With the CF Research News, we aim to bridge the gap between people with CF and the researchers investigating CF and how best to treat those with the condition.
We want to provide access to patients, parents, relatives, friends and caregivers of patients with CF to all scientific work mainly published in the Journal of Cystic Fibrosis (JCF).

All PDF files published hereunder are lay version summaries of work published in the JCF.

March 2017

Title: A 3-year prognostic score for adults with cystic fibrosis.
References
J Cyst Fibros. 2017 Mar 18. pii: S1569-1993(17)30087-5

March 2017

Title: Nutritional status, nutrient intake and use of enzyme supplements in paediatric patients with Cystic Fibrosis; a European multicentre study with reference to current guidelines
References
J Cyst Fibros. 2017 Mar 17. pii: S1569-1993(17)30088-7
Theme
Nutrition/Gastroenterology

March 2017

Title: When is too little care, too much harm in cystic fibrosis? Psychological and ethical approaches to the problem.
References
J Cyst Fibros. 2017 Mar;16(2):299-303
Title: Clostridium difficile carriage in adult cystic fibrosis (CF); implications for patients with CF and the potential for transmission of nosocomial infection.
References
 2017 Mar;16(2):291-298.

March 2017

Title: Nonparametric analysis of competing risks data with event category missing at random.
References
Biometrics. 2017 Mar;73(1):104-113. doi: 10.1111/biom.12547.
Title: Real-life initiation of lumacaftor/ivacaftor combination in adults with cystic fibrosis homozygous for the Phe508del CFTR mutation and severe lung disease
References
J Cyst Fibros. 2017 Mar 15. pii: S1569-1993(17)30086-3

March 2017

Title: Technological advances shed light on left ventricular cardiac disturbances in cystic fibrosis
References
J Cyst Fibros. 2017 Mar 14. pii: S1569-1993(17)30080-2
Title: The CF-CARES primary palliative care model: A CF-specific structured assessment of symptoms, distress, and coping. distress, and coping.
References
J Cyst Fibros. 2017 Mar 14. pii: S1569-1993(17)30077-2.
Title: Immediate Effects of Lumacaftor/Ivacaftor Administration on Lung Function in Patients with Severe Cystic Fibrosis Lung Disease
References
 2017 Mar 14. pii: S1569-1993(17)30075-9

March 2017

Title: Feasibility of placebo-controlled trial designs for new CFTR modulator evaluation
References
J Cyst Fibros. 2017 Mar 8. pii: S1569-1993(17)30078-4
Title: Association between glucose intolerance and bacterial colonisation in an adult population with cystic fibrosis, emergence of Stenotrophomonas maltophilia.
References
J Cyst Fibros. 2017 Mar 8. pii: S1569-1993(17)30025-5.

March 2017

Title: Pilot trial of tobramycin inhalation powder in cystic fibrosis patients with chronic Burkholderia cepacia complex infection
References
J Cyst Fibros. 2017 Mar 2. pii: S1569-1993(17)30074-7. 
Theme
CFTR/Basic Science
Title: Peripheral muscle abnormalities in cystic fibrosis: etiology, clinical implications and response to therapeutic interventions
References
J Cyst Fibros. 2017 Mar 2. pii: S1569-1993(17)30032-2.