With the CF Research News, we aim to bridge the gap between people with CF and the researchers investigating CF and how best to treat those with the condition.
We want to provide access to patients, parents, relatives, friends and caregivers of patients with CF to all scientific work mainly published in the Journal of Cystic Fibrosis (JCF).

All PDF files published hereunder are lay version summaries of work published in the JCF.

May 2016

Title: Episodic oral antibiotic use in CF: discordance between the electronic medical record and self-report
Authors
Lindsay J. Caverly, Tanner J. Caverly, Linda M. Kalikin, Bridget K. Foster, Richard H. Simon, John J. LiPuma
References
J Cyst Fibros. 2016 May 4. pii: S1569-1993(16)30044-3
Keywords
Bioelectrical impedance analysis, Body composition, Diaphragm, Fat-free mass, Lung function
Theme
Epidemiology/Models of care
PDF icon CF Research News article

May 2016

Title: A false positive newborn screening result due to a complex allele carrying two frequent CF-causing variants.
Authors
Bergougnoux A, Boureau-Wirth A, Rouzier C, Altieri JP, Verneau F, Larrieu L, Koenig M, Claustres M, Raynal C
References
J Cyst Fibros. 2016 May;15(3):309-12
Keywords
CFTR gene, Complex allele, False positive, Newborn screening
Theme
Newborn screening
PDF icon CF Research News article
Scientific abstract
Title: A false positive newborn screening result due to a complex allele carrying two frequent CF-causing variants.
Authors
Bergougnoux A, Boureau-Wirth A, Rouzier C, Altieri JP, Verneau F, Larrieu L, Koenig M, Claustres M, Raynal C
References
J Cyst Fibros. 2016 May;15(3):309-12
Keywords
CFTR gene, Complex allele, False positive, Newborn screening
Theme
Newborn screening
PDF icon CF Research News article
Scientific abstract