June 2011
Title: Medical needs of cystic fibrosis patients and policies for fair co-operation between small and middle-sized companies and patient organizations
References Journal of Cystic Fibrosis Volume 10 (2011) S110-S113
Keywords medical needs, policies, policy, SME, patient organizations, patient organisations, EuroCareCF, PO, cooperation, collaboration, clinical trials, post-marketing authorization, authorisation
Title: Recommendations for the classification of diseases as CFTR-related disorders
References Journal of Cystic Fibrosis Volume 10 (2011) S86-S102
Keywords recommendations, classification of diseases, CFTR-related disorders, CFTR, genetically related, Cystic fibrosis transmembrane conductance regulator, CFTR-RD
Title: Measuring health-related quality of life in clinical trials in cystic fibrosis
References Journal of Cystic Fibrosis Volume 10 (2011) S82-S85
Keywords health-related quality of life, Quality of life, clinical trials, HRQoL, outcome measure, HRQoL Outcomes Group
Title: Chronic Pseudomonas aeruginosa infection definition: EuroCareCF Working Group report
References Journal of Cystic Fibrosis Volume 10 (2011) S75-S78
Keywords chronic Pseudomonas aeruginosa infection, EuroCareCF, chronic pulmonary infection, P. aeruginosa, morbidity, mortality, mucoid variants
Title: Pulmonary exacerbation: Towards a definition for use in clinical trials. Report from the EuroCareCF Working Group on outcome parameters in clinical trials
References Journal of Cystic Fibrosis Volume 10 (2011) S79-S81
Keywords Pulmonary exacerbation, clinical trials, EuroCareCF, outcome parameters, intravenous antibiotics, oral antibiotics, nebulised therapy
Title: Guideline on the design and conduct of cystic fibrosis clinical trials: The European Cystic Fibrosis Society–Clinical Trials Network (ECFS-CTN)
References Journal of Cystic Fibrosis Volume 10 (2011) S67-S74
Keywords design, conduct, clinical trials, ECFS-CTN, CTN, clinical trials network, disease specific research networks
Title: New clinical diagnostic procedures for cystic fibrosis in Europe
References Journal of Cystic Fibrosis Volume 10 (2011) S53-S66
Keywords clinical diagnostic procedures, Europe, CFTR bioassays, nasal epithelium, Nasal potential difference measurements
Title: Guiding principles on how to manage relevant psychological aspects within a CF team: Interdisciplinary approaches
References Journal of Cystic Fibrosis Volume 10 (2011) S45-S52
Keywords guiding principles, pschological aspects, interdisciplinary
Title: End of Life Care for Patients with Cystic Fibrosis
References Journal of Cystic Fibrosis Volume 10 (2011) S37-S44
Keywords end of life, Palliative care, Quality of life, care planning
Title: Best practice guidance for the diagnosis and management of cystic fibrosis-associated liver disease
References Journal of Cystic Fibrosis Volume 10 (2011) S29-S36
Keywords best practice, Diagnosis, Management, liver disease, multilobular cirrhosis, portal hypertension, variceal bleeding
Title: Guidelines for the diagnosis and management of distal intestinal obstruction syndrome in cystic fibrosis patients
References Journal of Cystic Fibrosis Volume 10 (2011) S24-S28
Keywords Diagnosis, Distal intestinal obstruction syndrome, DIOS, viscid faecal material, terminal ileum, proximal colon
Title: European cystic fibrosis bone mineralisation guidelines
References Journal of Cystic Fibrosis Volume 10 (2011) S16-S23
Keywords Bone, mineralisation, bone mineralisation, BMD, bone mineral density, Epidemiology, pathophysiology, skeletal deficits
Title: The implementation of standards of care in Europe: State of the art
References Journal of Cystic Fibrosis Volume 10 (2011) S7-S15
Keywords standards of care
December 2010
Title: Clinical Care Guidelines for Cystic Fibrosis-Related Diabetes
References Diabetes Care Dec.2010; Vol 33 no 12:2697-2708
Keywords clinical care, care, guideline, Diabetes, cf-related
November 2010
Title: EuroCareCF: Report on the demographics of cystic fibrosis in 35 European countries
References (European Coordination Action for Research in Cystic Fibrosis; EC FP6 project no. LSHM-CT-2005-018932).
