The ECFS-CTN cannot guarantee that the information provided here is comprehensive. Please go to the ClinicalTrials.gov link for detailed and up-to-date information on study background, eligibility criteria, study design, outcome measures, study status, participating sites, sponsor contact information and timelines.

You can also contact the CTN coordinating centre for additional information: ECFS-CTN@uzleuven.be

Study Name on
ClinicalTrials.gov (link is external)
A Longitudinal Study on the Impact of Treatment With ELX/TEZ/IVA in the Real World on Patients With Cystic Fibrosis in Europe
Study Drugnone/real world evidence trial
Type of Study Drug-
Study TitleA Longitudinal Study on the Impact of Treatment With ELX/TEZ/IVA in the Real World on Patients With Cystic Fibrosis in Europe
Study PhaseIV
Study SponsorVertex

Link on
clinicaltrials.gov (link is external)


Participating ECFS-CTN sitesPlease contact ecfs-ctn@uzleuven.be for most recent sitelist
AgePediatric and Adult patients