Updated on 26 February 2020

Executive Committee:

Voting Members:

Lutz Naehrlich, Germany
Director ECFSPR

Andreas Jung ,  Switzerland
Vice-Director  ECFSPR

Rebecca Cosgriff
United Kingdom

Elpis Hatziagorou
Greece

Meir Mei-Zahav
Israel

Valérie Storms
Belgium
Patient Representative

Non-Voting Members:

Christine Dubois, ECFS Executive Director
Silke van Koningsbruggen-Rietschel, CTN representative
Jacqui van Rens, ECFSPR Executive Coordinator


Steering Group

Steering Group Country Representatives


CountryOfficial RepresentativeTitleEmail
AlbaniaIrena KasmiSingle centre representativeirenakasmi@hotmail.com
ArmeniaSatenik HarutyunyanSingle centre representativeSatenik.harutyunyan@yahoo.com
AustriaAndreas PflegerNational coordinatorandreas.pfleger@medunigraz.at
Belarus
Svetlana Keegan
Single centre representative
sveta-lsv@mail.ru
Belgium Géraldine DaneauNational registry representativegeraldine.daneau@sciensano.be
BosniaAmelina SelimovicSingle centre reporesentativeamina.selimovic@hotmail.com
Bulgaria Guergana PetrovaSingle centre representativeGal_ps@yahoo.co.uk
CroatiaDuška Tješić-DrinkovićSingle centre representative duska.td@gmail.com
CyprusPanayiotis YiallourosSingle centre representativeyiallouros.panayiotis@ucy.ac.cy
Czech RepublicPavel DrevinekNational registry representativepavel.drevinek@Lfmotol.cuni.cz
Denmark Hanne Vebert OlesenNational registry representativehvo@dadlnet.dk
France Lydie LemonnierNational registry representativellemonnier@vaincrelamuco.org
GeorgiaTsitsino ParulavaSingle centre representativet.parulava@evex.ge
Germany Lutz NaehrlichNational registry representativeLutz.Naehrlich@paediat.med.uni-giessen.de
Greece Elpis HatziagorouNational registry representativeelpcon@otenet.gr
Hungary Andrea PárniczkyNational registry representativeandrea.parniczky@gmail.com
Ireland Godfrey FletcherNational registry representativegfletcher@cfri.ie
Israel Meir Mei-ZahavNational registry representativemeir_zahav@clalit.org.il
Italy Rita PadoanNational registry representativeritaf54@gmail.com
Latvia Liga BerkeSingle centre representativeliiga.berke@gmail.com
Lithuania Kęstutis MalakauskasSingle centre representativeKestutis.Malakauskas@lsmuni.lt
Luxemburg    Marc SchlesserSingle centre representativeschlesser.Marc@chl.lu
MacedoniaStojka FustikSingle centre representativestojkaf@yahoo.com
MoldovaOxana TurcuSingle centre representativeoxana.turcu@usmf.md
Netherlands Vincent GulmansNational registry representativeV.Gulmans@ncfs.nl
NorwayEgil BakkeheimNational registry representativeeblars@hotmail.com
PolandLukasz WozniackiSingle centre representativelukasz.wozniacki@szpitaldziekanow.pl
Portugal Luisa PereiraNational registry representativemluisafpereira@gmail.com
RomaniaLivio Pop LaurentiuSingle centre representativeliviupop63@yahoo.com
Russia Nataliya KashirskayaNational registry representativekashirskayanj@mail.ru
SerbiaMilan RodicSingle centre representativemilan.rodic73@gmail.com
SlovakiaHana KayserovaNational registry representativekayserov.hana@gmail.com
Slovenia Uroš KrivecSingle centre representativeuros.krivec@kclj.si
Spain Lola Pastor ViveroNational coordinatormariadolores.pastorvivero@osakidetza.eus
Sweden Isabelle de MonestrolNational registry representativeisabelle.demonestrol@ki.se
Switzerland Andreas JungNational coordinatorAndreas.Jung@kispi.uzh.ch
TurkeyDeniz Dogru ErsözNational registry representativeddogru@hacettepe.edu.tr
UkraineHalyna MakukhSingle centre representativemakukh.h@ihp.lviv.ua
United KingdomRebecca CosgriffNational registry representativeRebecca.cosgriff@cysticfibrosis.org.uk


Additional Voting Member:

Valérie Storms, CF Europe Representative

Non-Voting Members:

Bruce Marshall, CFF Representative
Silke van Koningsbruggen-Rietschel, CTN representative
Jacqui van Rens, ECFSPR Executive Coordinator
Annalisa Orenti and Anna Zolin, Statistical Experts
Alice Fox and Marko Krasnyk, Trusted Third Party

Scientific Committee:

Pierre-Régis Burgel
Siobhán Carr
Elpis Hatziagorou
Anders Lindblad
Milan Macek
Elise Lammertyn, CF Europe Representative
Anna Zolin, Statistical Expert

Data Controller:

Valérie Storms