Keywords Europe, EuroCareCF, demographic, data, analysis
September 2010
Title: Guidelines on the early management of infants diagnosed with cystic fibrosis following newborn screening
Authors Sermet-Gaudelus I, et al.
References Journal of Cystic Fibrosis. 2010 Sep;9(5):323-329
Keywords guideline, infant, Diagnosis, Newborn screening
Theme Care of patients with CF, Clinical Trials, Pregnancy with CF
Title: Travelling with cystic fibrosis: Recommendations for patients and care Team members
References Journal of Cystic Fibrosis Volume 9 (2010) 385-399
Keywords travelling, travel, trip, destination, recommendations, European Guidelines, ECORN-CF, Executive Agency of Health and Consumers of the European Union, Christiane Herzog Foundation, immunocompromised, vaccination, medication, emergency
August 2010
Title: Cystic Fibrosis Pulmonary Guidelines Pulmonary Complications: Hemoptysis and Pneumothorax
References Am J Respir Crit Care Med 2010, Vol 182: M298-306
Keywords pulmonary guideline, pulmonary complication, Hemoptysis, pneumothorax
Theme Lung Disease and Infection
May 2010
Title: Benchmarks for Cystic Fibrosis carrier screening: A European consensus document
Authors Castellani C, et al.
References Journal of Cystic Fibrosis. 2010 May;9(3):165-178
Keywords benchmark, carrier screening, Europe, European, consensus
Theme Diagnosis/Screening
December 2009
Title: Cystic Fibrosis Foundation Practice Guidelines for the Management of Infants with Cystic Fibrosis Transmembrane Conductance Regulator-Related Metabolic Syndrome during the First two Years of Life and Beyond
Authors Borowitz D , et al.
References The Journal of Pediatrics, vol. 155, No. 6, Suppl. 4: S106-S116
Keywords Cystic Fibrosis Foundation, Management, infant, transmembrane conductance regulator-related metabolic syndrome
Theme Care of patients with CF, Clinical Trials, Pregnancy with CF
Title: Cystic Fibrosis Foundation Evidence-Based Guidelines for Management of Infants with Cystic Fibrosis
Authors Borowitz D, et al.
References The Journal of Pediatrics, vol. 155, No. 6, Suppl. 4: S73-S93
Keywords evidence-based, guideline, Management, infant
Theme Care of patients with CF, Clinical Trials, Pregnancy with CF
Title: Management of Infants with Cystic Fibrosis: A Summary of the Evidence for the cystic Fibrosis Foundation Working Group on Care of Infants with Cystic Fibrosis
Authors Robinson KA, et al.
References The Journal of Pediatrics, vol. 155, No. 6, Suppl. 4: S94-S105
Keywords Management, infant, evidence, Cystic Fibrosis Foundation, working group on care of infants
Theme Care of patients with CF, Clinical Trials, Pregnancy with CF
November 2009
Title: Cystic Fibrosis Pulmonary Guidelines: Treatment of Pulmonary Exacerbations
Authors Flume P A, et al.
References American Journal of Respiratory and Critical Care Medicine. 2009; 180:802-808
Keywords pulmonary guideline, Pulmonary exacerbation, treatment, guideline
Theme Lung Disease and Infection
September 2009
Title: Inhaled medications and inhalation devices for lung disease in patients with Cystic Fibrosis: A European Consensus
References Journal of Cystic Fibrosis. 2009 Sep;8(5):295-315
Keywords inhaled medication, inhalation device, Lung disease, European, Europe, consensus
Theme Lung Disease and Infection
August 2009
Title: BTS guidelines for home oxygen in children
Authors Balfour-Lynn I M, et al.
References Thorax.2009;64:ii1-ii26
Keywords BTS, guideline, home oxygen, Child, oxygen, British Thoracic Society
Theme Lung Disease and Infection
Title: EASL Clinical Practice Guidelines: Management of cholestatic liver disease
Authors Clinical Practice Guidelines Panel, Beuers U, et al.
