Updated: 15 March 2014
The ECFS NSWG Annual Meeting will be held in Gothenburg, Sweden on Wednesday 11th June 2014, the day before the ECFS Conference at the Swedish Exhibition and Congress Centre.
NSWG Annual Meeting Programme 2014
| Wednesday 11 June 2014 | |
| 09.30 | Teas and coffees served |
| 10.00 | Morning session starts Chaired by Kevin Southern, University of Liverpool, UK |
| 10.00 | Welcome to Sweden Isabelle de Monestrol, Stockholm CF Centre, Sweden |
| 10.10 | Update on the progress in Europe Kevin Southern, University of Liverpool, UK |
| 10.25 | The challenges faced in the US and how the QI programme has helped. Susanna McColley, Ann & Robert H. Lurie Children’s Hospital of Chicago Research Center & Northwestern University Feinberg School of Medicine, Chicago, USA |
| 10.55 | The history of screening in Australia, how the regional programmes have developed and the impact on CF care. John Massie, The Royal Children's Hospital, Melbourne, Australia |
| 11.25 | Providing genetic counselling after newborn screening and the impact of CFTR2. Karen Siklosi Raraigh, Johns Hopkins University, Baltimore, USA |
| 11.55 | The Working Group Guidelines on the Management of an Inconclusive Diagnosis following Newborn Screening for CF. Anne Munck, AFDPHE and CF Centre Director, Hôpital Robert Debré, Paris, France |
| 12.25 |
Break for lunch |
| 13.15 | Afternoon session starts. Chaired by Isabelle de Monestrol, Stockholm CF Centre, Sweden and Kevin Southern, University of Liverpool, UK. |
| 13.15 | Preparatory studies for the implementation of NBS in CF for Sweden. Isabelle de Monestrol, Stockholm CF centre, Sweden |
| 13.45 | Assessing cost-effectiveness of Newborn Screening for CF. Elske van den Akker-van Marle, Leiden University Medical Centre, Leiden, the Netherlands |
| 14.15 | CF NBS in Norway, the initial process, the challenges and early results. Olav Trond Storrøsten, Norwegian Resource Centre for Cystic Fibrosis, Oslo, Norway |
| 14.45 | Discussion |
If you would like to attend the meeting, please register with Vicki Winters v.winters@liv.ac.uk. There is no registration fee for the meeting. Please be aware that membership of the WG is also free, but we do, however, strongly encourage membership of the ECFS.
Kevin Southern