With the CF Research News, we aim to bridge the gap between people with CF and the researchers investigating CF and how best to treat those with the condition.
We want to provide access to patients, parents, relatives, friends and caregivers of patients with CF to all scientific work mainly published in the Journal of Cystic Fibrosis (JCF).

All PDF files published hereunder are lay version summaries of work published in the JCF.

January 2024

Title: Is it safe to use Elexacaftor/tezacaftor/ivacaftor if you have had a kidney or liver transplant?
Authors
Renske van der Meer, Erik B Wilms, Margot N Eggermont, Helena M Paalvast, Matthijs van Luin, Richard C J M van Rossen, Harry G M Heijerman
References
J Cyst Fibros. 2024 Jan 29:S1569-1993(24)00007-9. doi: 10.1016/j.jcf.2024.01.008.
Keywords
Drug-drug interaction, Elexacaftor/tezacaftor/ivacaftor, Solid organ transplant, Tacrolimus
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Scientific Abstract

January 2024

Title: Standards for the care of people with cystic fibrosis; establishing and maintaining health
Authors
Kevin W Southern, Charlotte Addy, Scott C Bell, Amanda Bevan, Urzula Borawska, Catherine Brown, Pierre-Régis Burgel, Brenda Button, Carlo Castellani, Audrey Chansard, Mark A Chilvers, Gwyneth Davies, Jane C Davies, Kris De Boeck, Dimitri Declercq,, Michael Doumit, Pavel Drevinek, Isabelle Fajac, Silvia Gartner, Anna M Georgiopoulos, Sandra Gursli, Andrea Gramegna, Carina Me Hansen, Martin J Hug, Elise Lammertyn, Edwina Eddie C Landau, Ross Langley, Nicole Mayer-Hamblett, Anna Middleton, , Peter Middleton, Monika Mielus, Lisa Morrison, Anne Munck, Barry Plant, Maarten Ploeger, Dominique Pougheon Bertrand, Tacjana Pressler, Bradley S Quon, Thomas Radtke, Zoe L Saynor, Ilan Shufer, Alan Smyth, Chris Smith, Silke van Koningsbruggen-Rietschel
References
J Cyst Fibros. 2024 Jan;23(1):12-28. doi: 10.1016/j.jcf.2023.12.002.
Keywords
ECFS, guidance, Health, Standards
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Free Access Article
Title: Sleep breathing disorders in adults with cystic fibrosis (CF)
Authors
Asma Maqsood, Xiayi Ma, Elizabeth Tullis, Clodagh M Ryan, Anju Anand, Anne L Stephenson, Nicholas T Vozoris
References
Cyst Fibros. 2024 Jan;23(1):144-149. doi: 10.1016/j.jcf.2023.12.005. Epub 2023 Dec 20.
Keywords
Epidemiology, Positive airway pressure, Sleep breathing disorder
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Scientific Abstract

January 2024

Title: Markers of inflammation in lung fluid can predict lung damage in young children with Cystic Fibrosis (CF)?
Authors
Hamed Horati, Camilla Margaroli, Joshua D Chandler, Matthew B Kilgore, Badies Manai, Eleni-Rosalina Andrinopoulou, Limin Peng , Lokesh Guglani, Harm A M W Tiddens, Daan Caudri, Bob J Scholte, Rabindra Tirouvanziam, HettieM Janssens
References
J Cyst Fibros. 2024 Jan 20:S1569-1993(24)00002-X. doi: 10.1016/j.jcf.2024.01.002.
Keywords
Bronchiectasis, Bronchoalveolar lavage, Children, Inflammatory markers
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Scientific Abstract

January 2024

Title: CF adults with private insurance receive equivalent preventive care to the general population
Authors
Sankalp Malhotra, J Madison Hyer, Djhenne Dalmacy, Don Hayes Jr, Dmitry Tumin, Stephen E Kirkby, Daniel E Jonas, Seuli Bose-Brill, Susan S Li
References
J Cyst Fibros. 2024 Jan 13:S1569-1993(23)01698-3. doi: 10.1016/j.jcf.2023.11.013.
 
Keywords
colonoscopy, mammogram, pap smear, Primary care, screening
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Scientific Abstract

January 2024

Title: Elexacaftor/Tezacaftor/Ivacaftor Improves Chronic Rhinosinusitis Detected by Magnetic Resonance Imaging in Children with Cystic Fibrosis on Long-Term Therapy with Lumacaftor/Ivacaftor
Authors
Lena Wucherpfennig, Johanna K Z Becker, Felix Wuennemann, Monika Eichinger, Angelika Seitz, Ingo Baumann, Mirjam Stahl, Simon Y Graeber, Shengkai Zhao, Jaehi Chung, Jens-Peter Schenk, Abdulsattar Alrajab, Hans-Ulrich Kauczor, Marcus A Mall, , Olaf Sommerburg, Mark O Wielpütz
References
J Cyst Fibros. 2024 Jan 12:S1569-1993(24)00004-3. doi: 10.1016/j.jcf.2024.01.00
Keywords
Airway disease, Chronic rhinosinusitis, Magnetic Resonance Imaging, Mucus obstruction
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https://pubmed.ncbi.nlm.nih.gov/38218661/

January 2024

Title: Nasal lavage as a promising tool to monitor upper airway health
Authors
Jaehi Chung, Sébastien Boutin, Dario L. Frey, Cornelia Joachim, Marcus A. Mall, Olaf Sommerburg
References
J Cyst Fibros. 2024 Jan 9:S1569-1993(23)01735-6. doi: 10.1016/j.jcf.2023.12.011.
Keywords
Inflammation, Microbiome, Nasal lavage, Nasal swabs
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Scientific Abstract

January 2024

Title: Complications associated with treatment of haemoptysis in adults with cystic fibrosis
Authors
Karuna Sapru, Evelyn Looi, Peter J Barry, David Thompson, Dare Seriki, Stephen Butterfield, Andrew M Jones
References
J Cyst Fibros. 2024 Jan 5:S1569-1993(23)01736-8. doi: 10.1016/j.jcf.2023.12.012.
Keywords
Bronchial artery embolisation, Haemoptysis
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Scientific Abstract