All Resources

This page provides filters and search facilities across all types of CF resources contained within the ECFS website.

Additionally, you can visit the specific resource type pages as follows:

More information on CF publications can be found here: Publications

July 2025

Title: Understanding Symptom Patterns in Adults with Cystic Fibrosis
Authors
Natalia Smirnova, Scott Gillespie, Jane Lowers, Andrew Jergel, Elisabeth P Dellon, Alexandre Cammarata-Mouchtouris, Anne Fitzpatrick, Dio Kavalieratos
References
J Cyst Fibros. 2025 Jul 8:S1569-1993(25)01524-3. doi: 10.1016/j.jcf.2025.07.001
Keywords
Palliative care, Quality of life, Symptom management, Symptom science
File JCF-D-25-00100_FINAL_Smirnova_100825.docx

July 2025

Title: The challenges of conducting large clinical studies in cystic fibrosis
Authors
Ieuan ES Evans, Christine M Duplancic, Timothy A Kidd, Emma L Ballard, Rachel M Thomson, Claire E Wainwright, Scott C Bell, for the National NTM in CF study group.
References
J Cyst Fibros. 2025 Jul 17:S1569-1993(25)01525-5.  doi: 10.1016/j.jcf.2025.07.002
Keywords
Cohort studies, Cystic fibrosis, Ethical approval, microbiology, Airway infection, Research funding
File JCF-D-25-00179R1_FINAL_Bell_030825.docx
Title: What adults with cystic fibrosis in Ireland are eating; How their diets compare to nutrition guidelines and healthy eating scores.
Authors
Cian Greaney, Ellen McCarthy, Lauren O'Brien, Sarah Tecklenborg, Ciara Howlett, Karen Cronin, Clodagh Lander, Mary Connolly, Derbhla O'Sullivan, Aoife Whiston, Katie Robinson, Audrey Tierney
References
J Cyst Fibros. 2025 Jul 11:S1569-1993(25)01527-9.  doi: 10.1016/j.jcf.2025.07.004
Keywords
Cystic fibrosis, Diet quality, Food serves, Macronutrients, Micronutrients
File JCF-D-25-00105R2_FINAL_Greaney_270725.docx
Title: Can we measure effectiveness of new cystic fibrosis treatments in improving lung health in children with cystic fibrosis aged less than 2 years of age during clinical trials conducted for the approval of new medicines?
Authors
Tim Lee, Kate Hill, Daan Caudri, Pierluigi Ciet, Gwyneth Davies, Jane C Davies, Anna-Maria Dittrich, Anders Lindblad, Paul McNally, Philippe Reix, Clare Saunders, Isabelle Sermet-Gaudelus, Mirjam Stahl, Harm A.W.M. Tiddens, Hettie M. Janssens
References
J Cyst Fibros. 2025 Jul 3:S1569-1993(25)01517-6.  doi: 10.1016/j.jcf.2025.06.003
Keywords
Chest CT, Chest MRI, clinical trials, infants, Infection, Inflammation, Multiple breath washout, Paediatrics, Pulmonary endpoints
File JCF-D-25-00055R1_FINAL_Janssens_270725.docx
Title: ARE CFTR MODULATORS ESSENTIAL MEDICINES FOR LOW-INCOME COUNTRIES?
Authors
Enrico Costa, Hendrika A van den Ham, Hubert G. M. Leufkens
References
J Cyst Fibros. 2025 Jul 4:S1569-1993(25)01520-6.  doi: 10.1016/j.jcf.2025.06.006.
Keywords
CFTR modulators, Cystic fibrosis, Elexacaftor/tezacaftor/ivacaftor, Equitable access, Essential medicines, Essential medicines list, Global Health, Medicines affordability, World health organization
File JCF-D-25-00146R2_FINAL_vandenHam_200725.docx
Title: Income, Needs, and Insecurity in People with CF in Earthquake Zones
Authors
Seyda Karabulut, Velat Sen, Beste Özsezen, Ali Özdemir, Melih Hangül, Suat Savas, Hadice Selimoğlu Sen, Gaye Inal, Huseyin Arslan, Mahir Serbes, Pelin Asfuroglu, Ezgi Cay, Erdem Topal, Neval Metin Çakar, Almala Pınar Ergenekon, Ela Erdem Eralp,, Sedat Oktem, Zeynep Seda Uyan, Fazilet Karakoc, Bulent Karadag, Yasemin Gokdemir
References
J Cyst Fibros. 2025 Jul 16:S1569-1993(25)01522-X.  doi: 10.1016/j.jcf.2025.06.008
Keywords
Cystic fibrosis, Earthquake, Income level, Social determinant of health, Socioeconomic status, Your current life situation
File JCf-D-25-00074R2_FINAL_Karabulut_200725.docx
Title: Elexacaftor-tezacaftor-ivacaftor prescription after Lung Transplant
Authors
Nora C. Burdis, Miranda C. Bradford, Sonya L. Heltshe, Tijana Milinic, Oliver J. McElvaney, Erika D. Lease, Christopher H. Goss, Siddhartha G. Kapnadak, Brandon L. Guthrie, Kathleen J. Ramos
References
J Cyst Fibros. 2025 Jul 1:S1569-1993(25)01519-X.  doi: 10.1016/j.jcf.2025.06.005
Keywords
CFTR modulator, Cystic fibrosis, Elexacaftor, Ivacaftor, Lung transplantation, Tezacaftor
File JCF-D-25-00119R2_FINAL_Ramos_200725.docx