Data Request Fees

Data applications will be subject to a fee depending on the nature and source of the request.

Composition of the fee:

The ECFSPR charges a fee for reviewing the application, whether the request is approved or not. To promote and stimulate research in CF, the application review fee will be waived for researchers and research groups. 

A. Academic researchers ECFS Members: free of charge
B. Patient organisations: free of charge

C. Independent researchers/research groups:

Free of charge
Data extraction3:
Free of charge
Data analysis4:
€ 250.00 per hour (equal to the number of hours spent on the project for the analyses)

D. Industry: 


€ 5,000.00

If the initial application needs to be amended and resubmitted an additional € 250,00 will be charged;

Feasibility2 & data-extraction3:
Data analysis4:
Min. € 25,000.00, to be decided on a case by case basis;
€ 250.00 per hour (equal to the number of hours spent on the analyses);
Overhead :
50% of the hours for data–analysis. 

1 Handling: the act or process of processing the data-application internally to the different committees for review  and approval.
2 Feasibility: the act or process of checking the availability of the required data.
Data-extraction: the act or process of retrieving data out of the database.
Data-analysis: the process of inspecting, cleaning, transforming and modelling the data (with the goal to highlight useful  information, suggest conclusions and support decision-making.