Updated 12 June 2024
Standards for the care of people with cystic fibrosis (CF): A timely and accurate diagnosis
Carlo Castellani, Nicholas J Simmonds, Jürg Barben, Charlotte Addy, Amanda Bevan, Pierre-Regis Burgel, Pavel Drevinek, Silvia Gartner, Andrea Gramegna , Elise Lammertyn, Eddie (Edwina) C. Landau, Peter G. Middleton, Barry J. Plant, Alan R. Smyth, Silke van Koningsbruggen-Rietschel, Emmanuelle Girodon, Nataliya Kashirskaya, Anne Munck, Lutz Naehrlich , Karen Raraigh, Isabelle Sermet-Gaudelus, Olaf Sommerburg, Kevin W. Southern
J Cyst Fibros. 2023; 22:963–968
Open Access Article
Standards for the care of people with cystic fibrosis; establishing and maintaining health
Kevin W Southern, Charlotte Addy, Scott C Bell, Amanda Bevan , Urzula Borawska, Catherine Brown, Pierre-Regis Burgel, Brenda Button, Carlo Castellani, Audrey Chansard, Mark A Chilvers, Gwyneth Davies, Jane C Davies, Kris De Boeck, Dimitri Declercq, Michael Doumit, Pavel Drevinek, Isabelle Fajac, Silvia Gartner, Anna M Georgiopoulos, Sandra Gursli, Andrea Gramegna, Carina ME Hansen, Martin J Hug, Elise Lammertyn, Edwina (Eddie) C. Landau, Ross Langley, Nicole Mayer-Hamblett, Anna Middleton, Peter G Middleton, Monika Mielus, Lisa Morrison, Anne Munck, Barry Plant, Maarten Ploeger, Dominique Pougheon Bertrand, Tacjana Pressler, Bradley S Quon, Thomas Radtke, Zoe L Saynor, Ilan Shufer, Alan R Smyth, Chris Smith, Silke van Koningsbruggen-Rietschel
J Cyst Fibros. 2024; 23: 12–28
Open Access Article
Standards for the care of people with cystic fibrosis (CF); recognising and addressing CF health issues
Pierre-Regis Burgel, Kevin W Southern , Charlotte Addy, Alberto Battezzati, Claire Berry, Jean-Philippe Bouchara, Edwin Brokaar, Whitney Brown, Pilar Azevedo, Isabelle Durieu, Miquel Ekkelenkamp, Felicity Finlayson, Julian Forton, Johanna Gardecki, Pavla Hodkova, Gina Hong, Jacqueline Lowdon, Su Madge, Clemence Martin , Edward McKone, Anne Munck, Chee Y Ooi, Lucy Perrem, Amanda Piper , Andrew Prayle, Felix Ratjen, Margaret Rosenfeld, Don B Sanders, Carsten Schwarz, Giovanni Taccetti, Claire Wainwright, Natalie E West, Michael Wilschanski, Amanda Bevan, Carlo Castellani, Pavel Drevinek, Silvia Gartner, Andrea Gramegna, Elise Lammertyn, Eddie (Edwina) C Landau, Barry J Plant, Alan R Smyth, Silke van Koningsbruggen-Rietschel, Peter G. Middleton
J Cyst Fibros. 2024; 23: 187–202
Standards for the care of people with cystic fibrosis (CF); Planning for a longer life
Andrea Gramegna, Charlotte Addy, Lorna Allen, Egil Bakkeheim, Catherine Brown, Thomas Daniels, Gwyneth Davies, Jane C. Davies, Ken De Marie, Damian Downey, Imogen Felton, Sylvia Hafkemeyer, Samia Hamouda, Victoria Kendall, Ulrika Lindberg, Milan Macek, Sarah Mayell, Oren Pearlsman, Michael S. Schechter, Lidia Salvatori, Dorota Sands, Carsten Schwarz, Michal Shteinberg, Julia Taylor, Jennifer L. Taylor-Cousar, David Taylor-Robinson, Bethan Watkins, Marieke Verkleij, Amanda Bevan, Carlo Castellani, Pavel Drevinek, Silvia Gartner, Elise Lammertyn, Eddie (Edwina) C. Landau, Peter G. Middleton, Barry J. Plant, Alan R. Smyth, Silke van Koningsbruggen-Rietschel, Pierre-Regis Burgel, Kevin W. Southern
J Cyst Fibros. 2024
Open Access Article
ECFS best practice guidelines: the 2018 revision.
