With the CF Research News, we aim to bridge the gap between people with CF and the researchers investigating CF and how best to treat those with the condition.
We want to provide access to patients, parents, relatives, friends and caregivers of patients with CF to all scientific work mainly published in the Journal of Cystic Fibrosis (JCF).

All PDF files published hereunder are lay version summaries of work published in the JCF.

May 2023

Title: People with CF who take part in clinical trials do not represent the general CF population well
Authors
Rebecca Dobra, Sophie Pinnell, Andy Jones, Susan Madge, Nicholas J Simmonds, Jane C Davies
References
Theme
Clinical Trials
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May 2023

Title: How to interpret changes in home spirometry when people are feeling well?
Authors
Christina S Thornton, Amalia S Magaret, Lisa A Carmody, Linda M Kalikin, Richard H Simon, John J LiPuma, Lindsay J Caverly
References
J Cyst Fibros. 2023 May 25;S1569-1993(23)00141-8. doi: 10.1016/j.jcf.2023.05.011.
Keywords
Baseline health, Exacerbation, Home spirometry, Lung function
Theme
Care of patients with CF, Pulmonology
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Scientific Abstract
Title: Male female differences after elexacaftor/tezacaftor/ivacaftor
Authors
Angela Wang, MinJae Lee, Ashley Keller, Sarah Jian, Karen Lowe, James D Finklea, Raksha Jain
References
J Cyst Fibros. 2023 May 25;S1569-1993(23)00139-X. doi: 10.1016/j.jcf.2023.05.009.
Keywords
Cystic fibrosis transmembrane conductance regulators, Elexacaftor/tezacaftor/ivacaftor, Estrogen, Sex
Theme
Epidemiology/Models of care, Pulmonology
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Scientific Abstract

May 2023

Title: Simplified method for cystic fibrosis sweat testing using microneedle patches is effective in human study.
Authors
Jonathan Yuxuan Chen, Song Li, George L. Silva, Joshua D. Chandler, Mark R. Prausnitz, Lokesh Guglani
References
 Cyst Fibros. 2023 May 24;S1569-1993(23)00120-0. doi: 10.1016/j.jcf.2023.04.014.
Keywords
Iontophoresis, Microneedle patch, Pilocarpine, Sweat induction, Sweat test
Theme
Diagnosis/Screening
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Scientific Abstract

May 2023

Title: Nutritional Considerations for a New Era: A CF Foundation Position Paper
Authors
Amanda Leonard, Julianna Bailey, Amanda Bruce, Shijing Jia, Adam Stein, Judith Fulton, Meagan Helmick, Marina Litvin, Alpa Patel, Kate E Powers, Elizabeth Reid, Senthilkumar Sankararaman, Cristen Clemm, Kim Reno, Sarah E Hempstead, Emily DiMango
References
J Cyst Fibros. 2023 May 23;S1569-1993(23)00140-6. doi: 10.1016/j.jcf.2023.05.010.
 
Keywords
Eating behavior, Food Insecurity, Nutrition, Pancreatic enzymes, Sodium, Weight management
Theme
Care of patients with CF, Exercise, Nutrition/Gastroenterology
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Scientific Abstract

May 2023

Title: People with CF face high costs of CF care which have implications for debt, access to health care, adequate food, and other necessities of life.
Authors
Semret Seyoum, Marsha Regenstein, Marie Benoit, Olivia Dieni, Anne Willis, Kim Reno, Cristen Clemm
References
J Cyst Fibros. 2023 May;22(3):471-477. doi: 10.1016/j.jcf.2023.01.002. Epub 2023 Jan 27.
Keywords
Access, Cost, Debt, Financial burden, Food Insecurity, Insurance
Theme
Care of patients with CF, Psychosocial
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Scientific Abstract

