The European Cystic Fibrosis Society (ECFS) with its mission to improve survival and quality of life for people with CF strongly supports professional and educational activities that help improving the CF care in every European country. The ECFS patient registry output data show considerable discrepancy in clinical outcomes across Europe and to address this issue, the ECFS proposes the project of a long-term site-to-site partnership where one CF site guides, advises and helps another CF site to optimise the care for CF patients.
Call for Applications, ECFS European Twinning Project
Deadline: 30 September, 23.59 CET
Open to: CF sites interested in building up a partnership to improve clinical outcomes.
Description: The ECFS European Twinning Project is initiated by the ECFS Standards of Care project and supported by the European Cystic Fibrosis Society. The application for the ECFS European Twinning Project is open from September 1 to September 30, 2020.
Timeline for the first call:
- Call: 1 to 30 September 2020 23:59 CET
- Evaluation and selection: October 2020
- Results: 2 November 2020
- Launch of a six-month project initialization: November 2020
- Summary report: by 30 April 2021
- Results: June 2021
- 1st project extension: June 2021 to April 30, 2022
The European Cystic Fibrosis Society (ECFS) is opening a call for a new project which aims to build up a friendship and partnership between two CF sites: one of them being an expert CF centre with a long-term outstanding history in CF care ("mentor site"), and the other one ("mentee site") being a site which has an ambition to improve clinical outcomes and welcome the guidance, advice and collaboration of a well-established CF centre.
If you and your CF team have highlighted an area that could be optimised and you would like support and advice from another site, please consider applying for this project as a mentee site. If your site is an ECFS-CTN site and you and your CF team would like to become linked to a mentee site, please consider applying for this project as a mentor site.
The respective application forms are attached, please fill in the appropriate one and send it back to the ECFS central office, firstname.lastname@example.org, by September 30, 2020.
Applications will be reviewed by the Twinning Executive Board. The results will be announced on November 2, 2020. If your site is selected, the collaboration is expected to start from November 2020 onwards with an onsite visit from the mentor site to the mentee site within the first 6 months, the cost of the visit being funded by the ECFS (up to 2,000 euros). The visit will include a CF physician and possibly a CF nurse and/or another CF team members. The aim of the visit will be to establish a partnership, to get an overview of the mentee site, to discuss unmet needs and opportunities. A summary report after the first 6 months with a clear action plan will serve as basis for the continuation of the funding from ECFS (up to 4,000 euros per year). Follow-up activities can for instance include the training of team members from the mentee site, revision of clinical practices, meetings with hospital authorities, but the concrete plan of how to collaborate and foster the partnership on a long term basis will be left free to the paired sites.
The ECFS is committed to support this long-term collaboration and to cover project-related travel expenses (flight, accommodation). Please see the Terms of Reference for further information.
I hope you find this project valuable for your professional work,
on behalf of the ECFS - Standards of Care Group
AIM AND DESCRIPTION OF THE PROJECT
The aim of the project is to address the challenge of clinical outcome discrepancy across Europe through the twinning of two sites. The ambition is to build up a long-term collaborative partnership between Mentor and Mentee sites and address specific needs of the mentee site to optimise patients' clinical outcomes.
The Mentor site will be a well-established CF centre with state-of-the-art expertise in CF care. In the initial phase of the project, mentor sites will be selected amongst the ECFS CTN sites as they have already been assessed by ECFS.
The Mentee site can be any CF care providing establishment which expresses an interest in participating in the Twinning project and is open to the guidance offered by the Mentor site.
It is expected of the twinning pair to organize at least one visit to the mentee site within the first 6 months of the project. The visit will include a CF physician and possibly a CF nurse and/or other CF team members. The aim of the visit will be to establish a partnership, to get an overview of the mentee site, to discuss unmet needs and opportunities. A summary report from this visit with a clear action plan is to be drafted by both sites and will serve as basis for the continuation of the funding.
The twinning pair will be initially funded for six months.
Upon the review of the summary report, the grant and financial support can be extended by one year. The pair has the option to submit summary reports every year and thus, to ask for yearly funding repeatedly. If approved by the ECFS Board, this will entitle the participants to get longer-term funding.
FUNDING SUPPORTUp to Euro 2,000 in the first six months of the project, then up to 4,000 per year, that is available for the costs of travel and accommodation for the purpose of site visits (both of Mentee and Mentor sites).
The mentor and mentee application forms (see associated documents) are to be filled out and sent back to this address: email@example.com by the deadline advertised.