March 2008
Title: Finding Consensus on the Physiotherapy Management of Asymptomatic Infants with Cystic Fibrosis
Authors Prasad S A, et al.
References Pediatric Pulmonology. 2008;43:236-244
Keywords consensus, physiotherapy, Management, physiotherapy management, asymptomatic infant, infant
Theme Physiotherapy/Exercise testing
Title: Consensus on the use and interpretation of cystic fibrosis mutation analysis in clinical practice
Authors Castellani C, et al.
References Journal of Cystic Fibrosis. 2008; 7:179-196
Keywords consensus, use, interpretation, mutation analysis, clinical practice
Theme Diagnosis/Screening
Title: Consensus on the use and interpretation of cystic fibrosis mutation analysis in clinical practice
Authors Castellani C, Cuppens H, Macek Jr M, Cassiman JJ, Kerem E, Durie P, Tullis E, Assael BM, Bombieri C, Brown A, Casals T, Claustres M, Cutting GR, Dequeker E, Dodge J, Doull I, Farrell P, Ferec C, Girodon E, Johannesson M, Kerem B, Knowles M, Munck A, Pignatti PF, Radojkovic D, Rizzotti P, Schwarz M, Stuhrmann M, Tzetis M, Zielenski J, Elborn JS
References Journal of Cystic Fibrosis 2008; 7: 179-196
Keywords mutation analysis, mutation, clinical practice
January 2008
Title: Guidelines for the management of pregnancy in women with cystic fibrosis
Authors Edenborough FP, et al.
References Journal of Cystic Fibrosis. 2008 Jan;7 Suppl 1:S2-32
Keywords guideline, Management, pregnancy, women
Theme Care of patients with CF, Clinical Trials, Pregnancy with CF
Title: Guidelines for the management of pregnancy in women with cystic fibrosis
References Journal of Cystic Fibrosis Volume 7, Supplement 1, Pages S1-S32 (January 2008)
Keywords pregnancy, women, reproductive, baby, transplantation, preconceptual, physiology, conception, breast feeding, paediatrician, physiotherapist, dietician, pharmacist, psychologist
November 2007
Title: Cystic Fibrosis Pulmonary Guidelines: chronic medications for maintenance of lung health
Authors Flume P A, et al.
References American Journal of Respiratory and Critical Care Medicine. 2007; 176: 957-69
Keywords pulmonary guideline, guideline, chronic medication, maintenance, lung health
Theme Lung Disease and Infection
July 2007
Title: Diagnostic sweat testing: the Cystic Fibrosis Foundation guidelines
Authors LeGrys VA, et al.
References The Journal of Pediatrics. 2007 Jul;151(1):85-9
Keywords Diagnosis, diagnostic, Sweat test, sweat testing, Cystic Fibrosis Foundation, guideline
Theme Diagnosis/Screening
June 2007
Title: Current issues in quality improvement in cystic fibrosis
Authors Quinton HB, et al.
References Clinics in Chest Medicine. 2007 Jun;28(2):459-72
Keywords issue, quality improvement
Theme Care of patients with CF, Clinical Trials, Pregnancy with CF
April 2007
Title: Update on enteral nutrition support for cystic fibrosis
Authors Erskine JM, et al.
References Nutrition in Clinical Practice. 2007 Apr;22(2):223-32
Keywords Enteral nutrition, enteral nutrition support
Theme Nutrition/Gastroenterology
February 2007
Title: Guidelines for the implementation of cystic fibrosis newborn screening programs: Cystic Fibrosis Foundation workshop report
Authors Comeau AM, et al.
References Pediatrics. 2007 Feb;119(2):e495-518
Keywords guideline, implementation, newborn screening program, Newborn screening, newborn, Cystic Fibrosis Foundation, workshop report
Theme Diagnosis/Screening
Title: Bone mineralisation in cystic fibrosis
References Report of the UK CF Trust Bone Mineralisation Working Group
Title: Clinical Trials in Cystic Fibrosis
Authors Döring G, Elborn JS, Johannesson M, de Jonge H, Griese M, Smyth A, Heijerman H for the Consensus Study Group
References Journal of Cystic Fibrosis 2007; 6: 85-90
Keywords clinical trials, drug development
January 2007
Title: Guidelines for the performance of the sweat test for the diagnosis of cystic fibrosis
References Annals of Clinical Biochemistry. 2007 Jan;44(Pt 1):25-34
Keywords guideline, performance, Sweat test, Diagnosis
Theme Diagnosis/Screening
November 2006
Title: Update on maintaining bone health in cystic fibrosis
References Current Opinion in Pulmonary Medicine. 2006 Nov;12(6):453-8
July 2006
Title: International guidelines for the selection of lung transplant candidates: 2006 update--a consensus report from the Pulmonary Scientific Council of the International Society for Heart and Lung Transplantation
References Journal of Heart and Lung Transplantation. 2006 Jul;25(7):745-55
Keywords international guideline, guideline, selection of lung transplant candidate, Lung transplant, Lung transplantation, consensus, Pulmonary Scientific Council, International Society for Heart and Lung Transplantation
May 2006
Title: Australian Guidelines for the Performance of the Sweat Test for the Diagnosis of Cystic Fibrosis: Report from the AACB Sweat Testing Working Party
Authors No authors listed
References The Clinical Biochemist Reviews. 2006 May;27(2):S1-7
Keywords Australia, guideline, performance, Sweat test, sweat testing, Diagnosis, AACB, AACB Sweat Testing Working Group
Theme Diagnosis/Screening
January 2006
Title: Clinical trial participants compared with nonparticipants in cystic fibrosis
Authors Goss CH, Rubenfeld GD, Ramsey BW, Aitken ML.
