With the CF Research News, we aim to bridge the gap between people with CF and the researchers investigating CF and how best to treat those with the condition.
We want to provide access to patients, parents, relatives, friends and caregivers of patients with CF to all scientific work mainly published in the Journal of Cystic Fibrosis (JCF).

All PDF files published hereunder are lay version summaries of work published in the JCF.

January 2022

Title: Use of swelling tests in mini-guts to help determine eligibility for treatment with Trikafta for a CF patient with a rare mutation
References
J Cyst Fibros. 2022 Jan 30;S1569-1993(22)00028-5. doi: 10.1016/j.jcf.2022.01.008.
Theme
Care of patients with CF

January 2022

Title: Measuring how the drug elexacaftor/tezacaftor/ivacaftor affects the muscles of breathing, using dynamic chest radiography
References
J Cyst Fibros. 2022 Jan 28;S1569-1993(22)00027-3. doi: 10.1016/j.jcf.2022.01.007.
Theme
Care of patients with CF, Imaging, Pulmonology

January 2022

Title: Patient and program characteristics which influence screening for bone mineral disease in people with Cystic Fibrosis
References
J Cyst Fibros. 2022 Jan 24;S1569-1993(22)00029-7. doi: 10.1016/j.jcf.2022.01.011.
Theme
Bone health, Care of patients with CF, Diagnosis/Screening
Title: Results from a clinical trial of the natural therapeutic alginate OligoG against Burkholderia lung infection in people with cystic fibrosis.
References
J Cyst Fibros. 2022 Jan 24;S1569-1993(22)00024-8. doi: 10.1016/j.jcf.2022.01.003.
Theme
Clinical Trials, Lung Disease and Infection, Microbiology

January 2022

Title: Using safe sampling and DNA tests to diagnose lung infections in children with cystic fibrosis
References
J Cyst Fibros. 2022 Jan 22;S1569-1993(22)00023-6. doi: 10.1016/j.jcf.2022.01.006.
Theme
Care of patients with CF, Lung Disease and Infection, Microbiology

January 2022

Title: Description of children who changed diagnosis from indeterminate newborn screening to cystic fibrosis
References
J Cyst Fibros. 2022 Jan;21(1):e23-e27. doi: 10.1016/j.jcf.2021.06.012. 
Theme
Newborn screening
Title: Comparing four different definitions of chronic pseudomonas infection in people with cystic fibrosis
References
J Cyst Fibros. 2022 Jan;21(1):40-44. doi: 10.1016/j.jcf.2021.07.020. Epub 2021 Aug 13.
Theme
Epidemiology/Models of care, Lung Disease and Infection, Microbiology

January 2022

Title: Guidance for Sweat Testing in Europe
References
J Cyst Fibros. 2022 Jan 19;S1569-1993(22)00025-X. doi: 10.1016/j.jcf.2022.01.004.
Theme
Diagnosis/Screening

January 2022

Title: Wrinkling of the palms on exposure to water in cystic fibrosis patients treated with ivacaftor
References
J Cyst Fibros. 2022 Jan 18;S1569-1993(22)00026-1. doi: 10.1016/j.jcf.2022.01.005.
Theme
CFTR/Basic Science

January 2022

Title: Exploring health care provider attitudes and perspectives related to men’s sexual and reproductive health in cystic fibrosis
References
J Cyst Fibros. 2022 Jan 5;S1569-1993(21)02176-7. doi: 10.1016/j.jcf.2021.12.016.
Theme
Care of patients with CF, Psychosocial

January 2022

Title: Neutrophils do not produce more oxidants when stimulated to fight infections in cystic fibrosis
References
J Cyst Fibros. 2022 Jan 3;S1569-1993(21)02175-5. doi: 10.1016/j.jcf.2021.12.015.
Theme
Lung Disease and Infection