References Journal of Hepatology. 2009; 51:237-267
Keywords EASL, clinical practice, guideline, Management, cholestatic liver disease, liver
Theme Nutrition/Gastroenterology
June 2009
Title: Airway-clearance therapy guidelines and implementation
Authors Lester MK, Flume PA
References Respiratory Care. 2009;54(6):733-750; discussion 751-753
Keywords airway clearance therapy, airway clearance, Airway, guideline, implementation
Theme Physiotherapy/Exercise testing
Title: Inhaled medication and inhalation devices for lung disease in patients with cystic fibrosis: A European consensus
Authors H. Heijermann, E. Westerman, S. Conway, D. Touw, G. Döring for the consensus working group
References Journal of Cystic Fibrosis 2009; 8 : 295-315
Keywords inhaled medication, inhalation devices, Lung disease
May 2009
Title: Guidelines for the physiotherapy management of the adult, medical, spontaneously breathing patient
References Thorax.2009;64:i1-i52
Keywords guideline, physiotherapy, Management, Adult, medical, spontaneously breathing, breathing, patient
Theme Physiotherapy/Exercise testing
Title: European best practice guidelines for cystic fibrosis neonatal screening
Authors Castellani C, et al.
References Journal of Cystic Fibrosis. 2009 May;8(3):153-173
Keywords best practice, guideline, neonatal screening
Theme Diagnosis/Screening
Title: European best practice guidelines for cystic fibrosis neonatal screening
References Journal of Cystic Fibrosis Volume 8 (2009) 153-173
Keywords European, best practice, neonatal screening, NBS, IRT, DNA mutation analysis, sweat chloride, phenotypes, infant
April 2009
Title: Cystic Fibrosis Pulmonary Guidelines: Airway Clearance Therapies
Authors Flume P A, et al.
References Respiratory Care. 2009; 54(4):522-537
Keywords pulmonary guideline, airway clearance therapy, Airway, airway clearance
Theme Physiotherapy/Exercise testing
January 2009
Title: Best practice guidelines for molecular genetic diagnosis of cystic fibrosis and CFTR-related disorders – updated European recommendations
Authors Dequeker E, et al.
References European Journal of Human Genetics. 2009;17:51-65
Keywords best practice, guideline, molecular genetic diagnosis, Diagnosis, CFTR-related disorders, CFTR, Europe, European, recommendation
Theme Diagnosis/Screening
Title: A European Consensus for the evaluation and management of infants with an equivocal diagnosis following newborn screening for cystic fibrosis
Authors Mayell SJ, et al.
References Journal of Cystic Fibrosis. 2009 Jan;8(1):71-78
Keywords Europe, European, consensus, evaluation, Management, infant, equivocal, Diagnosis, equivocal diagnosis, Newborn screening
Theme Diagnosis/Screening
October 2008
Title: A European consensus for the evaluation and management of infants with an equivocal diagnosis following newborn screening for cystic fibrosis
Authors S.J. Mayell, A. Munck, J.V. Craig, I. Sermet, K.G. Brownlee, M.J. Schwarz, C. Castellani, K.W. Southern On behalf of the European Cystic Fibrosis Society Neonatal Screening Working Group
References Journal of Cystic Fibrosis 2009; 8 : 71-78
Keywords infants, Newborn screening, evaluation, Management
August 2008
Title: Guidelines for Diagnosis of Cystic Fibrosis in Newborns through Older Adults: Cystic Fibrosis Foundation Consensus Report
Authors Farrell P M, et al.
References The Journal of Pediatrics. 2008: 153:S4-S14
Keywords guideline, Diagnosis, newborn, older adult, Adult, Cystic Fibrosis Foundation, consensus
Theme Diagnosis/Screening
Title: Diagnosis of Cystic Fibrosis by Sweat Testing: Age-Specific Reference Intervals
References The Journal of Pediatrics. 2008; 153(6):758-763
Keywords Diagnosis, sweat testing, age-specific reference intervals, referance intervals
Theme Diagnosis/Screening
Title: Management of Cystic Fibrosis-related diabetes (ISPAD Clinical Practice Consensus Guidelines)
Authors O’Riordan SMP, et al.
