Projects

Development of SOPs: the working group has successfully completed regular teleconference meetings, developing new SOPs for wider distribution across ECFS (see under publications).

Development of guidance: in submission to JCF Jan 2026: De Boeck K et al. ECFS STATEMENT ON THERATYPING IN THE CONTEXT OF RARE AND ULTRARARE CFTR VARIANTS IN PEOPLE WITH CF

Training of staff in collection, and analysis of hNECs and Ussing Chambe, 10 staff certified to date: February 2026.