Updated on 02 December 2019
Executive Committee:
Voting Members:

Lutz Naehrlich, Germany
Director ECFSPR

Andreas Jung , Switzerland
Vice-Director ECFSPR

Rebecca Cosgriff
United Kingdom

Meir Mei-Zahav
Israel

Valérie Storms
Belgium
Patient Representative
Non-Voting Members:
Christine Dubois, ECFS Executive Director
Silke van Koningsbruggen-Rietschel, CTN representative
Jacqui van Rens, ECFSPR Executive Coordinator
Steering Group
Steering Group Country Representatives
Country | Official Representative | Title | |
---|---|---|---|
Albania | Irena Kasmi | Single centre representative | irenakasmi@hotmail.com |
Armenia | Satenik Harutyunyan | Single centre representative | Satenik.harutyunyan@yahoo.com |
Austria | Andreas Pfleger | National coordinator | andreas.pfleger@medunigraz.at |
Belgium | Géraldine Daneau | National registry representative | geraldine.daneau@sciensano.be |
Bosnia | Amelina Selimovic | Single centre reporesentative | amina.selimovic@hotmail.com |
Bulgaria | Guergana Petrova | Single centre representative | Gal_ps@yahoo.co.uk |
Croatia | Duška Tješić-Drinković | Single centre representative | duska.td@gmail.com |
Cyprus | Panayiotis Yiallouros | Single centre representative | yiallouros.panayiotis@ucy.ac.cy |
Czech Republic | Pavel Drevinek | National registry representative | pavel.drevinek@Lfmotol.cuni.cz |
Denmark | Hanne Vebert Olesen | National registry representative | hvo@dadlnet.dk |
France | Lydie Lemonnier | National registry representative | llemonnier@vaincrelamuco.org |
Georgia | Tsitsino Parulava | Single centre representative | t.parulava@evex.ge |
Germany | Lutz Naehrlich | National registry representative | Lutz.Naehrlich@paediat.med.uni-giessen.de |
Greece | Elpis Hatziagorou | National registry representative | elpcon@otenet.gr |
Hungary | Andrea Párniczky | National registry representative | andrea.parniczky@gmail.com |
Ireland | Godfrey Fletcher | National registry representative | gfletcher@cfri.ie |
Israel | Meir Mei-Zahav | National registry representative | meir_zahav@clalit.org.il |
Italy | Rita Padoan | National registry representative | ritaf54@gmail.com |
Latvia | Liga Berke | Single centre representative | liiga.berke@gmail.com |
Lithuania | Kęstutis Malakauskas | Single centre representative | Kestutis.Malakauskas@lsmuni.lt |
Luxemburg | Marc Schlesser | Single centre representative | schlesser.Marc@chl.lu |
Macedonia | Stojka Fustik | Single centre representative | stojkaf@yahoo.com |
Moldova | Oxana Turcu | Single centre representative | oxana.turcu@usmf.md |
Netherlands | Vincent Gulmans | National registry representative | V.Gulmans@ncfs.nl |
Norway | Egil Bakkeheim | National registry representative | eblars@hotmail.com |
Poland | Lukasz Wozniacki | Single centre representative | lukasz.wozniacki@szpitaldziekanow.pl |
Portugal | Luisa Pereira | National registry representative | mluisafpereira@gmail.com |
Romania | Livio Pop Laurentiu | Single centre representative | liviupop63@yahoo.com |
Russia | Nataliya Kashirskaya | National registry representative | kashirskayanj@mail.ru |
Serbia | Milan Rodic | Single centre representative | milan.rodic73@gmail.com |
Slovakia | Hana Kayserova | National registry representative | kayserov.hana@gmail.com |
Slovenia | Uroš Krivec | Single centre representative | uros.krivec@kclj.si |
Spain | Lola Pastor Vivero | National coordinator | mariadolores.pastorvivero@osakidetza.eus |
Sweden | Isabelle de Monestrol | National registry representative | isabelle.demonestrol@ki.se |
Switzerland | Andreas Jung | National coordinator | Andreas.Jung@kispi.uzh.ch |
Turkey | Deniz Dogru Ersöz | National registry representative | ddogru@hacettepe.edu.tr |
Ukraine | Halyna Makukh | Single centre representative | makukh.h@ihp.lviv.ua |
United Kingdom | Rebecca Cosgriff | National registry representative | Rebecca.cosgriff@cysticfibrosis.org.uk |
Additional Voting Member:
Valérie Storms, CF Europe Representative
Non-Voting Members:
Bruce Marshall, CFF Representative
Silke van Koningsbruggen-Rietschel, CTN representative
Jacqui van Rens, ECFSPR Executive Coordinator
Annalisa Orenti and Anna Zolin, Statistical Experts
Alice Fox and Marko Krasnyk, Trusted Third Party
Scientific Committee:
Pierre-Régis Burgel
Siobhán Carr
Elpis Hatziagorou
Anders Lindblad
Milan Macek
Elise Lammertyn, CF Europe Representative
Anna Zolin, Statistical Expert