References Pediatric Diabetes 2008. 9(PartI):338-344
Keywords Management, cf-related, Diabetes, ISPAD, clinical practice, ISPAD Clinical Practice Consensus Guidelines, consensus
May 2008
Title: Evidence-based practice recommendations for nutrition-related management of children and adults with CF and pancreatic insufficiency: results of a systematic review
Authors Stallings VA, et al.
References Journal of American Dietetic Association. 2008 May;108(5):832-839
Keywords evidence-based, practice, recommendations, Nutrition, nutrition-related, Children, Child, Adult, pancreatic insufficiency, Systematic review
Theme Nutrition/Gastroenterology
March 2008
Title: Finding Consensus on the Physiotherapy Management of Asymptomatic Infants with Cystic Fibrosis
Authors Prasad S A, et al.
References Pediatric Pulmonology. 2008;43:236-244
Keywords consensus, physiotherapy, Management, physiotherapy management, asymptomatic infant, infant
Theme Physiotherapy/Exercise testing
Title: Consensus on the use and interpretation of cystic fibrosis mutation analysis in clinical practice
Authors Castellani C, et al.
References Journal of Cystic Fibrosis. 2008; 7:179-196
Keywords consensus, use, interpretation, mutation analysis, clinical practice
Theme Diagnosis/Screening
Title: Consensus on the use and interpretation of cystic fibrosis mutation analysis in clinical practice
Authors Castellani C, Cuppens H, Macek Jr M, Cassiman JJ, Kerem E, Durie P, Tullis E, Assael BM, Bombieri C, Brown A, Casals T, Claustres M, Cutting GR, Dequeker E, Dodge J, Doull I, Farrell P, Ferec C, Girodon E, Johannesson M, Kerem B, Knowles M, Munck A, Pignatti PF, Radojkovic D, Rizzotti P, Schwarz M, Stuhrmann M, Tzetis M, Zielenski J, Elborn JS
References Journal of Cystic Fibrosis 2008; 7: 179-196
Keywords mutation analysis, mutation, clinical practice
January 2008
Title: Guidelines for the management of pregnancy in women with cystic fibrosis
Authors Edenborough FP, et al.
References Journal of Cystic Fibrosis. 2008 Jan;7 Suppl 1:S2-32
Keywords guideline, Management, pregnancy, women
Theme Care of patients with CF, Clinical Trials, Pregnancy with CF
Title: Guidelines for the management of pregnancy in women with cystic fibrosis
References Journal of Cystic Fibrosis Volume 7, Supplement 1, Pages S1-S32 (January 2008)
Keywords pregnancy, women, reproductive, baby, transplantation, preconceptual, physiology, conception, breast feeding, paediatrician, physiotherapist, dietician, pharmacist, psychologist
November 2007
Title: Cystic Fibrosis Pulmonary Guidelines: chronic medications for maintenance of lung health
Authors Flume P A, et al.
References American Journal of Respiratory and Critical Care Medicine. 2007; 176: 957-69
Keywords pulmonary guideline, guideline, chronic medication, maintenance, lung health
Theme Lung Disease and Infection
July 2007
Title: Diagnostic sweat testing: the Cystic Fibrosis Foundation guidelines
Authors LeGrys VA, et al.
References The Journal of Pediatrics. 2007 Jul;151(1):85-9
Keywords Diagnosis, diagnostic, Sweat test, sweat testing, Cystic Fibrosis Foundation, guideline
Theme Diagnosis/Screening
June 2007
Title: Current issues in quality improvement in cystic fibrosis
Authors Quinton HB, et al.
References Clinics in Chest Medicine. 2007 Jun;28(2):459-72
Keywords issue, quality improvement
Theme Care of patients with CF, Clinical Trials, Pregnancy with CF
April 2007
Title: Update on enteral nutrition support for cystic fibrosis
Authors Erskine JM, et al.
