With the CF Research News, we aim to bridge the gap between people with CF and the researchers investigating CF and how best to treat those with the condition.
We want to provide access to patients, parents, relatives, friends and caregivers of patients with CF to all scientific work mainly published in the Journal of Cystic Fibrosis (JCF).

All PDF files published hereunder are lay version summaries of work published in the JCF.

December 2019

Title: Rapid lung function decline in adults with early-stage cystic fibrosis lung disease
Authors
Elliott C Dasenbrook, Aliza K Fink, Michael S Schechter, Don B Sanders, Stefanie J Millar, David J Pasta, Nicole Mayer-Hamblett
References
J Cyst Fibros  2019 Dec 20 -  DOI: 10.1016/j.jcf.2019.12.005
Keywords
Adult, cohort studies; respiratory function tests, Risk factors
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Scientific Abstract
Title: Utilizing centralized biorepository samples for biomarkers of cystic fibrosis lung disease severity
Authors
Scott D Sagel, Brandie D Wagner, Assem Ziady, Tom Kelley, John P Clancy, Monica Narvaez-Rivas, Joseph Pilewski, Elizabeth Joseloff, Wei Sha, Leila Zelnick, Kenneth D R Setchell, Sonya L Heltshe, Marianne S Muhlebach
References
J Cyst Fibros  2019 Dec 20 -  DOI: 10.1016/j.jcf.2019.12.007
Keywords
Biomarkers, Lipids, Metabolomics, Proteins
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Scientific Abstract

December 2019

Title: Prevalence of unmet palliative care needs in adults with cystic fibrosis
Authors
Elizabeth T Trandel, Joseph M Pilewski, Elisabeth P Dellon, Kwonho Jeong, Jonathan G Yabes, Laura T Moreines, Robert M Arnold, Zachariah P Hoydich, Dio Kavalieratos
References
J Cyst Fibros. 2019 Dec 18;S1569-1993(19)30978-6. doi: 10.1016/j.jcf.2019.11.010
Keywords
Needs assessment, Palliative care, Patient-reported outcomes, Quality of life
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Scientific Abstract

December 2019

Title: Structured Surveillance of Achromobacter, Pandoraea and Ralstonia Species From Patients in England With Cystic Fibrosis
Authors
Amy Coward, Dervla T D Kenna, Neil Woodford, Jane F Turton, and members of the UK CF Surveillance Working Group., The UK CF Surveillance Working Group comprised
References
J Cyst Fibros 2019 Dec 17 -  DOI: 10.1016/j.jcf.2019.11.005
Keywords
Achromobacter, Pandoraea, Ralstonia, Survey
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Scientific Abstract

December 2019

Title: Lumacaftor/ivacaftor reduces exacerbations in adults homozygous for Phe508del mutation with severe lung disease
Authors
Koliarne Tong, Daniel Barker, Megan France, Lucy Burr, Hugh Greville, Simone Visser, Peter Middleton, Claire Wainwright, Douglas Dorahy, Peter Wark
References
J Cyst Fibros. 2019 Dec 15;S1569-1993(19)30985-3. doi: 10.1016/j.jcf.2019.12.006.
Keywords
adverse events, CFTR modulator, Exacerbations, Ivacaftor, Lumacaftor, Lung function
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Scientific Abstract