With the CF Research News, we aim to bridge the gap between people with CF and the researchers investigating CF and how best to treat those with the condition.
We want to provide access to patients, parents, relatives, friends and caregivers of patients with CF to all scientific work mainly published in the Journal of Cystic Fibrosis (JCF).

All PDF files published hereunder are lay version summaries of work published in the JCF.

August 2019

Title: Whole-blood transcriptomic responses to lumacaftor/ivacaftor therapy in cystic fibrosis.
Authors
Kopp BT, Fitch J, Jaramillo L, Shrestha CL, Robledo-Avila F, Zhang S, Palacios S, Woodley F, Hayes D Jr, Partida-Sanchez S, Ramilo O, White P., Meijas A.
References
J Cyst Fibros. 2019 Aug 29. pii: S1569-1993(19)30868-9. doi: 10.1016/j.jcf.2019.08.021. 
Keywords
CFTR, RNA-seq, Transcriptomics
PDF icon CF Research News Article
Scientific Abstract

August 2019

Title: Addressing the Burden of Illness in Adults with Cystic Fibrosis with Screening and Triage: An Early Intervention Model of Palliative Care
Authors
Dhingra L, Walker P, Berdella M, Plachta A, Chen J, Fresenius A, Balzano J, Barrett M, Bookbinder M, Wilder K, Glajchen M, Langfelder-Schwind E, Portenoy RK
References
J Cyst Fibros. 2019 Aug 27. pii: S1569-1993(19)30841-0. doi: 10.1016/j.jcf.2019.08.009
Keywords
Generalist-level palliative care, Models of care, screening, Telehealth
PDF icon CF Research News Article
Scientific Abstract

August 2019

Title: A Study to Test the Effects of a Treatment Called Amikacin Liposome Inhalation Suspension on Chronic Pseudomonas aeruginosa Infection in People with Cystic Fibrosis
Authors
Bilton D, Pressler T, Fajac I, Clancy JP, Sands D, Minic P, Cipolli M, Galeva I, Sole A, Quittner AL, Liu K, McGinnis JP, Eagle G, Gupta R, Konstan MW; CLEAR-108 Study Group.
References
J Cyst Fibros. 2019 Aug 23. pii: S1569-1993(19)30833-1. doi: 10.1016/j.jcf.2019.08.001.
Keywords
ALIS, Amikacin liposome inhalation suspension, CFQ-R, LAI, Liposomal amikacin for inhalation, Pseudomonas aeruginosa
PDF icon CF Research News Article
Scientific Abstract

August 2019

Title: Dysregulated insulin in pancreatic insufficient cystic fibrosis with post-prandial hypoglycemia.
Authors
Kilberg MJ, Sheikh S, Stefanovski D, Kubrak C, De Leon DD, Hadjiliadis D, Rubenstein RC, Rickels MR, Kelly A
References
J Cyst Fibros. 2019 Aug 8. pii: S1569-1993(19)30827-6. doi: 10.1016/j.jcf.2019.07.006
Keywords
Glucose tolerance, Hypoglycemia, insulin secretion, pancreatic insufficiency
PDF icon CF Research News Article
Scientific Abstract