With the CF Research News, we aim to bridge the gap between people with CF and the researchers investigating CF and how best to treat those with the condition.
We want to provide access to patients, parents, relatives, friends and caregivers of patients with CF to all scientific work mainly published in the Journal of Cystic Fibrosis (JCF).

All PDF files published hereunder are lay version summaries of work published in the JCF.

September 2021

Title: Sense of Smell in People with Cystic Fibrosis: Impact of Modulator Therapy
References
J Cyst Fibros. 2021 Sep 28;S1569-1993(21)01419-3. doi: 10.1016/j.jcf.2021.09.014.
Theme
Care of patients with CF, Nutrition/Gastroenterology

September 2021

Title: Using a digital system, CFHealthHub, to automatically record the use of preventative inhaled treatments as to compare the amount of medicines collected from pharmacy to the amount actually used.
References
J Cyst Fibros. 2021 Sep 23;S1569-1993(21)01408-9. doi: 10.1016/j.jcf.2021.09.007.
Theme
Care of patients with CF

September 2021

Title: Drug development for Cystic Fibrosis patients carrying the 3849+10kb C-to-T splicing mutation
References
J Cyst Fibros. 2021 Sep;20(5):865-875. doi: 10.1016/j.jcf.2021.06.003. Epub 2021 Jul 2.
Theme
CFTR/Basic Science

September 2021

Title: Can cough swabs be used to identify bacterial infections in patient with cystic fibrosis.
References
J Cyst Fibros. 2021 Sep 18;S1569-1993(21)01372-2. doi: 10.1016/j.jcf.2021.08.031.

September 2021

Title: Study that tested the effects of a new drug called acebilustat in adultswith cystic fibrosis
References
J Cyst Fibros. 2021 Sep 16;S1569-1993(21)01348-5. doi: 10.1016/j.jcf.2021.08.007.

September 2021

Title: The effect of ETI (Trikafta™) on blood sugars in adults with cystic fibrosis
References
J Cyst Fibros. 2021 Sep 13;S1569-1993(21)01377-1. doi: 10.1016/j.jcf.2021.09.001.

September 2021

Title: A review of three studies examining different aspects of pulmonary exacerbation treatment
References
J Cyst Fibros. 2021 Sep 6;S1569-1993(21)01365-5. doi: 10.1016/j.jcf.2021.08.024.
Theme
Care of patients with CF, Epidemiology/Models of care

September 2021

Title: Treatment patterns in people with cystic fibrosis: have they changed since the introduction of ivacaftor?
References
J Cyst Fibros. 2021 Sep 5;S1569-1993(21)01355-2. doi: 10.1016/j.jcf.2021.08.014.
Theme
Care of patients with CF, Epidemiology/Models of care

September 2021

Title: New perspectives on physical exercise training in adults and children with cystic fibrosis
References
J Cyst Fibros. 2021 Sep 4;S1569-1993(21)01345-X. doi: 10.1016/j.jcf.2021.08.004

September 2021

Title: Clinical presentation and basic defect of the CFTR genotype p.Phe508del / p.Arg117His in a mother and her monozygous twin daughters
References
J Cyst Fibros. 2021 Sep 3;S1569-1993(21)01359-X. doi: 10.1016/j.jcf.2021.08.018.