References Am J Respir Crit Care Med. 2006 Jan 1;173(1):98-104
September 2005
Title: Antimicrobial therapy for pulmonary pathogenic colonisation and infection by Pseudomonas aeruginosa in cystic fibrosis patients.
References Clinical Microbiology and Infection. 2005 Sep;11(9):690-703.
Keywords antimicrobial therapy, pulmonary pathogenic colonisation, pulmonary pathogenic infection, colonisation, Infection, Pseudomonas aeruginosa
Theme Lung Disease and Infection
August 2005
Title: Eradication of early Pseudomonas aeruginosa infection
References Journal of Cystic Fibrosis. 2005 Aug;4 Suppl 2:49-54
Keywords eradication, early, Pseudomonas aeruginosa, Infection
Theme Lung Disease and Infection
May 2005
Title: Diagnosis of cystic fibrosis after newborn screening: the Australasian experience--twenty years and five million babies later: a consensus statement from the Australasian Paediatric Respiratory Group
References Pediatric Pulmonology. 2005 May;39(5):440-6
Keywords Diagnosis, Newborn screening, newborn, Australasia, Australia, consensus, Australasian Paediatric Respiratory Group, APRG
Theme Diagnosis/Screening
April 2005
Title: Immunisation in the current management of cystic fibrosis patients
Authors Anne Malfroot, Georgios Adam, Oana Ciofu, Gerd Döring, Christiane Knoop, Aloïs B. Lang, Pierre Van Damme, Isi Dab, Andrew Bush for the European Cystic Fibrosis Society (ECFS) Vaccination Group
References Journal of Cystic Fibrosis 2005; 4: 77-87
Keywords immunisation, Management, Patients
March 2005
Title: Standards of care for patients with cystic fibrosis: a European consensus
References Journal of Cystic Fibrosis. 2005 Mar;4(1):7-26
Keywords standards of care, Europe, European, consensus
Theme Care of patients with CF, Clinical Trials, Pregnancy with CF
Title: Guide to bone health and disease in cystic fibrosis
References The Journal of Clinical Endocrinology & Metabolism. 2005 Mar;90(3):1888-96
Title: Standards of care for patients with cystic fibrosis: A European consensus
Authors Kerem E, Conway S, Elborn S, Heijerman H for the Consensus Committee
References Journal of Cystic Fibrosis 2005; 4: 7-26
Keywords standards of care
December 2004
Title: Physiotherapy in infants and young children with cystic fibrosis: current practice and future developments
Authors Lannefors L, et al.
References Journal of the Royal Society of Medicine. 2004;97 Suppl 44:8-25
(publication date estimated as December 2004, to be confirmed)
Keywords physiotherapy, infant, young child, Child, current practice, practice, future development, future
Theme Physiotherapy/Exercise testing
November 2004
Title: Update on newborn screening for cystic fibrosis
Authors Wagener JS, et al.
References Current Opinion in Pulmonary Medicine. 2004 Nov;10(6):500-4.
Keywords Newborn screening, newborn
Theme Diagnosis/Screening
June 2004
Title: Early intervention and prevention of lung disease in cystic fibrosis: a European consensus
Authors Doering G, et al.
References Journal of Cystic Fibrosis. 2004 Jun;3(2):67-91
Keywords early, intervention, prevention, Lung disease, Europe, European, consensus
Theme Lung Disease and Infection
Title: Management of Cystic Fibrosis related diabetes.
References Report of the UK CF Trust Diabetes Working Group
Keywords Management, cf-related, Diabetes
March 2004
Title: Early intervention and prevention of lung disease in cystic fibrosis: a European consensus.
Authors Döring G, Høiby N for the Consensus Study Group
References Journal of Cystic Fibrosis 2004; 3: 67-91.
Keywords early intervention, intervention, prevention, Lung disease
January 2004
Title: Effect of ambient air pollution on pulmonary exacerbations and lung function in cystic fibrosis.
Authors Goss CH, Newsom SA, Schildcrout JS, Sheppard L, Kaufman JD
References Am J Respir Crit Care Med. 2004 Apr 1;169(7):816-21. Epub 2004 Jan 12.
January 2004
Title: Infection control in cystic fibrosis
References Clinical Microbiology Reviews. 2004 Jan;17(1):57-71
Keywords infection control
Theme Lung Disease and Infection
October 2003
Title: Pathophysiology and Management of Pulmonary Infections in Cystic Fibrosis
Authors Gibson R L, et al.
