Consensus Reports on Issues Associated with Cystic Fibrosis

The ECFS is dedicated to developing consensus reports on all aspects of cystic fibrosis. An area or topic is chosen and preliminary documents are prepared by leading workers in the particular topic. A meeting is then convened of about 30 participants who have a strong interest and expertise in the topic under discussion and a consensus statement is developed at that meeting. A report is then prepared and submitted for publication. The Terms of Reference for organising an ECFS Consensus Meeting, can be found here


CONSENSUS REPORTS

International Committee on Mental Health in Cystic Fibrosis: Cystic Fibrosis Foundation and European Cystic Fibrosis Society consensus statements for screening and treating depression and anxiety
Alexandra L Quittner, Janice Abbott, Anna M Georgiopoulos, Lutz Goldbeck, Beth Smith, Sarah E Hempstead,
Bruce Marshall, Kathryn A Sabadosa, Stuart Elborn
The International Committee on Mental Health

Thorax doi:10.1136/thoraxjnl-2015-207488
The guidelines are open access can be viewed using the following link

Treatment of lung infection in patients with cystic fibrosis:Current and future strategies
Döring G, Flume P, Heijerman H, Elborn JS for the consensus study group
Journal of Cystic Fibrosis 2012; 11 : 461-79
Available as a Free download - click here to access (pdf)

Inhaled medication and inhalation devices for lung disease in patients with cystic fibrosis: A European consensus
H. Heijermann, E. Westerman, S. Conway, D. Touw, G. Döring for the consensus working group.
Journal of Cystic Fibrosis 2009; 8 : 295-315
Available as a Free download - click here to access (pdf)

A European consensus for the evaluation and management of infants with an equivocal diagnosis following newborn screening for cystic fibrosis
S.J. Mayell, A. Munck, J.V. Craig, I. Sermet, K.G. Brownlee, M.J. Schwarz, C. Castellani, K.W. Southern
On behalf of the European Cystic Fibrosis Society Neonatal Screening Working Group
Journal of Cystic Fibrosis 2009; 8 : 71-78
Available as a Free download - click here to access  (pdf)

Consensus on the use and interpretation of cystic fibrosis mutation analysis in clinical practice
Castellani C, Cuppens H, Macek Jr M, Cassiman JJ, Kerem E, Durie P, Tullis E, Assael BM, Bombieri C,  Brown A, Casals T, Claustres M, Cutting GR, Dequeker E, Dodge J, Doull I, Farrell P, Ferec C, Girodon E, Johannesson M, Kerem B, Knowles M, Munck A, Pignatti PF, Radojkovic D, Rizzotti P, Schwarz M, Stuhrmann M, Tzetis M, Zielenski J, Elborn JS
Journal of Cystic Fibrosis 2008; 7: 179-196
Available as a Free download - click here to access (pdf)

Clinical Trials in Cystic Fibrosis
Döring G, Elborn JS, Johannesson M, de Jonge H, Griese M, Smyth A, Heijerman H for the Consensus Study Group
Journal of Cystic Fibrosis 2007; 6: 85-90
Available as a Free download - Click here to access (pdf)

Standards of care for patients with cystic fibrosis: A European consensus
Kerem E, Conway S, Elborn S, Heijerman H for the Consensus Committee
Journal of Cystic Fibrosis 2005; 4: 7-26
Available as a Free download - Click here to access (pdf)

Immunisation in the current management of cystic fibrosis patients 
Anne Malfroot, Georgios Adam, Oana Ciofu, Gerd Döring, Christiane Knoop, Aloïs B. Lang, Pierre Van Damme, Isi Dab, Andrew Bush for the European Cystic Fibrosis Society (ECFS) Vaccination Group
Journal of Cystic Fibrosis 2005; 4: 77-87
Available as a free download - Click here to access (pdf)

Early intervention and prevention of lung disease in cystic fibrosis: a European consensus.
Döring G, Høiby N for the Consensus Study Group
Journal of Cystic Fibrosis 2004; 3: 67-91.
Available as a Free download - Click here to access (pdf)

Nutrition in patients with cystic fibrosis: a European consensus
Sinaasappel M, Stern M, Littlewood J, Wolfe S, Steinkamp G, Hiejerman HGM, Roberecht E, Döring G
Journal of Cystic Fibrosis 2002; 1: 67-91.
Available as a Free download - Click here to access (pdf)