With the CF Research News, we aim to bridge the gap between people with CF and the researchers investigating CF and how best to treat those with the condition.
We want to provide access to patients, parents, relatives, friends and caregivers of patients with CF to all scientific work mainly published in the Journal of Cystic Fibrosis (JCF).

All PDF files published hereunder are lay version summaries of work published in the JCF.

October 2017

Title: Lung Function Decline is Delayed But Not Decreased in Patients With Cystic Fibrosis and the R117H Gene Mutation
Authors
Jeffrey S. Wagener, Stefanie J. Millar, Nicole Mayer-Hamblett, Gregory S. Sawicki, Edward F. McKone6, Christopher H. Goss, Michael W. Konstan, Wayne J. Morgan, David J. Pasta2, Richard B. Moss
References
J Cyst Fibros. 2017 Oct 31. pii: S1569-1993(17)30912-8. doi: 10.1016/j.jcf.2017.10.003
Keywords
F508del, Lung function, Lung function decline, R117H
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Scientific Abstract

October 2017

Title: Defining Palliative Care in Cystic Fibrosis: A Delphi Study
Authors
Dellon EP, Goggin J, Chen E, Sabadosa K, Hempstead SE, Faro A, Homa K
References
J Cyst Fibros. 2017 Oct 30. pii: S1569-1993(17)30948-7. doi: 10.1016/j.jcf.2017.10.011.
Keywords
Palliative care, Quality of life
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Scientific Abstract

October 2017

Title: Do cystic fibrosis centres with the lowest Fev1 still use the least amount of intravenous antibiotics? A registry-based comparison of intravenous antibiotic use among adult CF centres in the UK
Authors
Zhe Hui Hoo, Michael J. Campbell, Rachael Curley, Stephen J. Walters, Martin J. Wildman
References
J Cyst Fibros. 2017 Oct 23. pii: S1569-1993(17)30916-5. doi: 10.1016/j.jcf.2017.10.005
Keywords
Clinical epidemiology, Intravenous antibiotic, Pulmonary exacerbation, Registry analysis
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Scientific Abstract

October 2017

Title: IgG avidity to Pseudomonas aeruginosa over the course of chronic lung biofilm infection in cystic fibrosis
Authors
Renan Marrichi Mauch, Lena Lingren Nørregaard, Oana Ciofu, Carlos Emilio Levy, Niels Høiby
References
J Cyst Fibros. 2017 Oct 11. pii: S1569-1993(17)30883-4. doi: 10.1016/j.jcf.2017.09.004
Keywords
Biofilm, Chronic infection, Humoral response, IgG avidity, Pseudomonas aeruginosa
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Scientific Abstract