All Resources

This page provides filters and search facilities across all types of CF resources contained within the ECFS website.

Additionally, you can visit the specific resource type pages as follows:

More information on CF publications can be found here: Publications

November 2023

Title: Use of CFTR modulators in patients having undergone liver transplantation
Authors
Diana Coman, Catherine Vincent, Genevieve Huard, Denis Marleau, Annick Lavoie, Julian Hercun
References
J Cyst Fibros. 2023 Nov 23:S1569-1993(23)01675-2. doi: 10.1016/j.jcf.2023.11.004.
Keywords
CFTR modulators, Cystic fibrosis liver disease, Elexacaftor/tezacaftor/ivacaftor, Liver transplant
PDF icon CF Research News Article
Scientific Abstract

November 2023

Title: Changes in cholesterol levels in people with cystic fibrosis after starting highly effective modulators
Authors
Katherine A. Despotes, Agathe S. Ceppe, and Scott H. Donaldson
References
J Cyst Fibros. 2023 Nov;22(6):1024-1026. doi: 10.1016/j.jcf.2023.10.002. Epub 2023 Oct 12
Keywords
CFTR modulators, Cardiovascular disease, Cholesterol
PDF icon CF Research News Article
Scientific Abstract

November 2023

Title: Loss of the Sense of Smell in People with Cystic Fibrosis: Community Perceptions and Impact
Authors
Jessa E Miller, Christine M Liu, Edith T Zemanick, Jason C Woods, Christopher H Goss, Jennifer L Taylor-Cousar, Daniel M Beswick
References
J Cyst Fibros. 2023 Nov 17:S1569-1993(23)01677-6. doi: 10.1016/j.jcf.2023.11.006.
Keywords
Olfaction, Olfactory dysfunction, Quality of life, Smell
PDF icon CF Research News Article
Scientific Abstract

November 2023

Title: Restless Legs Syndrome is a common sleep disorder in people with Cystic Fibrosis
Authors
Sabin R Bista, Tahuanty Pena, Makayla E Schissel, Lynette M Smith, Peter J Murphy, John D Dickinson
References
J Cyst Fibros. 2023 Nov 14:S1569-1993(23)01665-X. doi: 10.1016/j.jcf.2023.10.016.
 
Keywords
Epworth sleepiness scale (ess), Pittsburgh sleep quality index (PSQI), Restless legs syndrome (RLS), CF-related diabetes
PDF icon CF Research News Article
Scientific Abstract

November 2023

Title: A survey to understand if it is harmful for the baby when a male with CF uses CFTR modulators during assisted reproduction for pregnancy with his partner
Authors
Jennifer L Taylor-Cousar, Rachel Janney, Peter G Middleton, Raksha Jain, Julia Nightingale, Natalie E West, Michal Shteinberg, Danielle Velez, Traci M Kazmerski
References
J Cyst Fibros. 2023 Nov 10:S1569-1993(23)01667-3. doi: 10.1016/j.jcf.2023.10.022.
Keywords
Assisted reproduction, CFTR, conception, Modulators
PDF icon JCF-D-23-00353R1_FINAL_Taylor-Cousar_191223.pdf
Scientific Abstract

November 2023

Title: Identifying Infants with Cystic Fibrosis Who Need More Help Growing
Authors
Sarah Gunnell Bellini, Jessica Johnson, Catherine M McDonald, Suzanne Culhane, Yungjing Snell, Dennis Eggett
References
J Cyst Fibros. 2023 Nov 3:S1569-1993(23)01661-2. doi: 10.1016/j.jcf.2023.10.013.
Keywords
Nutrition screening, nutritional status, Pediatric
PDF icon CF Research News Article
Scientific Abstract