Palliative care | European Cystic Fibrosis Society (ECFS)

What symptoms are most common and most bothersome for people living with cystic fibrosis?

How do people with CF experience pain and other symptoms?

Prevalence of unmet palliative care needs in adults with cystic fibrosis

Defining Palliative Care in Cystic Fibrosis: A Delphi Study

End-of-life practice patterns at U.S. adult cystic fibrosis care centers: A national retrospective chart review.

The CF-CARES primary palliative care model: A CF-specific structured assessment of symptoms, distress, and coping. distress, and coping.

End of Life Care for Patients with Cystic Fibrosis

CF healthcare workers feel unprepared in providing suitable end of life care and desire more education: Results of a nationwide survey

Development and evaluation of a palliative care curriculum for cystic fibrosis healthcare providers.