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Other Guidelines

In-depth examination of the CFTR gene finds more disease-causing genetic changes than conventional clinical genetic testing

  • Read more about In-depth examination of the CFTR gene finds more disease-causing genetic changes than conventional clinical genetic testing

Presentation of two siblings with CF born to a mother with CF taking Trikafta (Kaftrio) throughout both pregnancies. A baby boy has normal vas deferens after birth.

  • Read more about Presentation of two siblings with CF born to a mother with CF taking Trikafta (Kaftrio) throughout both pregnancies. A baby boy has normal vas deferens after birth.

Could glucose tolerance tests used to detect cystic fibrosis related diabetes be performed at home?

  • Read more about Could glucose tolerance tests used to detect cystic fibrosis related diabetes be performed at home?

Lung function and imaging outcomes in children with cystic fibrosis diagnosed after newborn screening

  • Read more about Lung function and imaging outcomes in children with cystic fibrosis diagnosed after newborn screening

Do adult patients with cystic fibrosis suffer from sexual dysfunction?

  • Read more about Do adult patients with cystic fibrosis suffer from sexual dysfunction?

Exercise capacity after one year of Kaftrio® treatment in people with Cystic Fibrosis

  • Read more about Exercise capacity after one year of Kaftrio® treatment in people with Cystic Fibrosis

Modulatory therapy discontinuation of children with cystic fibrosis

  • Read more about Modulatory therapy discontinuation of children with cystic fibrosis

Development and Initial Use of the Personalized Cystic Fibrosis Medication Questionnaire (PCF-MQ)

  • Read more about Development and Initial Use of the Personalized Cystic Fibrosis Medication Questionnaire (PCF-MQ)

Improved growth in young children with Cystic Fibrosis

  • Read more about Improved growth in young children with Cystic Fibrosis

Oversight of Rare Disease Studies: Experience of the CF Foundation DSMB

  • Read more about Oversight of Rare Disease Studies: Experience of the CF Foundation DSMB
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