All Resources

This page provides filters and search facilities across all types of CF resources contained within the ECFS website.

Additionally, you can visit the specific resource type pages as follows:

More information on CF publications can be found here: Publications

June 2011

Title: Medical needs of cystic fibrosis patients and policies for fair co-operation between small and middle-sized companies and patient organizations
References
Journal of Cystic Fibrosis Volume 10 (2011) S110-S113
Title: Recommendations for the classification of diseases as CFTR-related disorders
References
Journal of Cystic Fibrosis Volume 10 (2011) S86-S102
Title: Measuring health-related quality of life in clinical trials in cystic fibrosis
References
Journal of Cystic Fibrosis Volume 10 (2011) S82-S85
Title: Chronic Pseudomonas aeruginosa infection definition: EuroCareCF Working Group report
References
Journal of Cystic Fibrosis Volume 10 (2011) S75-S78
Title: Pulmonary exacerbation: Towards a definition for use in clinical trials. Report from the EuroCareCF Working Group on outcome parameters in clinical trials
References
Journal of Cystic Fibrosis Volume 10 (2011) S79-S81
Title: Guideline on the design and conduct of cystic fibrosis clinical trials: The European Cystic Fibrosis Society–Clinical Trials Network (ECFS-CTN)
References
Journal of Cystic Fibrosis Volume 10 (2011) S67-S74
Title: New clinical diagnostic procedures for cystic fibrosis in Europe
References
Journal of Cystic Fibrosis Volume 10 (2011) S53-S66
Title: Guiding principles on how to manage relevant psychological aspects within a CF team: Interdisciplinary approaches
References
Journal of Cystic Fibrosis Volume 10 (2011) S45-S52
Title: End of Life Care for Patients with Cystic Fibrosis
References
Journal of Cystic Fibrosis Volume 10 (2011) S37-S44
Title: Best practice guidance for the diagnosis and management of cystic fibrosis-associated liver disease
References
Journal of Cystic Fibrosis Volume 10 (2011) S29-S36
Title: Guidelines for the diagnosis and management of distal intestinal obstruction syndrome in cystic fibrosis patients
References
Journal of Cystic Fibrosis Volume 10 (2011) S24-S28
Title: European cystic fibrosis bone mineralisation guidelines
References
Journal of Cystic Fibrosis Volume 10 (2011) S16-S23
Title: The implementation of standards of care in Europe: State of the art
References
Journal of Cystic Fibrosis Volume 10 (2011) S7-S15

December 2010

Title: Clinical Care Guidelines for Cystic Fibrosis-Related Diabetes
References
Diabetes Care Dec.2010; Vol 33 no 12:2697-2708
Theme
Diabetes

November 2010

Title: EuroCareCF: Report on the demographics of cystic fibrosis in 35 European countries
References
(European Coordination Action for Research in Cystic Fibrosis; EC FP6 project no. LSHM-CT-2005-018932).

September 2010

Title: Guidelines on the early management of infants diagnosed with cystic fibrosis following newborn screening
References
Journal of Cystic Fibrosis. 2010 Sep;9(5):323-329
Theme
Care of patients with CF, Clinical Trials, Pregnancy with CF
Title: Travelling with cystic fibrosis: Recommendations for patients and care Team members
References
Journal of Cystic Fibrosis Volume 9 (2010) 385-399

August 2010

Title: Cystic Fibrosis Pulmonary Guidelines Pulmonary Complications: Hemoptysis and Pneumothorax
References
Am J Respir Crit Care Med 2010, Vol 182: M298-306
Theme
Lung Disease and Infection

May 2010

Title: Benchmarks for Cystic Fibrosis carrier screening: A European consensus document
References
Journal of Cystic Fibrosis. 2010 May;9(3):165-178
Theme
Diagnosis/Screening

December 2009

Title: Cystic Fibrosis Foundation Practice Guidelines for the Management of Infants with Cystic Fibrosis Transmembrane Conductance Regulator-Related Metabolic Syndrome during the First two Years of Life and Beyond
References
The Journal of Pediatrics, vol. 155, No. 6, Suppl. 4: S106-S116
Theme
Care of patients with CF, Clinical Trials, Pregnancy with CF
Title: Cystic Fibrosis Foundation Evidence-Based Guidelines for Management of Infants with Cystic Fibrosis
References
The Journal of Pediatrics, vol. 155, No. 6, Suppl. 4: S73-S93
Theme
Care of patients with CF, Clinical Trials, Pregnancy with CF
Title: Management of Infants with Cystic Fibrosis: A Summary of the Evidence for the cystic Fibrosis Foundation Working Group on Care of Infants with Cystic Fibrosis
References
The Journal of Pediatrics, vol. 155, No. 6, Suppl. 4: S94-S105
Theme
Care of patients with CF, Clinical Trials, Pregnancy with CF

