With the CF Research News, we aim to bridge the gap between people with CF and the researchers investigating CF and how best to treat those with the condition.
We want to provide access to patients, parents, relatives, friends and caregivers of patients with CF to all scientific work mainly published in the Journal of Cystic Fibrosis (JCF).

All PDF files published hereunder are lay version summaries of work published in the JCF.

May 2022

Title: How does chronic rhinosinusitis impact quality of life of cystic fibrosis patients?
References
J Cyst Fibros. 2022 May 31;S1569-1993(22)00146-1. doi: 10.1016/j.jcf.2022.05.008.
 
Theme
Care of patients with CF, Pulmonology

May 2022

Title: Long-term health effects of real-world use of ivacaftor by people with cystic fibrosis who have non-G551D-CFTR gating mutations
References
J Cyst Fibros. 2022 May 22;S1569-1993(22)00141-2. doi: 10.1016/j.jcf.2022.05.007.
Theme
Care of patients with CF, Pulmonology

May 2022

Title: Evaluation of a biochemical cystic fibrosis newborn screening protocol using IRT and PAP
References
J Cyst Fibros. 2022 May;21(3):422-433. doi: 10.1016/j.jcf.2021.10.007. Epub 2021 Nov 9.
 
Theme
False-positives, Newborn screening

May 2022

Title: Adjusting the dose of triple therapy (Elexacaftor/Tezacaftor/Ivacaftor) to reduce mental health side effects
References
J Cyst Fibros. 2022 May 15;S1569-1993(22)00111-4. doi: 10.1016/j.jcf.2022.05.001. Online ahead of print.
 
Theme
Care of patients with CF, Psychosocial, Pulmonology

May 2022

Title: Patients with F508del/5T;TG12 CFTR genotype
References
J Cyst Fibros. 2022 May 4;S1569-1993(22)00109-6. doi: 10.1016/j.jcf.2022.04.020.
Theme
Care of patients with CF, Diagnosis/Screening