Welcome to the COVID-CF project in Europe
CF patient registries throughout Europe have collected data about people with CF who become infected with SARS-Cov-2, causing the illness COVID-19.
Countries that contribute annual data to the ECFS Patient Registry (ECFSPR; www.ecfs.eu/ecfspr) were invited to report COVID-19 case data of people with a PCR-confirmed diagnosis of CF. Centres reported data directly to the ECFSPR, and aggregated data was provided by national registries that use their own data-collection system. Here we present centralised, anonymised data.
We have published one peer reviewed scientific article about the incidence of SARS-Co-V-2 infection in pwCF up to the 30 June 2020 and we have submitted another article about risk factors for poorer outcomes to another journal for review. We hope it will be published soon.
The updates presented here are not peer reviewed and should be considered as preliminary. Updates will be published monthly from now on.