May 2023

Title: Understanding sleep in young adults with cystic fibrosis (CF) taking elexacaftor/tezacaftor/ivacaftor (ETI)
Authors
Lisa J Meltzer, Jane E Gross
References
J Cyst Fibros. 2023 May 18;S1569-1993(23)00135-2. doi: 10.1016/j.jcf.2023.05.005.
Theme
Psychosocial
Scientific Abstract
Title: Understanding sleep in young adults with cystic fibrosis (CF) taking elexacaftor/tezacaftor/ivacaftor (ETI)
Authors
Lisa J Meltzer, Jane E Gross
References
J Cyst Fibros. 2023 May 18;S1569-1993(23)00135-2. doi: 10.1016/j.jcf.2023.05.005.
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Scientific Abstract

May 2023

Title: Eradication of Nontuberculous Mycobacteria in People with Cystic Fibrosis Treated with Elexacaftor/Tezacaftor/Ivacaftor
Authors
Vered Wiesel, Micha Aviram, Meir Mei-Zahav, Miri Dotan, Dario Prais, Malena Cohen-Cymberknoh, Michal Gur, Ronen Bar-Yoseph, Galit Livnat, Aviv Goldbart, Guy Hazan, Itai Hazan, Inbal Golan-Tripto
References
J Cyst Fibros. 2023 May 10;S1569-1993(23)00133-9. doi: 10.1016/j.jcf.2023.05.003.
Keywords
Mycobacterium abscessus complex, Mycobacterium abscessus subsp. abscessus, Trikafta, Elexacaftor/tezacaftor/ivacaftor, nontuberculous mycobacteria
Theme
Care of patients with CF, Microbiology
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Scientific Abstract

May 2023

Title: Use of Cystic Fibrosis inhaled medication after Elexacaftor/Tezacaftor/Ivacaftor in comparison to before
Authors
Katerina Manika, Filia Diamantea, Anna Tsakona, Alexandros Kalokyris, Athina Sopiadou, Serafeim-Chrysovalantis Kotoulas, Maria Sionidou, Sirmo-Stiliani Kirvasili, Marija Hadji-Mitrova, Eleni Papadaki, Elisavet-Anna Chrysochoou, Elpis Hatziagorou
References
J Cyst Fibros. 2023 May 9;S1569-1993(23)00131-5. doi: 10.1016/j.jcf.2023.05.001.
 
Keywords
CFTR modulators, Inhaled medications, Medication Possession Ratio, multi-center study, Use of treatment
Theme
Care of patients with CF, Epidemiology/Models of care, Pulmonology
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Scientific Abstract

May 2023

Title: Understanding Joint Problems in Cystic Fibrosis: Defining Stages of Arthritis with Ultrasound and Clinical Assessment
Authors
F Holz, E Can, C Grehn, J Klotsche, B Materne, J Kruppa, T Kallinich, C Schwarz
References
J Cyst Fibros. 2023 May 5;S1569-1993(23)00116-9. doi: 10.1016/j.jcf.2023.04.011.
Theme
Care of patients with CF, Imaging
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Scientific Abstract

May 2023

Title: Understanding the relationship between secondhand smoke exposure and lung function in children with cystic fibrosis
Authors
Jack Reifenberg, Emrah Gecili, Teresa Pestian, Eleni-Rosalina Andrinopoulou, Patrick H Ryan, Cole Brokamp, Joseph M Collaco, Rhonda D Szczesniak
References
J Cyst Fibros. 2023 May 2;S1569-1993(23)00126-1. doi: 10.1016/j.jcf.2023.04.020.
Keywords
Environmental health, FEV1, Lung function, Pediatric, Pulmonary function testing, Secondhand smoke exposure, Tobacco
Theme
Care of patients with CF, Pulmonology
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Scientific Abstract
Title: Changes in blood levels of vitamins A, D and E after starting Kaftrio
Authors
L Schembri, S Warraich, S Bentley, S B Carr, I M Balfour-Lynn
References
J Cyst Fibros. 2023 May 2;S1569-1993(23)00125-X. doi: 10.1016/j.jcf.2023.04.019.
Keywords
CFTR modulators, Vitamins
Theme
Care of patients with CF, Nutrition/Gastroenterology
PDF icon CF Research News Article
Scientific Abstract