Surveys

On behalf of the ECFS Telehealth for CF (THCF) Working Group, we kindly invite all CF Units, CF Patient Associations, and CF Registries to participate in our telehealth survey titled: “Understanding telehealth implementation for cystic fibrosis care: A survey modelled on iCHECK”.  

The main aim of the THCF is to develop best practice guidelines for using telehealth as part of CF care. This survey seeks to learn more about key stakeholders experiences of telehealth, including those who are not currently using telehealth. 

Your participation in these surveys is voluntary, but we would greatly appreciate your insight and time in completing these surveys. 
If you have any questions, please do not hesitate to contact Dr Tamara Vagg at tamara.vagg@ucc.ie

On behalf of the THCF we would like to thank you for your time and input. 

CF Unit Survey:

The survey is broken into two parts. We would kindly ask that the CF unit director/lead complete the first part of the survey. If you are currently using telehealth, the CF unit lead will also be asked to nominate a member of the CF care team who champions the telehealth service to complete the second half of the survey. Both parts of the survey will take between 8-10 minutes each. 

An information leaflet, consent form, and the survey itself is available by clicking here

CF Patient Association Telehealth Survey:

The survey will take between 8-10 minutes each. An information leaflet, consent form, and the survey itself is available by clicking here

CF Registry Telehealth Survey:


The survey will take between 8-10 minutes. An information leaflet, consent form, and the survey itself is available by clicking here