Updated on 10 April 2025

Executive Committee:

Voting Members:

Egil Bakkeheim, Norway
Director ECFSPR

Laura Kirwan, Ireland

Uroš Krivec, Slovenia

Lutz Naehrlich, Germany
Pharmacovigilance Study Manager


Kerry Laidlaw, United Kingdom
Patient Representative


Domenique Zomer, The Netherlands


Non-Voting Members:

Christine Dubois, ECFS Executive Director
Lieven Dupont, ECFS-CTN representative
Jacqui van Rens, ECFSPR Executive Coordinator


Steering Group

Steering Group Country Representatives


CountryOfficial RepresentativeTitleEmail
AlbaniaIrena KasmiSingle centre representativeirenakasmi@hotmail.com
ArmeniaSatenik HarutyunyanSingle centre representativemycfmail1973@gmail.com
AustriaAndreas PflegerNational coordinatorandreas.pfleger@medunigraz.at
BelarusSvetlana KeeganSingle centre representativesveta-lsv@mail.ru
Belgium Géraldine DaneauNational registry representativegeraldine.daneau@sciensano.be
Bulgaria Guergana PetrovaSingle centre representativeGal_ps@yahoo.co.uk
CroatiaDuška Tješić-DrinkovićSingle centre representativeduska.tjesic-drinkovic@zg.htnet.hr
CyprusPanayiotis YiallourosSingle centre representativeyiallouros.panayiotis@ucy.ac.cy
Czech RepublicPavel DrevinekNational registry representativepavel.drevinek@Lfmotol.cuni.cz
Denmark Hanne Vebert OlesenNational registry representativehannoles@rm.dk
EstoniaMaire VasarSingle centre representativeMaire.Vasar@kliinikum.ee
FinlandVarpu EleniusSingle centre representativevarpu.elenius@tyks.fi
France Antoine BessouNational registry representativeabessou@vaincrelamuco.org
GeorgiaDodo AgladzeSingle centre representativedoduna_agladze@yahoo.com
Germany Lutz NaehrlichNational registry representativeLutz.Naehrlich@paediat.med.uni-giessen.de
Greece Elpis HatziagorouNational registry representativeelpcon@otenet.gr
Hungary Andrea PárniczkyNational registry representativeandrea.parniczky@gmail.com
IcelandHelga ElídóttirSingle centre representativehelgael@landspitali.is
Ireland Godfrey FletcherNational registry representativegfletcher@cfri.ie
Israel Meir Mei-ZahavNational registry representativemeir_zahav@clalit.org.il
ItalyFabio MojoNational registry representativefabio.majo@opbg.net
Latvia Elina AleksejevaSingle centre representativeelina.aleksejeva@bkus.lv
Lithuania Kęstutis MalakauskasSingle centre representativeKestutis.Malakauskas@lsmuni.lt
Luxemburg    Anna-Maria CharatsiSingle centre representativeCharatsi.Anna-Maria@chl.lu
MacedoniaStojka Fustik 
Tatjana Jakjovska		Single centre representativestojkaf@yahoo.com 
tatjana.jakjovska@medf.ukim.edu.mk
MoldovaCristina TomacinschiiSingle centre representativecristinatomacinschii@gmail.com
MontenegroTomo PlamenacSingle centre representativetplamenac@gmail.com
Netherlands Domenique ZomerNational registry representatived.zomer@ncfs.nl
NorwayAnita Senstad WathneNational registry representativeasenstad@gmail.com
PolandLukasz WozniackiSingle centre representativelukasz.wozniacki@szpitaldziekanow.pl
Portugal Luisa PereiraNational registry representativemluisafpereira@gmail.com
RomaniaLiviu PopSingle centre representativeliviupop63@yahoo.com
Russia Elena KondratyevaNational registry representativeelenafpk@mail.ru 
SerbiaMilan RodicSingle centre representativemilan.rodic73@gmail.com
SlovakiaHana KayserovaNational registry representativekayserov.hana@gmail.com
Slovenia Uroš KrivecSingle centre representativeuros.krivec@kclj.si
Spain Lola Pastor ViveroNational coordinatormariadolores.pastorvivero@osakidetza.eus
Sweden Christina KrantzNational registry representativechristina.krantz@akademiska.se
Switzerland Andreas JungNational coordinatorAndreas.Jung@kispi.uzh.ch
TurkeyDeniz Dogru ErsözNational registry representativeddogru@hacettepe.edu.tr
UkraineHalyna MakukhSingle centre representativemakukh_halyna@ukr.net
United KingdomSarah ClarkeNational registry representativeSarah.Clarke@cysticfibrosis.org.uk


Additional Voting Member:

Kerry Laidlaw, Patient Representative

Non-Voting Members:

Bruce Marshall, CFF Representative
Lieven Dupont, CTN representative
ECFSPR: Jacqui van Rens, Anna Zolin, Annalisa Orenti, Simone Gambazza, Alice Fox, Marko Krasnyk, Silvia Lorca Mayor, Panagiota Gkolia, Vibha Prasad, Toni Enguídanos-Nieto

Scientific Committee:

Pierre-Régis Burgel
Siobhán Carr
Milan Macek
Dorota Sands 
Daan Caudri 
Elpis Hatziagorou
Jamie Duckers
Elise Lammertyn, CF Europe Representative
Statistical Experts - Anna Zolin, Annalisa Orenti, Simone Gambazza 

Data Controller:

Ted André, Cranium