All Resources

This page provides filters and search facilities across all types of CF resources contained within the ECFS website.

Additionally, you can visit the specific resource type pages as follows:

More information on CF publications can be found here: Publications

April 2020

Title: A multinational report to characterise SARs-CoV-2 infection in people with cystic fibrosis
Authors
Rebecca Cosgriff, Susannah Ahern, Scott C Bell, Keith Brownlee, Pierre-Régis Burgel, Cass Byrnes, Harriet Corvol, Stephanie Y Cheng, Alexander Elbert, Albert Faro, Christopher H Goss, Vincent Gulmans, Bruce C Marshall, Edward McKone, Peter G Middleton, , Rasa Ruseckaiteb, Anne L. Stephensonfm, Siobhán B Carr
References
J Cyst Fibros. 2020 Apr 25;S1569-1993(20)30125-9. doi: 10.1016/j.jcf.2020.04.01
Keywords
Coronavirus, SARS-CoV-2
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Scientific Abstract

April 2020

Title: Use of a mobile application for self-management of pancreatic enzyme replacement therapy is associated with improved gastro-intestinal related quality of life in children with Cystic Fibrosis
Authors
M. Boon, J. Calvo-Lerma, I Claes, T. Havermans, I. Asseiceira, A. Bulfamante, M. Garriga, E. Masip, B.A.M. van Schijndel, V. Fornes, C. Barreto, C. Colombo, P. Crespo, S. Vicente, H. Janssens, J. Hulst, P. Witters, R. Nobili, L. Pereira, M. Ruperto,, E Van der Wiel, J G Mainz, K De Boeck, C Ribes-Koninckx
References
J Cyst Fibros . 2020 Jul;19(4):562-568. doi: 10.1016/j.jcf.2020.04.001. Epub 2020 Apr 22
Keywords
CFAbd-Score, Mobile application, MyCyFAPP, PERT, pancreatic insufficiency, PedsQL GI, Quality of life
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Scientific Abstract

April 2020

Title: “Mild” CFTR genetic variants might be associated with a lower than expected probability of developing CF
Authors
A Boussaroque, M-P Audrézet, C Raynal, I Sermet-Gaudelus, T Bienvenu, C Férec, A Bergougnoux, M Lopez, V Scotet, A Munck, E Girodon
References
J Cyst Fibros . 2020 Apr 20;S1569-1993(20)30098-9. doi: 10.1016/j.jcf.2020.03.019.
Keywords
CFSPID, CFTR, Inconclusive cases, Newborn screening, Penetrance
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Scientific Abstract

April 2020

Title: Resting energy expenditure in cystic fibrosis patients decreases after lung transplantation, which improves applicability of prediction equations for energy requirement
Authors
Francis M Hollander-Kraaijeveld, Anne-Sophie van Lanen, Nicole M de Roos, Ed A van de Graaf, Harry GM Heijerman
References
J Cyst Fibros. 2020 Apr 11. pii: S1569-1993(20)30092-8. doi: 10.1016/j.jcf.2020.03.013. 
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Scientific Abstract

April 2020

Title: Caring for gender diverse youth with cystic fibrosis
Authors
Kacie M. Kidd; Gina M. Sequeira; Raina V. Voss; Daniel Weiner; Bonnie W. Ramsey; Raksha Jain; Traci M. Kazmerski
References
J Cyst Fibros. 2020 Apr 5;S1569-1993(20)30074-6. doi: 10.1016/j.jcf.2020.03.003.
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Scientific Abstract