With the CF Research News, we aim to bridge the gap between people with CF and the researchers investigating CF and how best to treat those with the condition.
We want to provide access to patients, parents, relatives, friends and caregivers of patients with CF to all scientific work published in the Journal of Cystic Fibrosis (JCF).

All PDF files published hereunder are lay version summaries of work published in the JCF.

September 2015

Title: Bronchopulmonary infection-colonization patterns in Spanish cystic fibrosis patients: results from a national multicenter study
References

J Cyst Fibros. 2015 Sep 28. pii: S1569-1993(15)00212-X

Theme
Microbiology
Title: Use of nrdA gene sequence clustering to estimate the prevalence of different Achromobacter species among Cystic Fibrosis patients in the UK
References

J Cyst Fibros. 2015 Sep 24. pii: S1569-1993(15)00213-1

Theme
Microbiology
Title: Causes of death in French cystic fibrosis patients: The need for improvement in transplantation referral strategies!
References

J Cyst Fibros. 2015 Sep 18. pii: S1569-1993(15)00210-6.

Theme
Epidemiology/Models of care
Title: Diagnostic accuracy and distress associated with oropharyngeal suction in cystic fibrosis
References

J Cyst Fibros. 2015 Sep 17. pii: S1569-1993(15)00209-X.

Theme
Microbiology
Title: The impact of a national population carrier screening program on cystic fibrosis birth rate and age at diagnosis: Implications for newborn screening
References

J Cyst Fibros. 2015 Sep 16. pii: S1569-1993(15)00203-9.

Theme
Diagnosis/Screening
Title: The 1-min sit-to-stand test - a simple functional capacity test in cystic fibrosis?
References

J Cyst Fibros. 2015 Sep 9. pii: S1569-1993(15)00202-7

Theme
Exercise
Title: CF healthcare workers feel unprepared in providing suitable end of life care and desire more education: Results of a nationwide survey
References

J Cyst Fibros. 2015 Sep 8. pii: S1569-1993(15)00201-5

Title: Advance Care Planning in Cystic Fibrosis: Current Practices, Challenges, and Opportunities
References

J Cyst Fibros. 2015 Sep 8. pii: S1569-1993(15)00178-2.

Theme
Epidemiology/Models of care