Pre-Conference SHORT COURSE - Rotterdam, the netherlands

 

08 June 2022
09:00-17:00


Registration Fee: 150 € / 90 €
Programme

Registration

Discussing sex and intimacy with patients with CF is not 'opening a box of Pandora',
but 're-opening a box of pleasure!'

​​​​​​​
Facilitator: Paul Enzlin, Leuven, BE
Moderators: Urszula Borawska – Kowalczyk, Warsaw, PL; Eddie Landau, Tel Aviv, IL; Angelique Tijtgat, Brussels, BE; Dagmar Brocke, Utrecht, NL;  Annet Bongen, Utrecht, NL; Sejal Patel, Glasgow, UK

09:00 – 10:30 Sexuality and CF: A life time perspective.
10:30 – 11:00 COFFEE BREAK
11:00 – 12:30 Sexuality and CF: The broader perspective.
12:30 – 13:30 LUNCH BREAK 
13:30 – 15:00 Sexuality and CF: What can you do? 
15:00 – 15:30 COFFEE BREAK
15:30 – 17:00 Sexuality and CF: What do you have to do?

 
Course jointly organised by the ECFS Psychosocial Special Interest Group
and the ECFS Mental Health Working Group

“Special CF Lunchtime Series” 2021-2022

 

27 April 2022

12:00-13:00 CET
11:00-12:00 UK time

Trauma and Cystic Fibrosis

Target audience: All members of the multi-disciplinary team including doctors, nurses, dietitians, physiotherapists, psychologists, social workers etc. 

The ECFS Psychosocial Special Interest Group and the ECFS Mental Health Working Group are happy to announce the next webinar as part of the “Special CF Lunchtime Series” 
that will be held on Wednesday 27 April 2022 at 12:00-13:00 CET / 11:00-12:00 UK time

  • Trauma and Cystic Fibrosis

Programme:

- Welcome. Eddie Landau (IL)
- Trauma in chronic illness. Erik de Soir (BE)
- Trauma in CF: patient testimony. Tré LaRosa (US)
- EMDR Treatment of trauma. Annette Katscher-Peitz (GE)
- Trauma in CF: experiences from the clinic. Trudy Havermans (BE)
- Discussion, future challenges.

Free Registration

Past webinars (available on the ECFS education platform):
27 October 2021 - A basic introduction for allied health professionals into CFTR modulator treatments
15 December 2021 -
Pain in cystic fibrosis
23 February 2022 -  Past, present and future psychosocial care in CF

44th European Cystic Fibosis Conference  - 9-12 June 2021 #ECFS2021


During the ECFS Digital Conference, several sessions in the scientific programme covered topics related to mental health.
The recordings of the sessions will remain available on the digital platform until 12 September 2021 for all participants to the conference. 
They will also be uploaded in July on the ECFS Education platform and will be available for all ECFS members. 

  • Course – Power Threat Meaning Framework - available on the ECFS Education platform
  • ECFS Tomorrow Session – The changing ways of working and the impact on the CF MDT On Demand Video​​​​​​​
  • European Pyschosocial Interest Group (EPSIG): Different perspectives on resilience​​​​​​​ ​​​​​​​On Demand Video
  • Symposium 8 – Cystic fibrosis in a changing world On Demand Video
  • Workshop 11 - Anxiety and stress in cystic fibrosis through a challenging 2020 and novel interventions. On Demand Video
  • Symposium 12 - Impact of COVID-19 pandemic on mental health and self-management. On Demand Video
  • ECFS Tomorrow Session – Mental health treatment throughout the ages: Art, existential and psychodynamic therapies. On Demand Video 
  • Meet the Experts 2 - The psychological impact of CFTR modulators On Demand Video
  • Workshop 14 - Innovative nursing and psychosocial treatment delivery developed during COVID-19 restrictions - On Demand Video

Course: Power Threat Meaning Framework


 

 8 June 2021
13:00-16:00 CET


Registration Fee: 25 €
Free Registration for the Delegates registered to the ECFS 2021 Conference

More information

This course is an introduction to the Power Threat Meaning Framework (2018), a non-diagnostic approach to conceptualising distress in all of us developed by psychologists and experts by experience.
It will focus on the implications of the framework for responding to psychological distress in the context of physical healthcare, with opportunities to practice applying it to CF case examples.

Facilitator: Dr Samantha Cole - Consultant Clinical Psychologist and Deputy Head of Psychological Health Services at University Hospitals Bristol and Weston NHS Foundation Trust, UK. 
 