November 2009

Title: Cystic Fibrosis Pulmonary Guidelines: Treatment of Pulmonary Exacerbations
References
American Journal of Respiratory and Critical Care Medicine. 2009; 180:802-808
Theme
Lung Disease and Infection

September 2009

Title: Inhaled medications and inhalation devices for lung disease in patients with Cystic Fibrosis: A European Consensus
References
Journal of Cystic Fibrosis. 2009 Sep;8(5):295-315
Theme
Lung Disease and Infection

August 2009

Title: BTS guidelines for home oxygen in children
References
Thorax.2009;64:ii1-ii26
Theme
Lung Disease and Infection
Title: EASL Clinical Practice Guidelines: Management of cholestatic liver disease
References
Journal of Hepatology. 2009; 51:237-267
Theme
Nutrition/Gastroenterology

June 2009

Title: Airway-clearance therapy guidelines and implementation
References
Respiratory Care. 2009;54(6):733-750; discussion 751-753
Theme
Physiotherapy/Exercise testing
Title: Inhaled medication and inhalation devices for lung disease in patients with cystic fibrosis: A European consensus
References
Journal of Cystic Fibrosis 2009; 8 : 295-315

May 2009

Title: Guidelines for the physiotherapy management of the adult, medical, spontaneously breathing patient
References
Thorax.2009;64:i1-i52
Theme
Physiotherapy/Exercise testing
Title: European best practice guidelines for cystic fibrosis neonatal screening
References
Journal of Cystic Fibrosis. 2009 May;8(3):153-173
Theme
Diagnosis/Screening
Title: European best practice guidelines for cystic fibrosis neonatal screening
References
Journal of Cystic Fibrosis Volume 8 (2009) 153-173

April 2009

Title: Cystic Fibrosis Pulmonary Guidelines: Airway Clearance Therapies
References
Respiratory Care. 2009; 54(4):522-537
Theme
Physiotherapy/Exercise testing

January 2009

Title: Best practice guidelines for molecular genetic diagnosis of cystic fibrosis and CFTR-related disorders – updated European recommendations
References
European Journal of Human Genetics. 2009;17:51-65
Theme
Diagnosis/Screening
Title: A European Consensus for the evaluation and management of infants with an equivocal diagnosis following newborn screening for cystic fibrosis
References
Journal of Cystic Fibrosis. 2009 Jan;8(1):71-78
Theme
Diagnosis/Screening

October 2008

Title: A European consensus for the evaluation and management of infants with an equivocal diagnosis following newborn screening for cystic fibrosis
References
Journal of Cystic Fibrosis 2009; 8 : 71-78

August 2008

Title: Guidelines for Diagnosis of Cystic Fibrosis in Newborns through Older Adults: Cystic Fibrosis Foundation Consensus Report
References
The Journal of Pediatrics. 2008: 153:S4-S14
Theme
Diagnosis/Screening
Title: Diagnosis of Cystic Fibrosis by Sweat Testing: Age-Specific Reference Intervals
References
The Journal of Pediatrics. 2008; 153(6):758-763
Theme
Diagnosis/Screening
Title: Management of Cystic Fibrosis-related diabetes (ISPAD Clinical Practice Consensus Guidelines)
References
Pediatric Diabetes 2008. 9(PartI):338-344
Theme
Diabetes

May 2008

Title: Evidence-based practice recommendations for nutrition-related management of children and adults with CF and pancreatic insufficiency: results of a systematic review
References
Journal of American Dietetic Association. 2008 May;108(5):832-839
Theme
Nutrition/Gastroenterology

March 2008

Title: Finding Consensus on the Physiotherapy Management of Asymptomatic Infants with Cystic Fibrosis
References
Pediatric Pulmonology. 2008;43:236-244
Theme
Physiotherapy/Exercise testing
Title: Consensus on the use and interpretation of cystic fibrosis mutation analysis in clinical practice
References
Journal of Cystic Fibrosis. 2008; 7:179-196
Theme
Diagnosis/Screening
Title: Consensus on the use and interpretation of cystic fibrosis mutation analysis in clinical practice
References
Journal of Cystic Fibrosis 2008; 7: 179-196

