Updated on 04 April 2019

Executive Committee:

Voting Members:

Lutz Naehrlich, Germany
Director ECFSPR

Rebecca Cosgriff
United Kingdom

Andreas Jung 
Switzerland

Meir Mei-Zahav
Israel

Valérie Storms
Belgium
Patient Representative

Non-Voting Members:

Christine Dubois, ECFS Executive Director
Silke van Koningsbruggen-Rietschel, CTN representative
Jacqui van Rens, ECFSPR Executive Coordinator


Steering Group

Steering Group Country Representatives


CountryOfficial RepresentativeTitleEmail
AlbaniaIrena KasmiSingle centre representativeirenakasmi@hotmail.com
ArmeniaSatenik HarutyunyanSingle centre representativeSatenik.harutyunyan@yahoo.com
AustriaAndreas PflegerNational coordinatorandreas.pfleger@medunigraz.at
Belgium Muriel ThomasNational registry representativeMuriel.Thomas@wiv-isp.be
BosniaAmelina SelimovicSingle centre reporesentativeamina.selimovic@hotmail.com
Bulgaria Guergana PetrovaSingle centre representativeGal_ps@yahoo.co.uk
CroatiaDuška Tješić-DrinkovićSingle centre representative duska.td@gmail.com
CyprusPanayiotis YiallourosSingle centre representativeyiallouros.panayiotis@ucy.ac.cy
Czech RepublicPavel DrevinekNational registry representativepavel.drevinek@Lfmotol.cuni.cz
Denmark Hanne Vebert OlesenNational registry representativehvo@dadlnet.dk
France Lydie LemonnierNational registry representativellemonnier@vaincrelamuco.org
GeorgiaTsitsino ParulavaSingle centre representativet.parulava@evex.ge
Germany Lutz NährlichNational registry representativeLutz.Naehrlich@paediat.med.uni-giessen.de
Greece Elpis HatziagorouNational registry representativeelpcon@otenet.gr
Hungary Rita UjhelyiNational registry representativeujhelyirita@t-online.hu
Ireland Godfrey FletcherNational registry representativegfletcher@cfri.ie
Israel Meir Mei-ZahavNational registry representativemeir_zahav@clalit.org.il
Italy Rita PadoanNational registry representativeritaf54@gmail.com
Latvia Zane TimpareSingle centre representativezanetimpare@inbox.lv
Lithuania Kęstutis MalakauskasSingle centre representativeKestutis.Malakauskas@lsmuni.lt
Luxemburg    Marc SchlesserSingle centre representativeschlesser.Marc@chl.lu
MacedoniaStojka FustikSingle centre representativestojkaf@yahoo.com
MoldovaOxana TurcuSingle centre representativeoxana.turcu@usmf.md
Netherlands Vincent GulmansNational registry representativeV.Gulmans@ncfs.nl
NorwayEgil BakkeheimNational registry representativeeblars@hotmail.com
PolandLukasz WozniackiSingle centre representativelukasz.wozniacki@szpitaldziekanow.pl
Portugal Luisa PereiraNational registry representativemluisafpereira@gmail.com
RomaniaLivio Pop LaurentiuSingle centre representativeliviupop63@yahoo.com
Russia Nataliya KashirskayaNational registry representativekashirskayanj@mail.ru
SerbiaMilan RodicSingle centre representativemilan.rodic73@gmail.com
SlovakiaHana KayserovaNational registry representativekayserov.hana@gmail.com
Slovenia Uroš KrivecSingle centre representativeuros.krivec@kclj.si
Spain Carlos Vazquez-CorderoNational coordinatorcarlos.vazquezcordero@osakidetza.net
Sweden Isabelle de MonestrolNational registry representativeisabelle.demonestrol@ki.se
Switzerland Andreas JungNational coordinatorAndreas.Jung@kispi.uzh.ch
TurkeyDeniz Dogru ErsözNational registry representativeddogru@hacettepe.edu.tr
UkraineHalyna MakukhSingle centre representativemakukh.h@ihp.lviv.ua
United KingdomRebecca CosgriffNational registry representativeRebecca.cosgriff@cysticfibrosis.org.uk


Additional Voting Member:

Valérie Storms, CF Europe Representative

Non-Voting Members:

Bruce Marshall, CFF Representative
Silke van Koningsbruggen-Rietschel, CTN representative
Jacqui van Rens, ECFSPR Executive Coordinator
Annalisa Orenti and Anna Zolin, Statistical Experts
Alice Fox and Marko Krasnyk, Trusted Third Party


Scientific Committee:

Siobhán Carr
Elpis Hatziagorou
Anders Lindblad
Milan Macek
Elise Lammertijn, CF Europe Representative
Anna Zolin, Statistical Expert