References American Journal of Respiratory and Critical Care Medicine. 2003;168:918-951
Keywords pathophysiology, Management, pulmonary infection
Theme Lung Disease and Infection
Title: Allergic bronchopulmonary aspergillosis in cystic fibrosis--state of the art: Cystic Fibrosis Foundation Consensus Conference
Authors Stevens DA, et al.
References Clinical Infectious Diseases. 2003 Oct 1;37 Suppl 3:S225-64. Rev. Err. in: Clin Infect Dis. 2004 Jan 1;38(1):158
Keywords allergy, Allergic bronchopulmonary aspergillosis, state of the art, Cystic Fibrosis Foundation, CFF, consensus, conference
Theme Lung Disease and Infection
August 2003
Title: Stratégies diagnostiques et thérapeutiques des troubles du métabolisme glucidique au cours de la mucoviscidose
References Archieves de pédiatrie. 2003 ; 10 Suppl. 3: 475s-486s
Keywords strategy, Diagnosis, diagnostic strategy, therapy, therapeutic, glucose, metabolism, glucose metabolism, Diabetes
Title: Stratégie de la thérapeutique des troubles du métabolisme du glucose dans la mucoviscidose
References Archieves de pédiatrie. 2003 ; 10 Suppl. 3: 469s-474s
Keywords strategy, therapeutic, therapy, metabolism, glucose, glucose metabolism, Diabetes
Title: Diabète de la mucoviscidose: physiopathologie et critères diagnostiques des troubles du métabolisme glucidique
References Archieves de pédiatrie. 2003 ; 10 Suppl. 3: 462s-468s
Keywords physiopathology, Diagnosis, diagnostic criteria, metabolism, glucose, glucose metabolism
September 2002
Title: Consensus report on nutrition for pediatric patients with cystic fibrosis
Authors Borowitz D, et al.
References Journal of Pediatric Gastroenterology and Nutrition. 2002 Sep;35(3):246-59
Keywords consensus, Nutrition, Pediatric, Paediatric
Theme Nutrition/Gastroenterology
Title: Standards and guidelines for CFTR mutation testing
Authors Richards CS, et al.
References Genetics in Medicine. 2002 Sep-Oct;4(5):379-91. Erratum in: Genet Med. 2002 Nov-Dec;4(6):471
Keywords standard, guideline, CFTR, mutation testing, CFTR mutation testing
Theme Diagnosis/Screening
June 2002
Title: Nutrition in patients with cystic fibrosis: a European Consensus
Authors Sinaasappel M, et al.
References Journal of Cystic Fibrosis. 2002 Jun;1(2):51-75
Keywords Nutrition, Europe, European, consensus
Theme Nutrition/Gastroenterology
Title: Nutrition in patients with cystic fibrosis: a European consensus
Authors Sinaasappel M, Stern M, Littlewood J, Wolfe S, Steinkamp G, Hiejerman HGM, Roberecht E, Döring G
References Journal of Cystic Fibrosis 2002; 1: 67-91.
January 2002
Title: Clinical Guidelines for the physiotherapy management of cystic fibrosis
References CF Trust Association of Chartered Physiotherapists in cystic fribrosis
Keywords clinical guideline, guideline, physiotherapy management, physiotherapy
Theme Physiotherapy/Exercise testing
October 2000
Title: Antibiotic therapy against Pseudomonas aeruginosa in cystic fibrosis: a European consensus
References European Respiratory Journal. 2000 Oct;16(4):749-67
Keywords antibiotic therapy, antibiotic, Pseudomonas aeruginosa, Europe, European, consensus
Theme Lung Disease and Infection
January 1999
Title: Recommendations for management of liver and biliary tract disease in cystic fibrosis. Cystic Fibrosis Foundation Hepatobiliary Disease Consensus Group
References Journal of Pediatric Gastroenterology and Nutrition. 1999;28 Suppl 1:S1-13
(month of publication estimated as January 1999 - clarification required)
Keywords recommendation, Management, liver, biliary tract, biliary tract disease, liver disease, Cystic Fibrosis Foundation, CFF, Cystic Fibrosis Foundation Hepatobiliary Disease Consensus Group, CFF-HDCG, consensus
Theme Nutrition/Gastroenterology
April 1998
Title: The diagnosis of cystic fibrosis: a consensus statement. Cystic Fibrosis Foundation Consensus Panel
Authors Rosenstein BJ, et al.
References The Journal of Pediatrics. 1998 Apr;132(4):589-95
Keywords Diagnosis, consensus, Cystic Fibrosis Foundation, Cystic Fibrosis Foundation Consensus Panel, CFF
Theme Diagnosis/Screening
January 1998
Title: Lung transplantation in cystic fibrosis: consensus conference statement
Authors Yankaskas JR, et al.
References Chest. 1998 Jan;113(1):217-26
Keywords Lung transplantation, Lung transplant, consensus, conference, statement
December 1997
Title: National Institutes of Health consensus development conference statement on genetic testing for cystic fibrosis
References Journal of Medical Screening. 1997;4(4):179-80
Keywords National Institutes of Health, consensus, development, conference, genetic testing
Theme Diagnosis/Screening