January 2008

Title: Guidelines for the management of pregnancy in women with cystic fibrosis
References
Journal of Cystic Fibrosis. 2008 Jan;7 Suppl 1:S2-32
Theme
Care of patients with CF, Clinical Trials, Pregnancy with CF
Title: Guidelines for the management of pregnancy in women with cystic fibrosis
References
Journal of Cystic Fibrosis Volume 7, Supplement 1, Pages S1-S32 (January 2008)

November 2007

Title: Cystic Fibrosis Pulmonary Guidelines: chronic medications for maintenance of lung health
References
American Journal of Respiratory and Critical Care Medicine. 2007; 176: 957-69
Theme
Lung Disease and Infection

July 2007

Title: Diagnostic sweat testing: the Cystic Fibrosis Foundation guidelines
References
The Journal of Pediatrics. 2007 Jul;151(1):85-9
Theme
Diagnosis/Screening

June 2007

Title: Current issues in quality improvement in cystic fibrosis
References
Clinics in Chest Medicine. 2007 Jun;28(2):459-72
Theme
Care of patients with CF, Clinical Trials, Pregnancy with CF

April 2007

Title: Update on enteral nutrition support for cystic fibrosis
References
Nutrition in Clinical Practice. 2007 Apr;22(2):223-32
Theme
Nutrition/Gastroenterology

February 2007

Title: Guidelines for the implementation of cystic fibrosis newborn screening programs: Cystic Fibrosis Foundation workshop report
References
Pediatrics. 2007 Feb;119(2):e495-518
Theme
Diagnosis/Screening
Title: Bone mineralisation in cystic fibrosis
References
Report of the UK CF Trust Bone Mineralisation Working Group
Theme
Bone health
Title: Clinical Trials in Cystic Fibrosis
References
Journal of Cystic Fibrosis 2007; 6: 85-90

January 2007

Title: Guidelines for the performance of the sweat test for the diagnosis of cystic fibrosis
References
Annals of Clinical Biochemistry. 2007 Jan;44(Pt 1):25-34
Theme
Diagnosis/Screening

November 2006

Title: Update on maintaining bone health in cystic fibrosis
References
Current Opinion in Pulmonary Medicine. 2006 Nov;12(6):453-8
Theme
Bone health

July 2006

Title: International guidelines for the selection of lung transplant candidates: 2006 update--a consensus report from the Pulmonary Scientific Council of the International Society for Heart and Lung Transplantation
References
Journal of Heart and Lung Transplantation. 2006 Jul;25(7):745-55
Theme
Transplantation

May 2006

Title: Australian Guidelines for the Performance of the Sweat Test for the Diagnosis of Cystic Fibrosis: Report from the AACB Sweat Testing Working Party
References
The Clinical Biochemist Reviews. 2006 May;27(2):S1-7
Theme
Diagnosis/Screening

September 2005

Title: Antimicrobial therapy for pulmonary pathogenic colonisation and infection by Pseudomonas aeruginosa in cystic fibrosis patients.
References
Clinical Microbiology and Infection. 2005 Sep;11(9):690-703.
Theme
Lung Disease and Infection

August 2005

Title: Eradication of early Pseudomonas aeruginosa infection
References
Journal of Cystic Fibrosis. 2005 Aug;4 Suppl 2:49-54
Theme
Lung Disease and Infection

May 2005

Title: Diagnosis of cystic fibrosis after newborn screening: the Australasian experience--twenty years and five million babies later: a consensus statement from the Australasian Paediatric Respiratory Group
References
Pediatric Pulmonology. 2005 May;39(5):440-6
Theme
Diagnosis/Screening

April 2005

Title: Immunisation in the current management of cystic fibrosis patients
References
Journal of Cystic Fibrosis 2005; 4: 77-87

March 2005

Title: Standards of care for patients with cystic fibrosis: a European consensus
References
Journal of Cystic Fibrosis. 2005 Mar;4(1):7-26
Theme
Care of patients with CF, Clinical Trials, Pregnancy with CF
Title: Guide to bone health and disease in cystic fibrosis
References
The Journal of Clinical Endocrinology & Metabolism. 2005 Mar;90(3):1888-96
Theme
Bone health
Title: Standards of care for patients with cystic fibrosis: A European consensus
References
Journal of Cystic Fibrosis 2005; 4: 7-26

December 2004

Title: Physiotherapy in infants and young children with cystic fibrosis: current practice and future developments
References
Journal of the Royal Society of Medicine. 2004;97 Suppl 44:8-25
(publication date estimated as December 2004, to be confirmed)
Theme
Physiotherapy/Exercise testing

