Updated 06 October 2024


Standards for the care of people with cystic fibrosis (CF): A timely and accurate diagnosis 

Carlo Castellani, Nicholas J Simmonds, Jürg Barben, Charlotte Addy, Amanda Bevan, Pierre-Regis Burgel, Pavel Drevinek, Silvia Gartner, Andrea Gramegna, Elise Lammertyn, Eddie (Edwina) C. Landau, Peter G. Middleton, Barry J. Plant, Alan R. Smyth, Silke van Koningsbruggen-Rietschel, Emmanuelle Girodon, Nataliya Kashirskaya, Anne Munck, Lutz Naehrlich , Karen Raraigh, Isabelle Sermet-Gaudelus, Olaf Sommerburg, Kevin W. Southern
Journal of Cystic Fibrosis 2023; 22:963–968
Open Access Article

Standards for the care of people with cystic fibrosis; establishing and maintaining health

Kevin W Southern, Charlotte Addy, Scott C Bell, Amanda Bevan , Urzula Borawska, Catherine Brown, Pierre-Regis Burgel, Brenda Button, Carlo Castellani, Audrey Chansard, Mark A Chilvers, Gwyneth Davies, Jane C Davies, Kris De Boeck, Dimitri Declercq, Michael Doumit, Pavel Drevinek, Isabelle Fajac, Silvia Gartner, Anna M Georgiopoulos, Sandra Gursli, Andrea Gramegna, Carina ME Hansen, Martin J Hug, Elise Lammertyn, Edwina (Eddie) C. Landau, Ross Langley, Nicole Mayer-Hamblett, Anna Middleton, Peter G Middleton, Monika Mielus, Lisa Morrison, Anne Munck, Barry Plant, Maarten Ploeger, Dominique Pougheon Bertrand, Tacjana Pressler, Bradley S Quon, Thomas Radtke, Zoe L Saynor, Ilan Shufer, Alan R Smyth, Chris Smith, Silke van Koningsbruggen-Rietschel
Journal of Cystic Fibrosis 2024; 23: 12–28 doi: 10.1016/j.jcf.2023.12.002. Epub 2023 Dec 21. PMID:38129255.
Open Access Article 

Standards for the care of people with cystic fibrosis (CF); recognising and addressing CF health issues

Pierre-Regis Burgel, Kevin W Southern , Charlotte Addy, Alberto Battezzati, Claire Berry, Jean-Philippe Bouchara, Edwin Brokaar, Whitney Brown, Pilar Azevedo, Isabelle Durieu, Miquel Ekkelenkamp, Felicity Finlayson, Julian Forton, Johanna Gardecki, Pavla Hodkova, Gina Hong, Jacqueline Lowdon, Su Madge, Clemence Martin , Edward McKone, Anne Munck, Chee Y Ooi, Lucy Perrem, Amanda Piper , Andrew Prayle, Felix Ratjen, Margaret Rosenfeld, Don B Sanders, Carsten Schwarz, Giovanni Taccetti, Claire Wainwright, Natalie E West, Michael Wilschanski, Amanda Bevan, Carlo Castellani, Pavel Drevinek, Silvia Gartner, Andrea Gramegna, Elise Lammertyn, Eddie (Edwina) C Landau, Barry J Plant, Alan R Smyth, Silke van Koningsbruggen-Rietschel, Peter G. Middleton
Journal of Cystic Fibrosis 2024; 23: 187–202

Open Access Article

Standards for the care of people with cystic fibrosis (CF); Planning for a longer life

Andrea Gramegna, Charlotte Addy, Lorna Allen, Egil Bakkeheim, Catherine Brown, Thomas Daniels, Gwyneth Davies, Jane C. Davies, Ken De Marie, Damian Downey, Imogen Felton, Sylvia Hafkemeyer, Samia Hamouda, Victoria Kendall, Ulrika Lindberg, Milan Macek, Sarah Mayell, Oren Pearlsman, Michael S. Schechter, Lidia Salvatori, Dorota Sands, Carsten Schwarz, Michal Shteinberg, Julia Taylor, Jennifer L. Taylor-Cousar, David Taylor-Robinson, Bethan Watkins, Marieke Verkleij, Amanda Bevan, Carlo Castellani, Pavel Drevinek, Silvia Gartner, Elise Lammertyn, Eddie (Edwina) C. Landau, Peter G. Middleton, Barry J. Plant, Alan R. Smyth, Silke van Koningsbruggen-Rietschel, Pierre-Regis Burgel, Kevin W. Southern
Journal of Cystic Fibrosis 2024
Open Access Article