References Nutrition in Clinical Practice. 2007 Apr;22(2):223-32
Keywords Enteral nutrition, enteral nutrition support
Theme Nutrition/Gastroenterology
February 2007
Title: Guidelines for the implementation of cystic fibrosis newborn screening programs: Cystic Fibrosis Foundation workshop report
Authors Comeau AM, et al.
References Pediatrics. 2007 Feb;119(2):e495-518
Keywords guideline, implementation, newborn screening program, Newborn screening, newborn, Cystic Fibrosis Foundation, workshop report
Theme Diagnosis/Screening
Title: Bone mineralisation in cystic fibrosis
References Report of the UK CF Trust Bone Mineralisation Working Group
Title: Clinical Trials in Cystic Fibrosis
Authors Döring G, Elborn JS, Johannesson M, de Jonge H, Griese M, Smyth A, Heijerman H for the Consensus Study Group
References Journal of Cystic Fibrosis 2007; 6: 85-90
Keywords clinical trials, drug development
January 2007
Title: Guidelines for the performance of the sweat test for the diagnosis of cystic fibrosis
References Annals of Clinical Biochemistry. 2007 Jan;44(Pt 1):25-34
Keywords guideline, performance, Sweat test, Diagnosis
Theme Diagnosis/Screening
November 2006
Title: Update on maintaining bone health in cystic fibrosis
References Current Opinion in Pulmonary Medicine. 2006 Nov;12(6):453-8
July 2006
Title: International guidelines for the selection of lung transplant candidates: 2006 update--a consensus report from the Pulmonary Scientific Council of the International Society for Heart and Lung Transplantation
References Journal of Heart and Lung Transplantation. 2006 Jul;25(7):745-55
Keywords international guideline, guideline, selection of lung transplant candidate, Lung transplant, Lung transplantation, consensus, Pulmonary Scientific Council, International Society for Heart and Lung Transplantation
May 2006
Title: Australian Guidelines for the Performance of the Sweat Test for the Diagnosis of Cystic Fibrosis: Report from the AACB Sweat Testing Working Party
Authors No authors listed
References The Clinical Biochemist Reviews. 2006 May;27(2):S1-7
Keywords Australia, guideline, performance, Sweat test, sweat testing, Diagnosis, AACB, AACB Sweat Testing Working Group
Theme Diagnosis/Screening
January 2006
Title: Clinical trial participants compared with nonparticipants in cystic fibrosis
Authors Goss CH, Rubenfeld GD, Ramsey BW, Aitken ML.
References Am J Respir Crit Care Med. 2006 Jan 1;173(1):98-104
September 2005
Title: Antimicrobial therapy for pulmonary pathogenic colonisation and infection by Pseudomonas aeruginosa in cystic fibrosis patients.
References Clinical Microbiology and Infection. 2005 Sep;11(9):690-703.
Keywords antimicrobial therapy, pulmonary pathogenic colonisation, pulmonary pathogenic infection, colonisation, Infection, Pseudomonas aeruginosa
Theme Lung Disease and Infection
August 2005
Title: Eradication of early Pseudomonas aeruginosa infection
References Journal of Cystic Fibrosis. 2005 Aug;4 Suppl 2:49-54
Keywords eradication, early, Pseudomonas aeruginosa, Infection
Theme Lung Disease and Infection
May 2005
Title: Diagnosis of cystic fibrosis after newborn screening: the Australasian experience--twenty years and five million babies later: a consensus statement from the Australasian Paediatric Respiratory Group
References Pediatric Pulmonology. 2005 May;39(5):440-6
Keywords Diagnosis, Newborn screening, newborn, Australasia, Australia, consensus, Australasian Paediatric Respiratory Group, APRG
Theme Diagnosis/Screening
April 2005
Title: Immunisation in the current management of cystic fibrosis patients
Authors Anne Malfroot, Georgios Adam, Oana Ciofu, Gerd Döring, Christiane Knoop, Aloïs B. Lang, Pierre Van Damme, Isi Dab, Andrew Bush for the European Cystic Fibrosis Society (ECFS) Vaccination Group
References Journal of Cystic Fibrosis 2005; 4: 77-87
Keywords immunisation, Management, Patients
March 2005
Title: Standards of care for patients with cystic fibrosis: a European consensus
References Journal of Cystic Fibrosis. 2005 Mar;4(1):7-26
Keywords standards of care, Europe, European, consensus
Theme Care of patients with CF, Clinical Trials, Pregnancy with CF
Title: Guide to bone health and disease in cystic fibrosis
References The Journal of Clinical Endocrinology & Metabolism. 2005 Mar;90(3):1888-96
Title: Standards of care for patients with cystic fibrosis: A European consensus
Authors Kerem E, Conway S, Elborn S, Heijerman H for the Consensus Committee
References Journal of Cystic Fibrosis 2005; 4: 7-26
Keywords standards of care
December 2004
Title: Physiotherapy in infants and young children with cystic fibrosis: current practice and future developments
Authors Lannefors L, et al.
