News

Next Annual ECFS NSWG Meeting


The next Annual Meeting will take place on Wednesday 9th June 2021 as an online event (a link to the event will be available in May).
The program is available here


New Book “Newborn Screening for CF”

Last year, the Working Group was asked to write a series of review articles on NBS for CF in collaboration with the International Journal of Newborn Screening (IJNS). We are happy that well-known authors contributed to this project to summarize the current knowledge of NBS for CF. All articles have been published and edited in a book. 

The articles and the book are available here

Guidance on the management of children with CRMS/CFSPID

Members of the working group have also written an updated guidance on the management of children with CRMS/CFSPID and defined key outcomes to evaluate performance of NBS programmes for CF. Article
 

Archives Newsletters

Newsletter (Issue 8 - July 2015)
Newsletter (Issue 7 - February 2015)
Newsletter (Issue 6 - January 2014)
Newsletter (Issue 5 - October 2013)
Newsletter (Issue 4 - August 2013)
Newsletter (Issue 3 - February 2013)
Newsletter (Issue 2 - November 2012)
Newsletter (Issue 1 - October 2012)