ECFS best practice guidelines: the 2018 revision

Castellani C, Duff AJA, Bell SC, Heijerman HGM, Munck A, Ratjen F, Sermet-Gaudelus I, Southern KW, Barben J, Flume PA, Hodková P, Kashirskaya N, Kirszenbaum MN, Madge S, Oxley H, Plant B, Schwarzenberg SJ, Smyth AR, Taccetti G, Wagner TOF, Wolfe SP, Drevinek P.
Journal of Cystic Fibrosis 2018 Mar;17(2):153-178
English version (open access) 

Russian version

(The translation of the ECFS Standards of Care documents was organised by Prof. Nataliya Kashirskaya with the help of the charitable foundation ‘Ostrova’)

Standards of Care for Cystic Fibrosis ten years later

Carlo Castellani , Steven Conway, Alan R. Smyth, Martin Stern, J. Stuart Elborn 
Journal of Cystic Fibrosis 13 Supl 1: S1-S2
English version
Russian version 
(The translation of the ECFS Standards of Care documents was organised by Prof. Nataliya Kashirskaya with the help of the charitable foundation ‘Ostrova’)

European Cystic Fibrosis Society Standards of Care: Framework for the Cystic Fibrosis Centre

Steven Conway , Ian M. Balfour-Lynn, Karleen De Rijcke, Pavel Drevinek, Juliet Foweraker, Trudy Havermans, Harry Heijerman, Louise Lannefors, Anders Lindblad, Milan Macek, Sue Madge, Maeve Moran, Lisa Morrison, Alison Morton , Jacquelien Noordhoek, Dorota Sands, Anneke Vertommen, Daniel Peckham 
Journal of Cystic Fibrosis 13 Supl 1: S3-S22
English version
Russian version 
(The translation of the ECFS Standards of Care documents was organised by Prof. Nataliya Kashirskaya with the help of  the charitable foundation ‘Ostrova’ )

European Cystic Fibrosis Society Standards of Care: Best Practice guidelines

Alan R. Smyth, Scott C. Bell, Snezana Bojcin, Mandy Bryon, Alistair Duff, Patrick Flume, Nataliya Kashirskaya, Anne Munck, Felix Ratjen, Sarah Jane Schwarzenberg, Isabelle Sermet-Gaudelus, Kevin W. Southern, Giovanni Taccetti, Gerald Ullrich, Sue Wolfe 
Journal of Cystic Fibrosis 13 Supl 1:  S23-S42
English version
Russian version 
(The translation of the ECFS Standards of Care documents was organised by Prof. Nataliya Kashirskaya with the help of  the charitable foundation ‘Ostrova’ )

European Cystic Fibrosis Society Standards of Care: Quality Management in cystic fibrosis

Martin Stern, Dominique Pougheon Bertrand, Elisabetta Bignamini, Mary Corey, Birgit Dembski, Christopher H. Goss, Tanja Pressler, Gilles Rault, Laura Viviani, J. Stuart Elborn, Carlo Castellani 
Journal of Cystic Fibrosis 13 Supl 1:  S43-S59
English version
Russian version 
(The translation of the ECFS Standards of Care documents was organised by Prof. Nataliya Kashirskaya with the help of  the charitable foundation ‘Ostrova’ )

Treatment of lung infection in patients with cystic fibrosis:Current and future strategies

Döring G, Flume P, Heijerman H, Elborn JS for the consensus study group
Journal of Cystic Fibrosis 2012; 11 : 461-79 
Available as a free download - click here to access (pdf).

Standards of care for patients with cystic fibrosis: A European consensus

Kerem E, Conway S, Elborn S, Heijerman H for the Consensus Committee
Journal of Cystic Fibrosis 2005; 4: 7-26
Available as a Free download - Click here to access (pdf)