Course jointly organised by the ECFS Psychosocial Special Interest Group
and the ECFS Mental Health Working Group

Kindly note that the registration to the Power threat meaning Framework Course (Tuesday 8 June) is now closed. The course is fully subscribed.​​​​​​​


WOMEN’S HEALTH AND CYSTIC FIBROSIS


 

WEBINAR

20  May 2021
13:00-14:00 (CET)

The ECFS Psychosocial Special Interest Group and the ECFS Mental Health Working Group
will organise a webinar as part of the new “A Special CF Lunchtime Series”:  
​​​​​​​The session will take place on line on Thursday 20 May 2021 - 13:00-14:00 CET

FREE REGISTRATION

New challenges in CF care: Physiotherapist and pharmacist joining forces 


 

   

Session available on the 
ECFS Education platform
 

The ECFS Psychosocial Special Interest Group and the ECFS Mental Health Working Group organised a webinar as part of the new “A Special CF Lunchtime Series” on 22 April 2021

How Covid-19 changed the clinic: learning as we move along in uncertain times


 

   

Session available on the 
ECFS Education platform
 

The ECFS Psychosocial Special Interest Group and the ECFS Mental Health Working Group
organised a webinar as part of the new “A Special CF Lunchtime Series” on 18 March 2021.  

FOOD AND CF: FRIEND OR FOE?


 

   

Session available on the 
ECFS Education platform
 

The ECFS Psychosocial Special Interest Group and the ECFS Mental Health Working Group
organised a webinar as part of the new “A Special CF Lunchtime Series”:  
 on 18 February 2021 

CHALLENGES AND COMPLEXITIES OF CARE IN TRANSITION


 

   

Session available on the 
ECFS Education platform
 

The ECFS Psychosocial Special Interest Group and the ECFS Mental Health Working Group
organised a webinar as part of the new “A Special CF Lunchtime Series”:  on 10 December 2020.

Aim of the course:

After completing this webinar, participants will:

1.         have an overview of transition research, the importance of transition and typical obstacles to overcome in clinical practice.

2.         have learnt (an overview of) the important elements in a transition program that will support patient and team to optimize transitioning to adult care. Results of an international survey

3.         be aware of the challenges in preparing young adult patients for transfer to an adult clinic, deprived of specialized CF care.

    
Target audience: 


All members of the multi-disciplinary team including doctors, nurses, dietitians, physiotherapists, psychologists, social workers etc.  

Chair: Eddie Landau (IL) - Biography
Facilitators:  Trudy Havermans (BE), Su Madge (UK), Urszula Borawska - Kowalczyk (PL) - Biography

Practical therapeutic modalities to manage anxiety, depression, sleep and pain in routine CF care


 

On demand session

Introduction to Cognitive Behavioral Therapy in Cystic Fibrosis  

session available on the ECFS Education platform for ECFS members. 

More information

Johanna Gardecki (DE)
Lore Willem (BE)

Special webinar for any member of the CF team organised by
the ECFS Psychosocial Special Interest Group and the ECFS Mental Health Working Group

The session took place on-line on 22 September 2020 and the first presentation is available on line.


Aim of the course:

An introduction in the use of two therapy modalities in supporting people with CF to manage anxiety, depression, sleep and pain. 

The therapy modalities are Cognitive Behavioural Therapy (as recommended by the Mental Health Guidelines) and Systemic and Family focused Therapy.

After completing this webinar, participants will:
•    Be able to describe the clinical features of anxiety, depression, sleep and pain
•    Have learned a general CBT and Systemic and Family focused Therapy framework that can be used in clinical practice
•    Understand basic interventions for anxiety, depression, sleep and pain, based on cases from clinical practice

    
Target audience: 


All members of the multi-disciplinary team including doctors, nurses, dietitians, physiotherapists, psychologists, social workers etc. 


Faciliators:  Johanna Gardecki (DE) and Lore Willem (BE) - Biograpghy

Moderator: Eddie Landau (IL) - Biography​​​​​​​ 


We are looking for representatives!

The Mental Health Working group is a closed group, currently represented by 11 European Countries.

We are looking for representatives from other countries to join the core committee, please contact us.


News in your country

Interested to know more about the Mental Health screening and Care activities in you country?

Mental Health Survey for people with CF and their caregivers

Thank you to everyone who responded to the survey. 


Janice Abbott - Mental Health Care Award

Congratulations to Prof. Janice Abbott who received The Carolyn and C. Richard Mattingly Leadership in Mental Health Care Award
at the NACFC2019 in Nashville.

Photo: Left: Al Faro (Senior Director of Clinical Affairs) presented the award to Prof.Abbott; Right: Richard Mattingly (the award is named in honour of Richard, former Chief Operating Officer of the CF Foundation, and his late wife, Carolyn).

Mental Health Working Group

Annual General Meeting

Liverpool 07June 2019

Trudy Havermans and Janice Abbott ended their terms as coordinators of the Mental Health Working Group


Picture taken at the ECFS Annual General meeting in Liverpool with the ECFS President Isabelle Fajac

Mental Health screening in cystic fibrosis centres across Europe: Results from our survey

The article has been published in the Journal of Cystic Fibrosis,
A lay version summary is also available in the CF Research News . The aim of this initiative is to provide access to patients, parents, relatives, friends and caregivers of patients with CF to all scientific work published in the Journal of Cystic Fibrosis

Mental Health Working Group

Annual General Meeting

June 2018, Belgrade, Serbia