All Resources

This page provides filters and search facilities across all types of CF resources contained within the ECFS website.

Additionally, you can visit the specific resource type pages as follows:

More information on CF publications can be found here: Publications

August 2025

Title: Can we shorten test time for Lung Clearance Index (a lung function test used in CF)?
Authors
Amany F. Elbehairy, Doone Y. Boorman, Cassandra MacNaughton, Andrew M. Jones, Anirban Maitra, Francis Gilchrist, Alex Horsley
References
J Cyst Fibros. 2025 Aug 1:S1569-1993(25)01537-1.  doi: 10.1016/j.jcf.2025.07.016
Keywords
Cystic fibrosis, LCI, MBW
File JCF-D-25-00164R1_FINAL_Horsley_11082025.docx

August 2025

Title: Mini-guts help test responses to CFTR modulators in people with cystic fibrosis carrying F508del
Authors
Noelia Rodriguez Mier, Senne Cuyx, Kris De Boeck, Marijke Proesmans, Mieke Boon, Lieven Dupont, Kaline Arnauts, Elke De Wachter, Stephanie Van Biervliet, Monique Lequesne, Vicky Nowé, Hedwige Boboli, Anabela Santo Ramalho, François Vermeulen, on behalf of
References
J Cyst Fibros. 2025 Aug 29:S1569-1993(25)01570-X.  doi: 10.1016/j.jcf.2025.08.011
Keywords
CFTR functional assays, Cystic fibrosis, F508del, Patient derived intestinal organoids
File JCF-D-25-00168R2_FINAL_Rodriguez Mier_01092025.docx
Title: Is ETI safe for the liver? A two-year study from Denmark offers reassuring results.
Authors
Christine Højte, Mette Frahm Olsen, Daniel Faurholt-Jepsen, Marianne Hørby Jørgensen, Tacjana Pressler, Christian Leo-Hansen, Thomas Bryrup, Majbritt Jeppesen, Hanne Vebert Olesen, Janne Petersen, Terese L. Katzenstein, Bibi Uhre Nielsen, Marianne Skov, a
References
doi: 10.1016/j.jcf.2025.08.008
Keywords
Elexacaftor/tezacaftor/ivacaftor, Long-term changes, Cystic fibrosis liver disease, Hepatotoxicity
File JCF-D-25-00145R2_FINAL_Hojte Dahl_25082025.docx
Title: Early access to the CFTR modulator treatment helps severely ill infant with Cystic Fibrosis
Authors
Paul D Robinson, Claire E Wainwright, Elizabeth Shevill
References
J Cyst Fibros. 2025 Aug 18:S1569-1993(25)01565-6.  doi: 10.1016/j.jcf.2025.08.006
Keywords
Ethical review, Multidisciplinary team shared goals, Reduced hospital admissions, Urgent paediatric care
File JCF-D-25-00202R1_FINAL_Shevill_25082025.docx
Title: Summary of an interactive meeting about treating babies with CF with modulators before birth
Authors
Sylvia Szentpetery and Jennifer L. Taylor-Cousar
References
J Cyst Fibros. 2025 Aug 2:S1569-1993(25)01538-3.  doi: 10.1016/j.jcf.2025.07.015
Keywords
CFTR modulator, meconium ileus, Prenatal, Variant specific therapy, Vas deferens
File JCF-D-25-00161R2_FINAL_Taylor-Cousar_25082025.docx
Title: Tracking the spread of Mycobacterium abscessus in a CF center: What bacterial genetics and patient data reveal and why it matters
Authors
Jane E. Gross, Jason Fullmer, Gregory McClelland, Silvia M. Caceres, Katie R. Poch, Nabeeh A. Hasan, Fan Jia, L. Elaine Epperson, Ettie M. Lipner, Charmie K. Vang, Jennifer R. Honda, Matthew J. Strand, Vinicius Calado Nogueira de Moura, Charles L. Daley,
References
J Cyst Fibros. 2025 Aug 8:S1569-1993(25)01526-7.  doi: 10.1016/j.jcf.2025.07.003
Keywords
Cystic fibrosis, Epidemiology, Healthcare-associated infection, Infection acquisition, Infection transmission, Mycobacterium abscessus, nontuberculous mycobacteria, Whole genome sequencing.
File JCF-D-25-00012R3_FINAL_Gross_240825.docx