Updated 04 November 2020
The Organisation Committee of the
European Psychosocial Special Interest Group
The informal committee comprises of four psychosocial professionals active in CF care. Each member serves for a period of three years and takes on lead roles in organizing EPSIG.
The present committee was formed in 2017 with tenure to be renewed in 2020. It aims to build on the work of previous committee members who have been central in developing EPSIG and excellent ECFS pre-conference programmes. Current committee members are: Angelique Tijtgat, Social Worker, BE, Urszula Borawska, Psychologist, PL; Dagmar Brocke, Clinical Social Worker, NL; Annet Bongen, Medical Social Worker, NL; Sejal Patel, Clinical Psychologist, UK; Stina Järvholm, Psychologist, SE
Urszula Borawska (PL)Urszula started work as a psychologist in the CF Center at the Mother and Child Institute in Warsaw in 2002. She continues her clinical work at the Hospital in Dziekanów Leśny, where there is the largest paediatric CF Center in Poland. She received her PhD from the Medical University of Warsaw. As a member of the CF MDT, Urszula is mainly involved in diagnosis, psychological interventions and supporting children with CF and their families. Her research interests include emotional well-being, adherence and the quality of life of children, parents and healthy siblings. She actively collaborates with patient associations and organises lectures and workshops for parents of all chronically ill children.
Annet Bongen (NL)Annet is medical social worker at the CF Center, University Medical Centre Utrecht in the Netherlands. She started working in the CF Center in 2001 and works with adults with CF and their families. Annet also works with patients who have lung cancer and their families. She has completed training courses in Solution-Focused Therapy (SFT), Motivational Interviewing (MI), Minfulness-based Cognitive Therapy (MBCT) and Acceptance and Commitment Therapy (ACT).
Dagmar Brocke (NL)
Dagmar is a clinical social worker at the CF and Lung transplantation Center, University Hospital in Utrecht, The Netherlands. She started at UMC in 2004 and works with adult CF patients and patients who enter the lung transplant care pathway. Dagmar completed training in Solution-Focused Therapy (SFT), Motivational Interviewing (MI), Minfulness-Based Cognitive Therapy (MBCT) and Acceptance and Commitment Therapy (ACT) and uses these therapeutic modalities daily in clinical practice. Her special interests are psychosocial problems of CF-patients post-lung transplantation and fertility issues and prospective parenthood of CF patients after lung transplantation.
Angelique Tijtgat (BE)
Angelique is a Social Worker and Systemic Counsellor at the CF Center, University Hospital Brussels. She started working in the CF Center in 2004 where she has been working with children, adults and their family. Since 2011, she took several courses at the 'Interactie-Academie' where they are specialized in systems theory, communication and interactions between people. In 2017 she received her recognition Systemic Counsellor. Her special interests are parents and parenting (with CF).
Sejal Patel (UK)
Sejal is a clinical psychologist at the West of Scotland Adult Cystic Fibrosis Service, Queen Elizabeth University Hospital, Glasgow. Graduating with her DClinPsy from University College London, she has worked within Primary Care, Sexual Health & HIV, COPD & Asthma and CF services in London before moving to work with the Glasgow CF team in 2014. As an integrated member of the CF MDT, Sejal provides psychological assessment, formulation and intervention to adults with CF and their families, and works jointly with members of the CF MDT to support holistic care. She provides teaching and training to DClinPsy students at the University of Glasgow as well as to other healthcare staff. Her research interests include improving adherence in CF and non-diagnostic measures of emotional distress. Her main therapeutic approach is integrative; using CBT, ACT, Narrative Therapy and Mindfulness in her therapeutic work with a special interest in the 'Power, Threat, Meaning Framework' which is transdiagnostic.
Stina Järvholm (SE)
Stina works as a psychologist at CF center at Sahlgrenska University hospital, Gothenburg, Sweden. In Sweden, there is four CF centers, all working with both adults and children. Stina started at the adult section of the center in 2012 and has since then combine the work at the CF center with her ongoing service at Reproductive Medicine. In 2017 she received her PhD from the Psychology Department at the University of Gothenburg. Her thesis focus on the psychological consequences of undergoing pre-implantation genetic diagnosis (PGD). PGD is a prenatal diagnosis, which is possible after undergoing IVF-treatment and potential for persons with the CF gene. Her areas of interest in research is psychological aspects in reproductive medicine as well as screening regarding mental health among persons with CF. She is in several collaborations with the Swedish CF patient association for example setting-up programs for peer support and contributes in patient headed podcasts.