Publications

The 2025 European Cystic Fibrosis Society position statementon physical activity assessment in cystic fibrosis

Craig A. Williams, Brenda Button, Tiffany J. Dwyer , Elpis Hatziagorou, Kelly A. Mackintosh, Melitta A. McNarry, Dewi Paris, James Shelley, Helge Hebestreit, Judy Bradley and Mayara Silveira Bianchim, on behalf of the Exercise Working Group European CF Society

Journal: Eur Respir Rev 2025; 34: 240279
Available as a Free download - click here to access

Feasibility and inter-reporter variability of submaximal outcomes derived from cardiopulmonary exercise testing in people with advanced cystic fibrosis lung disease

Don S Urquhart, Patrick Jamieson, Paul Burns, Julia Braun, Helge Hebestreit, Thomas Radtke for the Prognostic value of CPET in CF study group
Journal: ERJ Open Res 2025; 11: 01001-2024
Available as a Free download - click here to access

Guidance and standard operating procedures for functional exercise testing in cystic fibrosis

Zoe L. Saynor , Mathieu Gruet, Melitta A. McNarry, Brenda Button, Lisa Morrison, Marlies Wagner, Abbey Sawyer, Helge Hebestreit, Thomas Radtke, Don S. Urquhart, on behalf of the European Cystic Fibrosis Society Exercise Working Group
Journal: European Respiratory Review 2023 32: 230029
Available as a Free download - click here to access

Cystic fibrosis related diabetes is not associated with maximal aerobic exercise capacity in cystic fibrosis: a cross-sectional analysis of an international multicenter trial

Thomas Radtke, Susi Kriemler, Lothar Stein, Chantal Karila, Don S Urquhart, David M Orenstein, Larry C Lands, Christian Schindler, Ernst Eber, Sarah R Haile, Helge Hebestreit on behalf of the ACTIVATE-CF Study Working Group
Journal: Journal of Cystic Fibrosis 22 (2023) 31–38
Available as a Free download - click here to access

‘Gold-standard’ field test is a nonsequitur

Don S. Urquhart, Helge Hebestreit, Zoe Saynor, Thomas Radtke, on behalf of the European Cystic Fibrosis Society Exercise Working Group

Journal: Pulmonology 29 (2023) 173
Available as a Free download - click here to access

Cardiopulmonary Exercise Testing Provides Additional Prognostic Information in Cystic Fibrosis

Helge Hebestreit, Erik H. J. Hulzebos, Jane E. Schneiderman, Chantal Karila, Steven R. Boas, Susi Kriemler, Tiffany Dwyer, Margareta Sahlberg, Don S. Urquhart, Larry C. Lands, Felix Ratjen, Tim Takken, Liobou Varanistkaya, Viktoria Rüucker, Alexandra Hebestreit, Jakob Usemann, and Thomas Radtke

for the Prognostic Value of CPET in CF Study Group

Am J Respir Crit Care Med. 2019 Apr 15;199(8):987-995. doi: 10.1164/rccm.201806-1110OC. PMID: 30321487
Available as a Free download - click here to access

CFTR Genotype and Maximal Exercise Capacity in Cystic Fibrosis: A Cross-Sectional Study

Thomas Radtke, Helge Hebestreit, Sabina Gallati, Jane E. Schneiderman, Julia Braun, Daniel Stevens, Erik H. J. Hulzebos, Tim Takken, Steven R. Boas, Don S. Urquhart, Larry C. Lands, Sergio Tejero, Aleksandar Sovtic, Tiffany Dwyer, Milos Petrovic, Ryan A. Harris, Chantal Karila, Daniela Savi, Jakob Usemann, Meir Mei-Zahav, Elpis Hatziagorou, Felix Ratjen, and Susi Kriemler; CFTR-Exercise Study Group

Ann Am Thorac Soc. 2018 Feb;15(2):209-216. doi: 10.1513/AnnalsATS.201707-570OC. Epub 2017 Nov 15.
Available as a Free download - click here to access

Statement on Exercise Testing in Cystic Fibrosis

Helge Hebestreit, Hubertus G.M. Arets, Paul Aurora, Steve Boas, Frank Cerny, Erik H.J. Hulzebos,  Chantal Karila,  Larry C. Lands, John D. Lowman, Anne Swisher, Don S. Urquhart

for the European Cystic Fibrosis Exercise Working Group

Respiration (DOI: 10.1159/000439057)
Available as a Free download - click here to access

On line supplement to Statement on Exercise Testing in Cystic Fibrosis

Helge Hebestreit, Hubertus G.M. Arets, Paul Aurora, Steve Boas, Frank Cerny, Erik H.J. Hulzebos, Chantal Karila,  Larry C. Lands, John D. Lowman, Anne Swisher, Don S. Urquhart

for the European Cystic Fibrosis Exercise Working Group

Supplementary Material available as a Free download - click here to access

Physical Activity Assessment in Cystic Fibrosis: A Position Statement

Bradley et al, on behalf of the Exercise Working Group European CF Society.
J Cyst Fibros. 2015 Jul 25. pii: S1569-1993(15)00126-5. doi: 10.1016/j.jcf.2015.05.011.

List of supplementary material/tables available on ECFS website

SupplMaterial - Survey of CFCentres Mar2015

SupplTable 1 - Characteristics activity monitors which Assess PA in CF Mar2015

SupplTable 2 - Reliability data obtained with PA monitors Mar2015

SupplTable 3 - Convergent validity of data obtained with objective PA monitors Mar2015

SupplTable 4 - Discriminate validity of data obtained with PA monitors Mar2015

SupplTable 5 - Correlation between data obtained with PA monitors and other OM in CF Mar2015

SupplTable 6 - Responsiveness of data obtained by PA monitors Mar2015

SupplTable 7 - Characterisitics of PA questionnaires and diaries which Assess PA in CF Mar2015

SupplTable 8 - Subjective Measures - Reliability Mar2015

SupplTable 9 - Subjective Measures - Convergent Validity Mar2015

SupplTable 10 - Subjective Measures - Discriminate Validity Mar2015

SupplTable 11 - Subjective Measures - Correlation Mar2015

SupplTable 12 - Subjective Measures - Responsiveness Mar2015