With the CF Research News, we aim to bridge the gap between people with CF and the researchers investigating CF and how best to treat those with the condition.
We want to provide access to patients, parents, relatives, friends and caregivers of patients with CF to all scientific work mainly published in the Journal of Cystic Fibrosis (JCF).

All PDF files published hereunder are lay version summaries of work published in the JCF.

September 2023

Title: How long after treatment do people with cystic fibrosis no longer have Burkholderia cepacia complex in their sputum samples?
Authors
Daniel H Tewkesbury, Louise R Pollard, Heather D Green, Alexander Horsley, Dervla Kenna, Andrew M Jones
References
J Cyst Fibros. 2023 Sep 27:S1569-1993(23)00920-7. doi: 10.1016/j.jcf.2023.09.016.
Keywords
Burkholderia cepacia complex, chronic pulmonary infection, infection control, infection prevention
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Scientific Abstract

September 2023

Title: Using Home Spirometry Devices to Watch Over Children with Cystic Fibrosis: Can It Help Detect and Treat Pulmonary Exacerbations and Improve 1-Year Lung Function?
Authors
Muruvvet Yanaz, Cansu Yilmaz Yegit, Aynur Gulieva, Mine Kalyoncu, Merve Selcuk, Burcu Uzunoglu, Gamze Tastan, Almala Pinar Ergenekon, Yasemin Gokdemir, Ela Erdem Eralp, Fazilet Karakoc, Bulent Karadag
References
J Cyst Fibros. 2023 Sep 23:S1569-1993(23)00911-6. doi: 10.1016/j.jcf.2023.09.007.
Keywords
Forced expiratory volume in 1 second, Home spirometry, Pulmonary exacerbations
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Scientific Abstract
Title: Changes in pancreatic enzyme function for children with cystic fibrosis while taking modulators (Trikafta®, Orkambi®, Symdeco®, and Kalydeco®)
Authors
Kimberly G Stephenson, Abby J Lingle, Kelly A Baumberger, Elisabeth P Dellon, Charles R Esther Jr, Ellen M Meier, Christopher M Oermann, Vivek K Shenoy, Natalie R Smith, Nicole S Wimmer, Stephanie R Duehlmeyer, Charissa W Kam, Cameron J McKinzie, Margaret O Poisson, E Claire Elson
References
J Cyst Fibros. 2023 Sep 26:S1569-1993(23)00909-8. doi: 10.1016/j.jcf.2023.09.005.
Keywords
CFTR modulators, Exocrine pancreatic function, Fecal elastase, pancreatic insufficiency, Pancreatic sufficiency
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Scientific Abstract

September 2023

Title: A Review of Cystic Fibrosis Sinus and Nasal Disease response to CFTR Modulator Therapy
Authors
Roy Gavin Stone, Christopher Short, Jane C Davies, Paul McNally
References
J Cyst Fibros. 2023 Sep 8:S1569-1993(23)00877-9. doi: 10.1016/j.jcf.2023.08.009.
Keywords
CFTR modulator, Chronic rhinosinusitis, Endoscopy, Imaging, Olfaction, Symptoms
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Scientific Abstract

September 2023

Title: Making the diagnosis of nontuberculous mycobacteria (NTM) lung disease standard with the PREDICT study
Authors
Stacey L Martiniano, Silvia M Caceres, Katie Poch, Noel M Rysavy, Valerie K Lovell, Emily Armantrout, Marion Jones, Margaret Anthony, Allison Keck, David P Nichols, Jill M Vandalfsen, Scott D Sagel, Brandie Wagner, Jing Xie, Katie Weaver, Sonya L Heltshe,, Charles L Daley, Rebecca M Davidson, Jerry A Nick; Investigators of the Cystic Fibrosis NTM Consortium
References
J Cyst Fibros. 2023 Sep 2:S1569-1993(23)00876-7. doi: 10.1016/j.jcf.2023.08.007.
Keywords
Biomarkers, CFTR modulator therapy, M. abscessus, M. avium complex, Nontuberculous mycobacterial (NTM) pulmonary disease
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Scientific Abstract