Castellani C, Duff AJA, Bell SC, Heijerman HGM, Munck A, Ratjen F, Sermet-Gaudelus I, Southern KW, Barben J, Flume PA, Hodková P, Kashirskaya N, Kirszenbaum MN, Madge S, Oxley H, Plant B, Schwarzenberg SJ, Smyth AR, Taccetti G, Wagner TOF, Wolfe SP, Drevinek P.
J Cyst Fibros. 2018 Mar;17(2):153-178
English version (open access)
(The translation of the ECFS Standards of Care documents was organised by Prof. Nataliya Kashirskaya with the help of the charitable foundation ‘Ostrova’ )
Standards of Care for Cystic Fibrosis ten years later
Carlo Castellani , Steven Conway, Alan R. Smyth, Martin Stern, J. Stuart Elborn
Journal of Cystic Fibrosis 13 Supl 1: S1-S2
English version
Russian version
(The translation of the ECFS Standards of Care documents was organised by Prof. Nataliya Kashirskaya with the help of the charitable foundation ‘Ostrova’ )
European Cystic Fibrosis Society Standards of Care: Framework for the Cystic Fibrosis Centre
Steven Conway , Ian M. Balfour-Lynn, Karleen De Rijcke, Pavel Drevinek, Juliet Foweraker, Trudy Havermans, Harry Heijerman, Louise Lannefors, Anders Lindblad, Milan Macek, Sue Madge, Maeve Moran, Lisa Morrison, Alison Morton , Jacquelien Noordhoek, Dorota Sands, Anneke Vertommen, Daniel Peckham
Journal of Cystic Fibrosis 13 Supl 1: S3-S22
English version
Russian version
(The translation of the ECFS Standards of Care documents was organised by Prof. Nataliya Kashirskaya with the help of the charitable foundation ‘Ostrova’ )
European Cystic Fibrosis Society Standards of Care: Best Practice guidelines
Alan R. Smyth, Scott C. Bell, Snezana Bojcin, Mandy Bryon, Alistair Duff, Patrick Flume, Nataliya Kashirskaya, Anne Munck, Felix Ratjen, Sarah Jane Schwarzenberg, Isabelle Sermet-Gaudelus, Kevin W. Southern, Giovanni Taccetti, Gerald Ullrich, Sue Wolfe
Journal of Cystic Fibrosis 13 Supl 1: S23-S42
English version
Russian version
(The translation of the ECFS Standards of Care documents was organised by Prof. Nataliya Kashirskaya with the help of the charitable foundation ‘Ostrova’ )
European Cystic Fibrosis Society Standards of Care: Quality Management in cystic fibrosis
Martin Stern, Dominique Pougheon Bertrand, Elisabetta Bignamini, Mary Corey, Birgit Dembski, Christopher H. Goss, Tanja Pressler, Gilles Rault, Laura Viviani, J. Stuart Elborn, Carlo Castellani
Journal of Cystic Fibrosis 13 Supl 1: S43-S59
English version
Russian version
(The translation of the ECFS Standards of Care documents was organised by Prof. Nataliya Kashirskaya with the help of the charitable foundation ‘Ostrova’ )
Treatment of lung infection in patients with cystic fibrosis:Current and future strategies
Döring G, Flume P, Heijerman H, Elborn JS for the consensus study group
Journal of Cystic Fibrosis 2012; 11 : 461-79
Available as a Free download - click here to access (pdf).
Standards of care for patients with cystic fibrosis: A European consensus
Kerem E, Conway S, Elborn S, Heijerman H for the Consensus Committee
Journal of Cystic Fibrosis 2005; 4: 7-26
Available as a Free download - Click here to access (pdf)