Annual Reports

Each calendar year the ECFS Patient Registry publishes a detailed Annual Report with demographic and clinical data from people with CF throughout Europe and neighbouring countries who agree to participate in the Registry.

Since this year we publish “At-a-glance Reports” with key information from the Annual Data Reports. The reports are created for people with CF, their families and healthcare team members so they have immediate access to the most significant information in a more accessible format. Take a look at the latest At-a-glance Report


ECFS Patient Registry Annual Data Report 2014 (pdf)
Images from this report maybe cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite: 
ECFSPR Annual Report 2014, Zolin A, McKone EF, van Rens J et al., 2016
ECFS Patient Registry Annual Data Report 2013 (pdf) - At-a-glance Report 2013
Images from this report maybe cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
ECFSPR Annual Report 2013, Zolin A, McKone EF, van Rens J et al., 2016
ECFS Patient Registry Annual Data Report 2012 (pdf)
Images from this report may be used in presentations, provided it will include the following cite:
ECFSPR Annual Report 2012, Zolin A, McKone E, Nährlich L, van Rens J et al.
ECFS Patient Registry Annual Data Report 2011 (pdf)
Images from this report may be used in presentations, provided it will include the following cite:
ECFSPR Annual Report 2011, Zolin A, McKone E, Nährlich L, van Rens J et al.
ECFS Patient Registry Annual Data Report 2010 (pdf)
Images from this report maybe cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite: 
ECFSPR Annual Report 2010, Zolin A, McKone EF, van Rens J et al., 2014
ECFSPR Annual Report 2008-2009 (pdf)
Images from this report maybe cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite: 
ECFSPR Annual Report 2008-2009, L Viviani, A Zolin, HV Olesen et al, 2012
ECFS Patient Registry Report on 2007 data (pdf)
Images from this report maybe cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite: 
ECFS Patient Registry Report on 2007 data; Hanne Olesen et al, 2010
Registry Report on 2006 data (pdf) 
Images from this report maybe cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite: 
European Cystic Fibrosis Registry Report on 2006 data; Hanne Olesen et al, 2009, ECFS
Registry Report on 2004/5 data (pdf)
Images from this report maybe cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite: 
European Cystic Fibrosis Registry Report on 2004/5 data; Hanne Olesen et al, 2009, ECFS
Registry Report on 2003 data (pdf)
Images from this presentation maybe cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to clipboard. However if used please cite:
European Cystic Fibrosis Registry Report on 2003 data; Eitan Kerem et al, 2006, ECFS