References Journal of the Royal Society of Medicine. 2004;97 Suppl 44:8-25
(publication date estimated as December 2004, to be confirmed)
Keywords physiotherapy, infant, young child, Child, current practice, practice, future development, future
Theme Physiotherapy/Exercise testing
November 2004
Title: Update on newborn screening for cystic fibrosis
Authors Wagener JS, et al.
References Current Opinion in Pulmonary Medicine. 2004 Nov;10(6):500-4.
Keywords Newborn screening, newborn
Theme Diagnosis/Screening
June 2004
Title: Early intervention and prevention of lung disease in cystic fibrosis: a European consensus
Authors Doering G, et al.
References Journal of Cystic Fibrosis. 2004 Jun;3(2):67-91
Keywords early, intervention, prevention, Lung disease, Europe, European, consensus
Theme Lung Disease and Infection
Title: Management of Cystic Fibrosis related diabetes.
References Report of the UK CF Trust Diabetes Working Group
Keywords Management, cf-related, Diabetes
March 2004
Title: Early intervention and prevention of lung disease in cystic fibrosis: a European consensus.
Authors Döring G, Høiby N for the Consensus Study Group
References Journal of Cystic Fibrosis 2004; 3: 67-91.
Keywords early intervention, intervention, prevention, Lung disease
January 2004
Title: Effect of ambient air pollution on pulmonary exacerbations and lung function in cystic fibrosis.
Authors Goss CH, Newsom SA, Schildcrout JS, Sheppard L, Kaufman JD
References Am J Respir Crit Care Med. 2004 Apr 1;169(7):816-21. Epub 2004 Jan 12.
January 2004
Title: Infection control in cystic fibrosis
References Clinical Microbiology Reviews. 2004 Jan;17(1):57-71
Keywords infection control
Theme Lung Disease and Infection
October 2003
Title: Pathophysiology and Management of Pulmonary Infections in Cystic Fibrosis
Authors Gibson R L, et al.
References American Journal of Respiratory and Critical Care Medicine. 2003;168:918-951
Keywords pathophysiology, Management, pulmonary infection
Theme Lung Disease and Infection
Title: Allergic bronchopulmonary aspergillosis in cystic fibrosis--state of the art: Cystic Fibrosis Foundation Consensus Conference
Authors Stevens DA, et al.
References Clinical Infectious Diseases. 2003 Oct 1;37 Suppl 3:S225-64. Rev. Err. in: Clin Infect Dis. 2004 Jan 1;38(1):158
Keywords allergy, Allergic bronchopulmonary aspergillosis, state of the art, Cystic Fibrosis Foundation, CFF, consensus, conference
Theme Lung Disease and Infection
August 2003
Title: Stratégies diagnostiques et thérapeutiques des troubles du métabolisme glucidique au cours de la mucoviscidose
References Archieves de pédiatrie. 2003 ; 10 Suppl. 3: 475s-486s
Keywords strategy, Diagnosis, diagnostic strategy, therapy, therapeutic, glucose, metabolism, glucose metabolism, Diabetes
Title: Stratégie de la thérapeutique des troubles du métabolisme du glucose dans la mucoviscidose
References Archieves de pédiatrie. 2003 ; 10 Suppl. 3: 469s-474s
Keywords strategy, therapeutic, therapy, metabolism, glucose, glucose metabolism, Diabetes
Title: Diabète de la mucoviscidose: physiopathologie et critères diagnostiques des troubles du métabolisme glucidique
References Archieves de pédiatrie. 2003 ; 10 Suppl. 3: 462s-468s
Keywords physiopathology, Diagnosis, diagnostic criteria, metabolism, glucose, glucose metabolism
September 2002
Title: Consensus report on nutrition for pediatric patients with cystic fibrosis
Authors Borowitz D, et al.
