With the CF Research News, we aim to bridge the gap between people with CF and the researchers investigating CF and how best to treat those with the condition.
We want to provide access to patients, parents, relatives, friends and caregivers of patients with CF to all scientific work mainly published in the Journal of Cystic Fibrosis (JCF).

All PDF files published hereunder are lay version summaries of work published in the JCF.

April 2021

Title: A study to understand which factors are important to people with Cystic Fibrosis when deciding whether to take part in clinical trials
References
J Cyst Fibros. 2021 Apr 21;S1569-1993(21)00103-X. doi: 10.1016/j.jcf.2021.03.021.

April 2021

Title: Meconium Ileus due to GUCY2C gene mutations in three unrelated South Indian families
References
J Cyst Fibros. 2021 Apr 18;S1569-1993(21)00105-3. doi: 10.1016/j.jcf.2021.03.023.

April 2021

Title: Incidence of SARS-CoV-2 in people with cystic fibrosis in Europe between February and June 2020.
References
Journal of Cystic Fibrosis 2021; April 17.  DOI: https://doi.org/10.1016/j.jcf.2021.03.017
 

April 2021

Title: Optimising equity of access: how should we allocate slots to the most competitive trials in Cystic Fibrosis (CF)?
References
J Cyst Fibros. 2021 Apr 16;S1569-1993(21)00109-0. doi: 10.1016/j.jcf.2021.03.027. 

April 2021

Title: Trends in the use of healthcare resources over time and the associated costs for people with cystic fibrosis?
References
J Cyst Fibros. 2021 Apr 14;S1569-1993(21)00107-7. doi: 10.1016/j.jcf.2021.03.025.

April 2021

Title: Infant with cystic fibrosis has normal pancreas function and was missed by newborn screening after mom stayed on CFTR modulator therapy during pregnancy.
References
J Cyst Fibros. 2021 Apr 9;S1569-1993(21)00100-4. doi: 10.1016/j.jcf.2021.03.018.

April 2021

Title: Peripheral lung effect of elexacaftor/tezacaftor/ivacaftor in adult cystic fibrosis
References
J Cyst Fibros. 2021 Apr 6;S1569-1993(21)00098-9. doi: 10.1016/j.jcf.2021.03.016

April 2021

Title: The role of the “PTM-CODE” in restoring F50del-CFTR functionality
References
J Cyst Fibros. 2021 Apr 1;S1569-1993(21)00086-2. doi: 10.1016/j.jcf.2021.03.010.
Title: Nasal high-flow therapy as an adjunct to exercise in patients with cystic fibrosis: A pilot feasibility trial
References
J Cyst Fibros. 2021 Apr 1;S1569-1993(21)00054-0. doi: 10.1016/j.jcf.2021.03.005.