Annual Reports
Each calendar year the ECFS Patient Registry publishes a detailed Annual Report with demographic and clinical data from people with CF throughout Europe and neighbouring countries who agree to participate in the Registry.
We also publish At-a-glance Reports with key information from the Annual Data Reports. These reports are designed for people with CF, their families and healthcare team members so they have immediate access to the most significant information.
ECFS Patient Registry Annual Report 2022 - Highlights Report Slide Deck_Graphs_Annual Report _2022
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader. If used please cite:
ECFSPR Annual Report 2022, Zolin A, Adamoli A, Bakkeheim E, van Rens J et al, 2024
ECFS Patient Registry Annual Report 2021 - At-a-glance Report 2021 Slide Deck_Graphs_Annual Report _2021
Graphs from the annual report to use in presentations are available in the slide deck. If used, please cite:
ECFSPR Annual Report 2021, Zolin A, Orenti A, Jung A, van Rens J et al, 2023.
ECFS Patient Registry Annual Report 2020 - At-a-glance Report 2020
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader. If used please cite:
ECFSPR Annual Report 2020, Orenti A, Zolin A, Jung A, van Rens J et al, 2022.
ECFS Patient Registry Annual Report 2019 - At-a-glance Report 2019
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader. If used please cite:
ECFSPR Annual Report 2019, Orenti A, Zolin A, Jung A, van Rens J et al, 2021.
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader. If used please cite:
ECFSPR Annual Report 2019, Orenti A, Zolin A, Jung A, van Rens J et al, 2021.
ECFS Patient Registry Annual Data Report 2018 - At-a-glance Report 2018
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader. If used please cite:
ECFSPR Annual Report 2018, Zolin A, Orenti A, Naehrlich L, Jung A, van Rens J et al, 2020.
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader. If used please cite:
ECFSPR Annual Report 2018, Zolin A, Orenti A, Naehrlich L, Jung A, van Rens J et al, 2020.
ECFS Patient Registry Annual Data Report 2017 - At-a-glance Report 2017
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. If used please cite:
ECFSPR Annual Report 2017, Zolin A, Orenti A, Naehrlich L, van Rens J et al, 2019.
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. If used please cite:
ECFSPR Annual Report 2017, Zolin A, Orenti A, Naehrlich L, van Rens J et al, 2019.
ECFS Patient Registry Annual Data Report 2016 (pdf) - At-a-glance Report 2016
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
ECFSPR Annual Report 2016, Orenti A, Zolin A, Naehrlich L, van Rens J et al, 2018.
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
ECFSPR Annual Report 2016, Orenti A, Zolin A, Naehrlich L, van Rens J et al, 2018.
ECFS Patient Registry Annual Data Report 2015 (pdf) - At-a-glance Report 2015
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
ECFSPR Annual Report 2015, Zolin A, Naehrlich L, van Rens J et al., 2017
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
ECFSPR Annual Report 2015, Zolin A, Naehrlich L, van Rens J et al., 2017
ECFS Patient Registry Annual Data Report 2014 (pdf) - At-a-glance Report 2014
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
ECFSPR Annual Report 2014, Zolin A, McKone EF, van Rens J et al., 2016
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
ECFSPR Annual Report 2014, Zolin A, McKone EF, van Rens J et al., 2016
ECFS Patient Registry Annual Data Report 2013 (pdf) - At-a-glance Report 2013
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
ECFSPR Annual Report 2013, Zolin A, McKone EF, van Rens J et al., 2016
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
ECFSPR Annual Report 2013, Zolin A, McKone EF, van Rens J et al., 2016
ECFS Patient Registry Annual Data Report 2012 (pdf)
Images from this report may be used in presentations, provided it will include the following cite:
ECFSPR Annual Report 2012, Zolin A, McKone E, Nährlich L, van Rens J et al., 2017
Images from this report may be used in presentations, provided it will include the following cite:
ECFSPR Annual Report 2012, Zolin A, McKone E, Nährlich L, van Rens J et al., 2017
ECFS Patient Registry Annual Data Report 2011 (pdf)
Images from this report may be used in presentations, provided it will include the following cite:
ECFSPR Annual Report 2011, Zolin A, McKone E, Nährlich L, van Rens J et al., 2017
Images from this report may be used in presentations, provided it will include the following cite:
ECFSPR Annual Report 2011, Zolin A, McKone E, Nährlich L, van Rens J et al., 2017
ECFS Patient Registry Annual Data Report 2010 (pdf)
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
ECFSPR Annual Report 2010, Zolin A, McKone EF, van Rens J et al., 2014
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
ECFSPR Annual Report 2010, Zolin A, McKone EF, van Rens J et al., 2014
ECFSPR Annual Report 2008-2009 (pdf)
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
ECFSPR Annual Report 2008-2009, L Viviani, A Zolin, HV Olesen et al, 2012
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0 or above). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
ECFSPR Annual Report 2008-2009, L Viviani, A Zolin, HV Olesen et al, 2012
ECFS Patient Registry Report on 2007 data (pdf)
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
ECFS Patient Registry Report on 2007 data; Hanne Olesen et al, 2010
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
ECFS Patient Registry Report on 2007 data; Hanne Olesen et al, 2010
Registry Report on 2006 data (pdf)
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
European Cystic Fibrosis Registry Report on 2006 data; Hanne Olesen et al, 2009, ECFS
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
European Cystic Fibrosis Registry Report on 2006 data; Hanne Olesen et al, 2009, ECFS
Registry Report on 2004/5 data (pdf)
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
European Cystic Fibrosis Registry Report on 2004/5 data; Hanne Olesen et al, 2009, ECFS
Images from this report may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to the clipboard. However, if used please cite:
European Cystic Fibrosis Registry Report on 2004/5 data; Hanne Olesen et al, 2009, ECFS
Registry Report on 2003 data (pdf)
Images from this presentation may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to clipboard. However if used please cite:
European Cystic Fibrosis Registry Report on 2003 data; Eitan Kerem et al, 2006, ECFS
Images from this presentation may be cut and pasted into presentations using the snapshot tool in acrobat reader (v7.0). With the snapshot icon selected, outline the slide required. It will then automatically be pasted to clipboard. However if used please cite:
European Cystic Fibrosis Registry Report on 2003 data; Eitan Kerem et al, 2006, ECFS