Quittner, A; Saez-Flores, Estefany; Barton, John D. The psychological burden of cystic fibrosis Current Opinion in Pulmonary Medicine: March 2016 - Volume 22 - Issue 2 - p 187–191 doi: 10.1097/MCP.0000000000000244 Special Commentary
- Quon BS, Bentham WD, Unutzer J, Chan YF, Goss CH, Aitken ML.Prevalence of symptoms of depression and anxiety in adults with cystic fibrosis based on the PHQ-9 and GAD-7 screening questionnaires. Psychosomatics. 2015 Jul-Aug;56(4):345-53. doi: 10.1016/j.psym.2014.05.017 [Open Access]
- Pakhale, S., Justine Baron, Michael Armstrong, Georgio Tasca, Ena Gaudet, Shawn Aaron, William Cameron, Louise Balfour A cross sectional study of the psychological needs of adults living with Cystic Fibrosis PLOS one Published: June 23, 2015 https://doi.org/10.1371/journal.pone.0127944
- Saez-Flores E, Tonarely NA, Barker DH, Quittner AL Examining the Stability of the Hospital Anxiety and Depression Scale Factor Structure in Adolescents and Young Adults With Cystic Fibrosis: A Confirmatory Factor Analysis
- Smith BA, Georgiopoulos AM, Quittner AL.Maintaining mental health and function for the long run in cystic fibrosis. Pediatr Pulmonol. 2016 Oct;51(S44):S71-S78. doi: 10.1002/ppul.23522.[Open Access]
- Stephen J. Molitor & Melissa R. Dvorsky (2018) Ethical Considerations for Assessing Parent Mental Health during Child Assessment Services, Ethics & Behavior, DOI: 10.1080/10508422.2018.1482746
- Talwalkar JS, Koff JL, Lee HB, Britto CJ, Mulenos AM, Georgiopoulos AM. Cystic Fibrosis Transmembrane Regulator Modulators: Implications for the Management of Depression and Anxiety in Cystic Fibrosis. Psychosomatics. 2017 Jul - Aug;58(4):343-354. doi: 10.1016/j.psym.2017.04.001 [Open Access]
- Verkleij, M., Georgiopoulos, A.M., Friedman, D. Development and evaluation of an internet-based cognitive behavioral therapy intervention for anxiety and depression in adults with cystic fibrosis (eHealth CF-CBT): An international collaboration doi.org/10.1016/j.invent.2021.100372 [Open Access]
- Verkleij M, de Winter D, Hurley MA, Abbott J. Implementing the International Committee on Mental Health in Cystic Fibrosis (ICMH) guidelines: Screening accuracy and referral-treatment pathways.J Cyst Fibros. 2018 Mar 1. pii: S1569-1993(18)30028-6. doi: 10.1016/j.jcf.2018.02.005. [Epub ahead of print]
- Verkleij M, Hofsteenge A., Quittner A.L. P247 Dutch translation of the gastrointestinal (GI) symptom tracker for people with cystic fibrosis (CF). Journal of cystic fibrosis: official journal of the European Cystic Fibrosis Society. Jun 2022
- Verkleij M., Noij L., Hashimoto S., Terheggen-Lagro S.. Mental health during COVID-19 in Dutch adolescents and adults with cystic fibrosis (CF) or primary ciliary dyskinesia (PCD) and their caregivers. September 2021. DOI:10.1183/13993003.congress-2021.OA188. Conference: ERS International Congress 2021 abstracts