November 2004

Title: Update on newborn screening for cystic fibrosis
References
Current Opinion in Pulmonary Medicine. 2004 Nov;10(6):500-4.
Theme
Diagnosis/Screening

June 2004

Title: Early intervention and prevention of lung disease in cystic fibrosis: a European consensus
References
Journal of Cystic Fibrosis. 2004 Jun;3(2):67-91
Theme
Lung Disease and Infection
Title: Management of Cystic Fibrosis related diabetes.
References
Report of the UK CF Trust Diabetes Working Group
Theme
Diabetes

March 2004

Title: Early intervention and prevention of lung disease in cystic fibrosis: a European consensus.
References
Journal of Cystic Fibrosis 2004; 3: 67-91.

January 2004

Title: Infection control in cystic fibrosis
References
Clinical Microbiology Reviews. 2004 Jan;17(1):57-71
Theme
Lung Disease and Infection

October 2003

Title: Pathophysiology and Management of Pulmonary Infections in Cystic Fibrosis
References
American Journal of Respiratory and Critical Care Medicine. 2003;168:918-951
Theme
Lung Disease and Infection
Title: Allergic bronchopulmonary aspergillosis in cystic fibrosis--state of the art: Cystic Fibrosis Foundation Consensus Conference
References
Clinical Infectious Diseases. 2003 Oct 1;37 Suppl 3:S225-64. Rev. Err. in: Clin Infect Dis. 2004 Jan 1;38(1):158
Theme
Lung Disease and Infection

August 2003

Title: Stratégies diagnostiques et thérapeutiques des troubles du métabolisme glucidique au cours de la mucoviscidose
References
Archieves de pédiatrie. 2003 ; 10 Suppl. 3: 475s-486s
Theme
Diabetes
Title: Stratégie de la thérapeutique des troubles du métabolisme du glucose dans la mucoviscidose
References
Archieves de pédiatrie. 2003 ; 10 Suppl. 3: 469s-474s
Theme
Diabetes
Title: Diabète de la mucoviscidose: physiopathologie et critères diagnostiques des troubles du métabolisme glucidique
References
Archieves de pédiatrie. 2003 ; 10 Suppl. 3: 462s-468s
Theme
Diabetes

September 2002

Title: Consensus report on nutrition for pediatric patients with cystic fibrosis
References

Journal of Pediatric Gastroenterology and Nutrition. 2002 Sep;35(3):246-59

Theme
Nutrition/Gastroenterology
Title: Standards and guidelines for CFTR mutation testing
References
Genetics in Medicine. 2002 Sep-Oct;4(5):379-91. Erratum in: Genet Med. 2002 Nov-Dec;4(6):471
Theme
Diagnosis/Screening

June 2002

Title: Nutrition in patients with cystic fibrosis: a European Consensus
References
Journal of Cystic Fibrosis. 2002 Jun;1(2):51-75
Theme
Nutrition/Gastroenterology
Title: Nutrition in patients with cystic fibrosis: a European consensus
References
Journal of Cystic Fibrosis 2002; 1: 67-91.

January 2002

Title: Clinical Guidelines for the physiotherapy management of cystic fibrosis
References
CF Trust Association of Chartered Physiotherapists in cystic fribrosis
Theme
Physiotherapy/Exercise testing

October 2000

Title: Antibiotic therapy against Pseudomonas aeruginosa in cystic fibrosis: a European consensus
References
European Respiratory Journal. 2000 Oct;16(4):749-67
Theme
Lung Disease and Infection

January 1999

Title: Recommendations for management of liver and biliary tract disease in cystic fibrosis. Cystic Fibrosis Foundation Hepatobiliary Disease Consensus Group
References
Journal of Pediatric Gastroenterology and Nutrition. 1999;28 Suppl 1:S1-13
(month of publication estimated as January 1999 - clarification required)
Theme
Nutrition/Gastroenterology

April 1998

Title: The diagnosis of cystic fibrosis: a consensus statement. Cystic Fibrosis Foundation Consensus Panel
References
The Journal of Pediatrics. 1998 Apr;132(4):589-95
Theme
Diagnosis/Screening

January 1998

Title: Lung transplantation in cystic fibrosis: consensus conference statement
References
Chest. 1998 Jan;113(1):217-26
Theme
Transplantation

December 1997

Title: National Institutes of Health consensus development conference statement on genetic testing for cystic fibrosis
References
Journal of Medical Screening. 1997;4(4):179-80
Theme
Diagnosis/Screening