Other Documents

AHP Consensus Conference - Documents

The AHP and nursing group collated some of the key evidence available on the clinimetric/psychometrics and feasibility of these outcome measures.

Clinimetric Properties of Exerise Tests

Aim: Identify and evaluate exercise tests for children and adults with CF

The following exercise tests are reviewed: 

• Incremental cycle ergometry (VO2peak/Wpeak)
• 6 Minute Walk Test
• Modified Shuttle Test – (adults only as no data found in children)

For each test, data on reliability, validity (concurrent, predictive, convergent, discriminate) and responsiveness were extracted. For ease of interpretation of the clinimetric property table, a summary has been presented (Table 1). Full data is presented separately for children and adults in Tables 2 to 6. An assessment of feasibility was undertaken for all tests (Table 7). Consensus within the team was reached on answers to four key questions relating to the use of exercise tests in research. For full document, click here.

Clinimetric Properties of Adherence Measures

Aim: Identify and evaluate tools to measure adherence

Adherence to chronic treatment regimens is a significant challenge for individuals diagnosed with cystic fibrosis (CF) (Barker & Quittner, 2010). Advances in CF care (e.g., newborn screening) and the development of new treatments have increased the time, complexity, and burden of the CF medical regimen. It is estimated that patients must now spend between two and four hours per day on treatment, which is reflected in low rates of adherence (Modi & Quittner, 2006; Tuchman et al., 2010). The negative consequences of poor adherence are significant and include: 1) more frequent symptoms, 2) increased hospitalizations, 3) greater stress and family conflict, 4) greater costs and health care utilization, and 5) greater morbidity and earlier mortality. For full document click here.