With the CF Research News, we aim to bridge the gap between people with CF and the researchers investigating CF and how best to treat those with the condition.
We want to provide access to patients, parents, relatives, friends and caregivers of patients with CF to all scientific work mainly published in the Journal of Cystic Fibrosis (JCF).

All PDF files published hereunder are lay version summaries of work published in the JCF.

December 2016

Title: Non-invasive prenatal diagnosis (NIPD) of Cystic Fibrosis: an optimized protocol using MEMO fluorescent PCR to detect the p.Phe508del mutation
Authors
C. Guissart, C. Dubucs, C. Raynal, A. Girardet, F. Tran Mau Them, V. Debant, C. Rouzier, A. Boureau-Wirth, E. Haquet, J. Puechberty, E. Bieth, D. Dupin Deguine, P. Khau Van Kien, M.P. Brechard, V. Pritchard, M. Koenig, M.Claustres, M.C. Vincent
References
J Cyst Fibros. 2016 Dec 28. pii: S1569-1993(16)30680-4
Keywords
MEMO-PCR, NIPD, Non-invasive prenatal diagnosis, cff-DNA, p.Phe508del
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Scientific abstract

December 2016

Title: Impact of azithromycin on the clinical and antimicrobial effectiveness of tobramycin in the treatment of cystic fibrosis
Authors
Nichols DP, Happoldt CL, Bratcher PE, Caceres SM, Chmiel JF, Malcolm KC, Saavedra MT, Saiman L, Taylor-Cousar JL, Nick JA.
References
J Cyst Fibros. 2016 Dec 24. pii: S1569-1993(16)30672-5.
Keywords
Azithromycin, Clinical trial, Drug interaction, Inhaled antibiotics, MexXY, Pseudomonas aeruginosa, Tobramycin
PDF icon JCF-D-16-00260R2_FINAL_Nichols_25012017.pdf
Scientific abstract

December 2016

Title: Increasing sputum levels of gamma-glutamyltransferase may identify cystic fibrosis patients who do not benefit from inhaled glutathione.
Authors
Corti A, Griese M, Hector A, Pompella A
References
J Cyst Fibros. 2016 Dec 14. pii: S1569-1993(16)30671-3.
Keywords
Gamma-glutamyltransferase, Glutathione, Inflammation
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Scientific abstract

December 2016

Title: The psychometric properties of the Leicester Cough Questionnaire and Respiratory Symptoms in CF tool in cystic fibrosis.
Authors
Nathan Ward, Kathy Stiller, Hilary Rowe, Anne E Holland
References
 2016 Dec 13. pii: S1569-1993(16)30669-5
Keywords
Cough, Leicester Cough Questionnaire, Signs and symptoms, respiratory, Surveys and questionnaires
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Scientific abstract

December 2016

Title: Pleural Effusions in Non-Transplanted Cystic Fibrosis Patients
Authors
Adam R. Belanger, Kimtuyen Nguyen, Umar Osman, Christopher R. Gilbert, Katie Allen, Ahmad Farid Al Rais, Lonny Yarmus, Jason A. Akulian
References
 2016 Dec 12. pii: S1569-1993(16)30664-6.
Keywords
Pleural effusion, Patient outcome assessment
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Scientific Abstract
Title: Pleural Effusions in Non-Transplanted Cystic Fibrosis Patients
Authors
Adam R. Belanger, Kimtuyen Nguyen, Umar Osman, Christopher R. Gilbert, Katie Allen, Ahmad Farid Al Rais, Lonny Yarmus, Jason A. Akulian
References
 2016 Dec 12. 
Keywords
Alginate, Inhaled antibiotics, Pseudomonas aeruginosa, Sputum binding
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Scientific Abstract

December 2016

Title: Sources of Variation in Sweat Chloride Measurements in Cystic Fibrosis.
Authors
Collaco JM, Blackman SM, Raraigh KS, Corvol H, Rommens JM, Pace RG, Boelle PY, McGready J, Sosnay PR, Strug LJ, Knowles MR, Cutting GR
References
Am J Respir Crit Care Med. 2016 Dec 1;194(11):1375-1382.
Keywords
Biomarker, heritability, Ivacaftor, Lumacaftor, pilocarpine iontophoresis
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Scientific Abstract
Title: BMI Fails to Identify Poor Nutritional Status in Stunted Children with CF
Authors
Michael W. Konstan, David J. Pasta, Jeffrey S. Wagener, Donald R. VanDevanter, Wayne J. Morgan
References
J Cyst Fibros. 2016 Dec 1. pii: S1569-1993(16)30663-4
Keywords
Body mass index, Growth, Height for age, Weight for age
Theme
Nutrition/Gastroenterology
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Scientific abstract
Title: Environmental Scan of Cystic Fibrosis Research Worldwide
Authors
Janice Kelly
References
J Cyst Fibros. 2016 Dec 1. pii: S1569-1993(16)30655-5
Keywords
Charitable organizations, Environmental scan, Rare disease, Research funding
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Scientific abstract