Welcome to the COVID-CF project in Europe

CF patient registries throughout Europe have collected data about people with CF who become infected with SARS-Cov-2, causing the illness COVID-19. 

Countries that contribute annual data to the ECFS Patient Registry (ECFSPR; www.ecfs.eu/ecfspr) were invited to report COVID-19 case data of people with a PCR-confirmed diagnosis of CF. Centres reported data directly to the ECFSPR, and aggregated data was provided by national registries that use their own data-collection system. Here we present centralised, anonymised data. 

We have published two peer reviewed scientific articles: one about the incidence of SARS-Co-V-2 infection in pwCF up to the 30 June 2020 and one about risk factors for poorer outcomes.