Annual Reports
Each calendar year the ECFS Patient Registry publishes a detailed Annual Report with demographic and clinical data from people with CF throughout Europe and neighbouring countries who agree to participate in the Registry.
Before we publish the full annual data report, we publish a Highlights Report with some key findings, figures and graphs. The highlights report was designed with people with CF, their families and healthcare team members in mind so that they can have earlier access to the most significant information.
ECFS Patient Registry Annual Report 2023 - Highlights Report 2023 - Slide Deck Graphs Annual Report 2023
We have created a powerpoint presentation with many of the figures and graphs from the full annual data report. We strongly encourage you to include these in your own presentations. If you use any of the material please cite:
ECFSPR Annual Report 2023, Zolin A, Adamoli A, Bakkeheim E, 2025.
ECFS Patient Registry Annual Report 2022 - Highlights Report 2022 Slide Deck_Graphs_Annual Report _2022
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader. If used please cite:
ECFSPR Annual Report 2022, Zolin A, Adamoli A, Bakkeheim E, van Rens J et al, 2024
ECFS Patient Registry Annual Report 2021 - At-a-glance Report 2021 Slide Deck_Graphs_Annual Report _2021
Graphs from the annual report to use in presentations are available in the slide deck. If used, please cite:
ECFSPR Annual Report 2021, Zolin A, Orenti A, Jung A, van Rens J et al, 2023.
ECFS Patient Registry Annual Report 2020 - At-a-glance Report 2020
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader. If used please cite:
ECFSPR Annual Report 2020, Orenti A, Zolin A, Jung A, van Rens J et al, 2022.
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader. If used please cite:
ECFSPR Annual Report 2019, Orenti A, Zolin A, Jung A, van Rens J et al, 2021.
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader. If used please cite:
ECFSPR Annual Report 2018, Zolin A, Orenti A, Naehrlich L, Jung A, van Rens J et al, 2020.
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. If used please cite:
ECFSPR Annual Report 2017, Zolin A, Orenti A, Naehrlich L, van Rens J et al, 2019.
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
ECFSPR Annual Report 2016, Orenti A, Zolin A, Naehrlich L, van Rens J et al, 2018.
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
ECFSPR Annual Report 2015, Zolin A, Naehrlich L, van Rens J et al., 2017
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
ECFSPR Annual Report 2014, Zolin A, McKone EF, van Rens J et al., 2016
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
ECFSPR Annual Report 2013, Zolin A, McKone EF, van Rens J et al., 2016
Images from this report may be used in presentations, provided it will include the following cite:
ECFSPR Annual Report 2012, Zolin A, McKone E, Nährlich L, van Rens J et al., 2017
Images from this report may be used in presentations, provided it will include the following cite:
ECFSPR Annual Report 2011, Zolin A, McKone E, Nährlich L, van Rens J et al., 2017
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
ECFSPR Annual Report 2010, Zolin A, McKone EF, van Rens J et al., 2014
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
ECFSPR Annual Report 2008-2009, L Viviani, A Zolin, HV Olesen et al, 2012
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
ECFS Patient Registry Report on 2007 data; Hanne Olesen et al, 2010
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
European Cystic Fibrosis Registry Report on 2006 data; Hanne Olesen et al, 2009, ECFS
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
European Cystic Fibrosis Registry Report on 2004/5 data; Hanne Olesen et al, 2009, ECFS
Images from this presentation may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to clipboard. However if used please cite:
European Cystic Fibrosis Registry Report on 2003 data; Eitan Kerem et al, 2006, ECFS