References Journal of Pediatric Gastroenterology and Nutrition. 2002 Sep;35(3):246-59
Keywords consensus, Nutrition, Pediatric, Paediatric
Theme Nutrition/Gastroenterology
Title: Standards and guidelines for CFTR mutation testing
Authors Richards CS, et al.
References Genetics in Medicine. 2002 Sep-Oct;4(5):379-91. Erratum in: Genet Med. 2002 Nov-Dec;4(6):471
Keywords standard, guideline, CFTR, mutation testing, CFTR mutation testing
Theme Diagnosis/Screening
June 2002
Title: Nutrition in patients with cystic fibrosis: a European Consensus
Authors Sinaasappel M, et al.
References Journal of Cystic Fibrosis. 2002 Jun;1(2):51-75
Keywords Nutrition, Europe, European, consensus
Theme Nutrition/Gastroenterology
Title: Nutrition in patients with cystic fibrosis: a European consensus
Authors Sinaasappel M, Stern M, Littlewood J, Wolfe S, Steinkamp G, Hiejerman HGM, Roberecht E, Döring G
References Journal of Cystic Fibrosis 2002; 1: 67-91.
January 2002
Title: Clinical Guidelines for the physiotherapy management of cystic fibrosis
References CF Trust Association of Chartered Physiotherapists in cystic fribrosis
Keywords clinical guideline, guideline, physiotherapy management, physiotherapy
Theme Physiotherapy/Exercise testing
October 2000
Title: Antibiotic therapy against Pseudomonas aeruginosa in cystic fibrosis: a European consensus
References European Respiratory Journal. 2000 Oct;16(4):749-67
Keywords antibiotic therapy, antibiotic, Pseudomonas aeruginosa, Europe, European, consensus
Theme Lung Disease and Infection
January 1999
Title: Recommendations for management of liver and biliary tract disease in cystic fibrosis. Cystic Fibrosis Foundation Hepatobiliary Disease Consensus Group
References Journal of Pediatric Gastroenterology and Nutrition. 1999;28 Suppl 1:S1-13
(month of publication estimated as January 1999 - clarification required)
Keywords recommendation, Management, liver, biliary tract, biliary tract disease, liver disease, Cystic Fibrosis Foundation, CFF, Cystic Fibrosis Foundation Hepatobiliary Disease Consensus Group, CFF-HDCG, consensus
Theme Nutrition/Gastroenterology
April 1998
Title: The diagnosis of cystic fibrosis: a consensus statement. Cystic Fibrosis Foundation Consensus Panel
Authors Rosenstein BJ, et al.
References The Journal of Pediatrics. 1998 Apr;132(4):589-95
Keywords Diagnosis, consensus, Cystic Fibrosis Foundation, Cystic Fibrosis Foundation Consensus Panel, CFF
Theme Diagnosis/Screening
January 1998
Title: Lung transplantation in cystic fibrosis: consensus conference statement
Authors Yankaskas JR, et al.
References Chest. 1998 Jan;113(1):217-26
Keywords Lung transplantation, Lung transplant, consensus, conference, statement
December 1997
Title: National Institutes of Health consensus development conference statement on genetic testing for cystic fibrosis
References Journal of Medical Screening. 1997;4(4):179-80
Keywords National Institutes of Health, consensus, development, conference, genetic testing
Theme Diagnosis/Screening
