All Resources

This page provides filters and search facilities across all types of CF resources contained within the ECFS website.

Additionally, you can visit the specific resource type pages as follows:

More information on CF publications can be found here: Publications

October 2023

Title: Frequency of urinary and anal incontinence in patient suffering from cystic fibrosis and their impact on quality of life

Authors

Katelyne Hubeaux, Laetitia Gueganton, Emmanuel Nowak, Baptiste Arnouat, Chantal Belleguic, Isabelle Danner-Boucher, Julie Mankikian, Annabelle Payet, Thierry Urban, Marion Buyse, Sophie Ramel

References

J Cyst Fibros. 2023 Oct 29:S1569-1993(23)01659-4. doi: 10.1016/j.jcf.2023.10.011.

Keywords

Faecal incontinence, Quality of life, Urinary incontinence

CF Research News Article

Scientific Abstract

October 2023

Title: Unlocking the Secrets of Cystic Fibrosis: A Genetic Study of people with CF in Germany

Authors

Simone Ahting, Lutz Nährlich, Inka Held, Constance Henn, Angelika Krill, Kerstin Landwehr, Jochen Meister, Susanne Nährig, Anna Nolde, Katharina Remke, Renate Ruppel,, Annette Sauer-Heilborn, Martin Schebek, Gudrun Schopper, Bernhard Schulte-Hubbert, Carsten Schwarz, Christina Smaczny, Sabine Wege, Julia Hentschel; Registry Working Group of the German CF Registry

References

J Cyst Fibros. 2023 Oct 20:S1569-1993(23)00928-1. doi: 10.1016/j.jcf.2023.10.009.

Keywords

Diagnostics, Genetics, Genotyping, Next-generation-sequencing

CF Research News Article

Scientific Abstract

October 2023

Title: Pulmonary exacerbation treatment location

Authors

Laura S. Gold, Ryan N. Hansen, Sonya L. Heltshe, Patrick A. Flume, Christopher H. Goss, Natalie E. West, Don B. Sanders, Larry Kessler

References

J Cyst Fibros. 2023 Oct 5:S1569-1993(23)00926-8. doi: 10.1016/j.jcf.2023.10.004.

Keywords

Home intravenous treatment, Hospitalization, Insurance, Pulmonary exacerbation, Sex

CF Research News Article

Scientific Abstract

October 2023

Title: Repeating bacterial cultures in people with cystic fibrosis (CF) hospitalised with chest exacerbations may not be useful

Authors

Wendy Hc Song, Kendrew Sk Wong, David M Goldfarb, Jeffrey N Bone, Jonathan H Rayment

References

J Cyst Fibros. 2023 Oct 12:S1569-1993(23)00930-X. doi: 10.1016/j.jcf.2023.10.007.

Keywords

Bacterial cultures, Pediatric, Pulmonary exacerbation

CF Research News Article

Scientific Abstract

October 2023

Title: Testing the Usability, Acceptability, and Appropriateness of a Web-Based Reproductive Decision Support Tool for Cystic Fibrosis

Authors

Traci M Kazmerski, Olivia M Stransky, Catherine E Wright, Maya Albanowski, Joseph M Pilewski, Mehret Birru Talabi, Lisa S Callegari, Judy C Chang, Kaleab Z Abebe, Elizabeth Miller, Ashley Deal, Raelynn O'Leary, Sonya Borrero

References

J Cyst Fibros. 2023 Oct 11:S1569-1993(23)00924-4. doi: 10.1016/j.jcf.2023.10.003.

Keywords

decision support tool, Feasibility, patient-provider communication self-efficacy, reproductive health

CF Research News Article

Scientific Abstract

October 2023

Title: Impact of Highly Effective Modulator Therapy on Sinus Disease and Health Status: 2-year Follow-up

Authors

Daniel M Beswick, Aastha Khatiwada, Jessa E Miller, Stephen M Humphries, Alexandra Wilson, Eszter K Vladar, David A Lynch, Jennifer L Taylor-Cousar

References

J Cyst Fibros. 2023 Oct 5:S1569-1993(23)00917-7. doi: 10.1016/j.jcf.2023.09.013.

Keywords

Chronic rhinosinusitis, Computed tomography, Highly effective modulator therapy, Machine learning, Quality of life

CF Research News Article

Scientific Abstract

October 2023

Title: Understanding patient views on use of Trikafta after lung transplant

Authors

Dave Young, Lauren E Bartlett, Jennifer Guimbellot, Tijana Milinic, Nora Burdis, Eliana R Gill, Erika D Lease, Christopher H Goss, Siddhartha G Kapnadak, Kathleen J Ramos

References

J Cyst Fibros. 2023 Oct 3:S1569-1993(23)00921-9. doi: 10.1016/j.jcf.2023.09.017.

CF Research News Article

Scientific Abstract